Re: Ladies can you help me with this??? Ester

[Guest guest]

Hi jennifer Im glad you and your dr. made a decision on what to

do.Hopefully it will all work for you.As far as your vitamin d i

think your bones will feel beter in a couple of weeks , but you

should get it tested every 3 months.Mine fluctuates i don't know if

the Gleevec depletes it or not. Let us know if the estrogen stuff is

working.Take care for now

Esther

>

> Thanks so much for your reply. I appreciate it. It is so

comforting to

> talk to someone else going through it. Being only 36 I never

would have dreamed

> of having to deal with all this. I have actually been going

through it all

> since 29 when I had the hyst but I can't deny the symptoms anymore

and my

> hubby deserve a wife conditioned wife.

> I saw the DR yesterday afternoon. He said my level was a 9 and he

had never

> seen anyone that low. He said he would like it between 40-50. He

said no

> wonder I'm in such pain all the time, my bones are worse then his.

(he's

> probably early 60's). I am hoping all this will correct a lot of

my problems. He

> said the muscle/bone pain, and fatigue that I have blaming on CML

could be

> related to this critical deficiency as well.

>

> He put me on:

> --Vitamin D 50,000 units weekly times 12 weeks then 50,000 units

per month

> thereafter

> --CitraCal 2-3 tablets daily

> --Boniva 150 mg one per month

>

> As far as the estrogen stuff goes, we talked more about it last

night and I

> think I am gonna do:

> --Viville Dat 0.025mg apply new patch every 3 1/2 days (not

excited about

> having an Estrogen patch on)

> --Vagi Fen insert 1 tablet daily x 14 days then 1 tablet every 3

1/2 days.

>

> The ring thing freaks me out a bit and I really don't want

infections.

>

> He wants to see me back in 6 weeks were we will re-evaluate

everything. My

> bones will take 2 years to recover and hopefully feel better.

>

> Does this all sound reasonable?

>

>

>

> Hugs and Hope-

>

> 36

> CML 5/13/05

> Gleevec 800mg until 8/07

> Spyrcel 100 mg since 9/07

> Wife and mother of 3 (12,9,7)

> # 907 in Zavie's Zero Club

>

>

>

>

>

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>