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New member, Sharon

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Dear Sharon,

We are always happy to welcome a new member to the group, because it means

one more person with CML will have support and information. It is highly

unusual to have someone find us in one day. I can't add any better to 's

advice. It was scary for me, because we didn't have Gleevec and the drugs we

had were very harsh and longevity was very questionable. Always look for a date

either at the top or bottom of the article. If you want the latest

information, you can go online or call your nearest Leuekmia/Lymphomas Society.

(LLS.org)

New drugs and better information has made our lives a lot easier because

there is no reason to not continue to live as we did before. Some of us have

minimal side effects and some severe, but there are several drugs out there, so

you don't have to stick with the original drug you were given if you are

resistant or intolerant. If you tell your doctor about your by-pass and you

probably had to disclose everything, you can ask for the smaller 100 mg, as they

are easier to take and if you split your dose, it is usually easier on your

stomach. While you have multiple problems, I'm sure the doctor can guide and

instruct as to what is best for your situation. When I was first diagnosed,

they sent a diatician to speak to me and you may want to do the same.

I am curious, however to know why your doctor has given you Zylorpim

(allopurinol) with Gleevec, as the management of patients with leukemia,

lymphoma and malignancies who are receiving cancer therapy which causes

elevations of serum and urinary uric acid levels. Treatment with ZYLOPRIM should

be discontinued when the potential for overproduction of uric acid is no longer

present. http://www.rxlist.com/cgi/generic/allopur_ids.htm#I Personally I have

not met anyone who was put on Zyloprim and Gleevec at the same time. This is a

drug used to control gout or gouty arthritis. I haven't met anyone who had gout

because of Gleevec, either. Does your doctor practice the sub-specialty for

CML? Anyway, I ask a lot of questions of my doctor and that is one thing I

would ask, why I was on Zyloprim. I took Zyloprim for 4 years because I was on

Hydrea, which causes gout. Allopurinol is the generic form and costs much less

than the brand name, so I would check on that, too.

Blessings on your long life ahead,

Lottie

Diagnosed 7/96 ag age 67

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