Guest guest Posted December 22, 2005 Report Share Posted December 22, 2005 Hi Joanne, On your immunosciences panel which titers were high and were they IgA, IgG or IgM? I only ask as we had these done for Jack some years back and he only had high IgG levels which we were told not to be concerned about as not indicative of current infection. Joanne Burke wrote: >Has anyone on this list tried Aciclovir..(anti virals) >We are doing it as history of herpes 1/2/ varicella(chickenpox) and >high titres in immunosciences premier autism panel. >Plus I think Autism triggered by HHV6 . at 7 months. >Just interested to hear how other peoples trials went .. > >We have done 6 days out of 7 >1 day of vomitting and bringing up mucus >rosy glow on cheeks for 1 day >Spots around the mouth have gone...so thats good > >then devil - giddy kipper...dragging tables over..flooding >bathrooms..climbing ...jumping on xmas tree... >plain stupid daftness...winging if he doesnt get his way.. >no concentration and a nightmare.. doing things and running off.. >save meeeeeeeeeeeeeeee.... > >Only 1 day to go... > >Still we had all this killing off bugs with CP1 for a week and came >out the other side of the black hole laughing about it... > >Joanne > > > > > > > > > >DISCLAIMER >No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2005 Report Share Posted December 22, 2005 Hi Joanne, On your immunosciences panel which titers were high and were they IgA, IgG or IgM? I only ask as we had these done for Jack some years back and he only had high IgG levels which we were told not to be concerned about as not indicative of current infection. Joanne Burke wrote: >Has anyone on this list tried Aciclovir..(anti virals) >We are doing it as history of herpes 1/2/ varicella(chickenpox) and >high titres in immunosciences premier autism panel. >Plus I think Autism triggered by HHV6 . at 7 months. >Just interested to hear how other peoples trials went .. > >We have done 6 days out of 7 >1 day of vomitting and bringing up mucus >rosy glow on cheeks for 1 day >Spots around the mouth have gone...so thats good > >then devil - giddy kipper...dragging tables over..flooding >bathrooms..climbing ...jumping on xmas tree... >plain stupid daftness...winging if he doesnt get his way.. >no concentration and a nightmare.. doing things and running off.. >save meeeeeeeeeeeeeeee.... > >Only 1 day to go... > >Still we had all this killing off bugs with CP1 for a week and came >out the other side of the black hole laughing about it... > >Joanne > > > > > > > > > >DISCLAIMER >No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2005 Report Share Posted December 22, 2005 Hi High IgG levels. and very low NK cells... Natural killer cells 2.60 range 20-50. I did ask Dr JM on CSB about this and she told me not to be all that worried.. but seeing low NK cells to me means he cannot fight off viruses.. or they are exhausted..and need boosting. I know in order to confirm if virus is live you need to do an additional blood PCR test. But you know when maternal instinct takes over... I always blamed HHV6 as his trigger and he had all sort of wierd unexplained viral rashes..7months - 18 months..which co-incided with teething - (poor immune ) So its bugged me ever since because now he is nearly 6 and we are on second set of teeth now and yet again spots around his mouth.. so ... If the spotty rash was herpes flare ups...then I wanted to give aciclovir a go to see what would happen. Thats my theory anyway... Best wishes Joanne > > >Has anyone on this list tried Aciclovir..(anti virals) > >We are doing it as history of herpes 1/2/ varicella(chickenpox) and > >high titres in immunosciences premier autism panel. > >Plus I think Autism triggered by HHV6 . at 7 months. > >Just interested to hear how other peoples trials went .. > > > >We have done 6 days out of 7 > >1 day of vomitting and bringing up mucus > >rosy glow on cheeks for 1 day > >Spots around the mouth have gone...so thats good > > > >then devil - giddy kipper...dragging tables over..flooding > >bathrooms..climbing ...jumping on xmas tree... > >plain stupid daftness...winging if he doesnt get his way.. > >no concentration and a nightmare.. doing things and running off.. > >save meeeeeeeeeeeeeeee.... > > > >Only 1 day to go... > > > >Still we had all this killing off bugs with CP1 for a week and came > >out the other side of the black hole laughing about it... > > > >Joanne > > > > > > > > > > > > > > > > > > > >DISCLAIMER > >No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2005 Report Share Posted December 23, 2005 In a message dated 24/12/2005 08:59:42 GMT Standard Time, alvarez3@... writes: A blood test showed high levels of mercury (no exposure). WE are notcurrently chelating. Our son is a partiall execreter so I can't sayfor sure that Valtrex is helping to detoxify, but that's a possibility. >>>>I think somebody posted on the Mb12/Valtrex list that metal excretion has gone up whilst on the Valtrex. Its all very interesting - be sure to keep us posted on its going I am hoping to do the Immuniscinces panel in the new year and trial the Valtrex, I am convinced Chicken Pox plays a part in Sam's downfall Mandi in UK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2005 Report Share Posted December 24, 2005 Hi Thanks for the reply... Well I have finished the weeks course..its been an absolute nightmare.. We did this as a weeks trial under Dr Heard. And if these reactions are a good thing then that ok .. Is 3 months the standard protocol for duration to try it for ..? There is no way I am having 3 months of this behaviour it will finish me off Yours totally knackered and in the recovery position whilst Daddy lets him loose in ASDA Joanne > > > > > > >Has anyone on this list tried Aciclovir..(anti virals) > > > >We are doing it as history of herpes 1/2/ varicella (chickenpox) > > and > > > >high titres in immunosciences premier autism panel. > > > >Plus I think Autism triggered by HHV6 . at 7 months. > > > >Just interested to hear how other peoples trials went .. > > > > > > > >We have done 6 days out of 7 > > > >1 day of vomitting and bringing up mucus > > > >rosy glow on cheeks for 1 day > > > >Spots around the mouth have gone...so thats good > > > > > > > >then devil - giddy kipper...dragging tables over..flooding > > > >bathrooms..climbing ...jumping on xmas tree... > > > >plain stupid daftness...winging if he doesnt get his way.. > > > >no concentration and a nightmare.. doing things and running off.. > > > >save meeeeeeeeeeeeeeee.... > > > > > > > >Only 1 day to go... > > > > > > > >Still we had all this killing off bugs with CP1 for a week and > > came > > > >out the other side of the black hole laughing about it... > > > > > > > >Joanne > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >DISCLAIMER > > > >No information contained in this post is to be construed as > > medical advice. If you need medical advice, please seek it from a > > suitably qualified practitioner. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2005 Report Share Posted December 24, 2005 Hi there, I think it was Dr. McCandless stated somewhere she whished that for some of her patients have been on Valtrex for longer periods of time and bigger dose. I don't think that you can't tell how good this is unless you give it a good time period. Now, having said that, Stant K from the Mb12valtrex list saw wonderfull improvements after 3 weeks and stayed with it for either seven or nine months. Son is recovered. There are others who have done it for long periods as well. Is this the standard protocol? Being honest with you, I don't even know if there's a protocol for it. I don't think that in our case, we have other choice. OUr son has both IgG and IgM positives, so we have to fight these viruses. We'll stay with it a minimun of three months. Why don't you join the Mb12valtrex group? there are a lots of parents who are seeing these type of responses on their children initially. I think Mandi posted the link to it. Cheers, > > > > > > > > >Has anyone on this list tried Aciclovir..(anti virals) > > > > >We are doing it as history of herpes 1/2/ varicella > (chickenpox) > > > and > > > > >high titres in immunosciences premier autism panel. > > > > >Plus I think Autism triggered by HHV6 . at 7 months. > > > > >Just interested to hear how other peoples trials went .. > > > > > > > > > >We have done 6 days out of 7 > > > > >1 day of vomitting and bringing up mucus > > > > >rosy glow on cheeks for 1 day > > > > >Spots around the mouth have gone...so thats good > > > > > > > > > >then devil - giddy kipper...dragging tables over..flooding > > > > >bathrooms..climbing ...jumping on xmas tree... > > > > >plain stupid daftness...winging if he doesnt get his way.. > > > > >no concentration and a nightmare.. doing things and running > off.. > > > > >save meeeeeeeeeeeeeeee.... > > > > > > > > > >Only 1 day to go... > > > > > > > > > >Still we had all this killing off bugs with CP1 for a week > and > > > came > > > > >out the other side of the black hole laughing about it... > > > > > > > > > >Joanne > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >DISCLAIMER > > > > >No information contained in this post is to be construed as > > > medical advice. If you need medical advice, please seek it from > a > > > suitably qualified practitioner. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 Didn;t you start the MB12 also? Probably down to that, Sam gets 100mg per day and then up to 300mg for a couple of days with clown mouth and back down again, usually fixed in 24 hours. Anita uses more than that for her lad who is about same size as Harry so see how he goes. Think DG is going to tell school to do 400mg per day when we start HB12/MB12 every day again Mx Hi All Since starting aciclovir 3 days ago Harry has clown mouth, how much B2 should i be giving him and should i give it once or twice a day, he weighs approx 42lbs. TIA x P.S No bad die off/side effects to report but had a positive this morning as he has just come over and said "can i have banana?" without me prompting him, this is going to be a good year, me thinks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 Bless him, hang in there! Mx P.S No bad die off/side effects to report but had a positive this morning as he has just come over and said "can i have banana?" without me prompting him, this is going to be a good year, me thinks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 Cool thanks Mandi, yes we started the MB12 drops last week, he was previously on the kirkman powder, i have been giving him about 100mg of B2 plus the 15mg he gets from vitaspectrum so i think i can safetly say i can up this. Thanks again x To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Wed, 21 Mar 2012 07:02:52 -0400Subject: Re: aciclovir Didn;t you start the MB12 also? Probably down to that, Sam gets 100mg per day and then up to 300mg for a couple of days with clown mouth and back down again, usually fixed in 24 hours. Anita uses more than that for her lad who is about same size as Harry so see how he goes. Think DG is going to tell school to do 400mg per day when we start HB12/MB12 every day again Mx Hi All Since starting aciclovir 3 days ago Harry has clown mouth, how much B2 should i be giving him and should i give it once or twice a day, he weighs approx 42lbs. TIA x P.S No bad die off/side effects to report but had a positive this morning as he has just come over and said "can i have banana?" without me prompting him, this is going to be a good year, me thinks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2012 Report Share Posted March 22, 2012 ,So happy to hear that things are going well so far. I've got my fingers crossed for you.Zahra From: michelle lacey <michelle0471@...> Sent: Wednesday, 21 March 2012, 10:20 Subject: aciclovir Hi All Since starting aciclovir 3 days ago Harry has clown mouth, how much B2 should i be giving him and should i give it once or twice a day, he weighs approx 42lbs. TIA x P.S No bad die off/side effects to report but had a positive this morning as he has just come over and said "can i have banana?" without me prompting him, this is going to be a good year, me thinks! Quote Link to comment Share on other sites More sharing options...
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