Re: New member, Sharon

[Guest guest]

Lottie,

You have been living with this for some time now.Do you still have

much pain/symptoms?I assume the meds are working to keep the levels

better.

I am not sure why the Dr has ordered the Zylprim except he was

concerned about my uric acid levels rising.I have had what the Dr.s

thought was Gout at times.I also have arthritis.Not sure if any of

that explains it.I will have to ask more questions.When I was DX on

Fri.I really wasn't prepared for this and had No questions in place

just the first ones that come to mind..Will I live? What side

effects? etc.I also have a chronic yeast infection that just WILL NOT

go away..I take diflucan about 10 days out of the month.It gets

better for a day to three then back it comes..Is there any relation

to this and the illness? I am diabetic as well but never had yeast

infection before.Do others here experience this.The primary Dr(not

the DXing DR) said my ph balance was off and I was just going to have

to live with it.take the meds as needed.Seems strange to me.My

primary hasn't been notified yet of the DX as I was dx Fri and she is

out of town currently.

Thanks again for all the info

SharonS

In , " Lottie Duthu " <lotajam@...> wrote:

>

> Dear Sharon,

> We are always happy to welcome a new member to the group,

because it means one more person with CML will have support and

information. It is highly unusual to have someone find us in one

day. I can't add any better to 's advice. It was scary for

me, because we didn't have Gleevec and the drugs we had were very

harsh and longevity was very questionable. Always look for a date

either at the top or bottom of the article. If you want the latest

information, you can go online or call your nearest

Leuekmia/Lymphomas Society. (LLS.org)

> New drugs and better information has made our lives a lot

easier because there is no reason to not continue to live as we did

before. Some of us have minimal side effects and some severe, but

there are several drugs out there, so you don't have to stick with

the original drug you were given if you are resistant or intolerant.

If you tell your doctor about your by-pass and you probably had to

disclose everything, you can ask for the smaller 100 mg, as they are

easier to take and if you split your dose, it is usually easier on

your stomach. While you have multiple problems, I'm sure the doctor

can guide and instruct as to what is best for your situation. When I

was first diagnosed, they sent a diatician to speak to me and you may

want to do the same.

> I am curious, however to know why your doctor has given you

Zylorpim (allopurinol) with Gleevec, as the management of patients

with leukemia, lymphoma and malignancies who are receiving cancer

therapy which causes elevations of serum and urinary uric acid

levels. Treatment with ZYLOPRIM should be discontinued when the

potential for overproduction of uric acid is no longer present.

http://www.rxlist.com/cgi/generic/allopur_ids.htm#I Personally I

have not met anyone who was put on Zyloprim and Gleevec at the same

time. This is a drug used to control gout or gouty arthritis. I

haven't met anyone who had gout because of Gleevec, either. Does

your doctor practice the sub-specialty for CML? Anyway, I ask a

lot of questions of my doctor and that is one thing I would ask, why

I was on Zyloprim. I took Zyloprim for 4 years because I was on

Hydrea, which causes gout. Allopurinol is the generic form and costs

much less than the brand name, so I would check on that, too.

> Blessings on your long life ahead,

> Lottie

> Diagnosed 7/96 ag age 67

>

>

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