Re: harvest and hold Rhonda

[Guest guest]

Hey.

I just wanted to throw something out. I am not sure if you already looked

into this but I got to PCRU on both Gleevec and Spyrcel and I had the harvest

in between the two drugs. My insurance wasn't gong to pay for it either. It

required my doctor compiling a letter including medical documentation as

proof of the needs for this, including the possible benefits someday if the

research advanced enough. We had to show that this procedure was not a clinical

trial of sorts and that it was medically necessary for a chronic Leukemic

patient. Well, whatever he put and sent to them, the insurance ended up

covering

the whole thing. All my siblings ended up not matching too so I felt it was

important for me to have the stem cell harvest (just in case) and no time

better then PCRU, so I did it. I would encourage you to look into that with

your insurance or doctor if they haven't done so yet. It is certainly worth

checking into. You, however, sound like your on top of things so this has

probably already been done but if not, best of luck and I will keep my fingers

crossed!!! I just wanted to have it in case research came up with something

that I could use my own stem cells for. I guess we never know what is coming

up next with their discoveries.

Best wishes- you'll be in PCRU in no time!

Hugs and Hope-

36

CML 5/13/05 PCRU

Gleevec 800mg until 8/07

Sprycel 100 mg since 9/07

Wife and mother of 3 (12,9,7)

# 907 in Zavie's Zero Club

**************Vote for your city's best dining and nightlife. City's Best

2008. (http://citysbest.aol.com?ncid=aolacg00050000000102)

[Guest guest]

Hey !

Thanks for the great info.

Yes, my doc has petitioned the insurance company twice actually and

spoken to the medical director. It seems my insurance says it will pay

IF it is in a clinical trial (how wierd is that). Probably because

they know there aren't any trials at the moment!!! Maybe they didn't

bank on me getting the doc to petition his institution to restart the

protocol!

I hope they restart the research on this topic for all of us! I hope

that by having at least ONE hospital still studying this, we can move

things along. That way if we need it it will be even better than the

current options.

No doubt I may have more questions on how you got it done!

Thanks!

Peace and hope,

Rhonda

Re: [ ] harvest and hold Rhonda

Hey.

I just wanted to throw something out. I am not sure if you already

looked

into this but I got to PCRU on both Gleevec and Spyrcel and I had the

harvest

in between the two drugs. My insurance wasn't gong to pay for it

either. It

required my doctor compiling a letter including medical documentation

as

proof of the needs for this, including the possible benefits someday

if the

research advanced enough. We had to show that this procedure was not a

clinical

trial of sorts and that it was medically necessary for a chronic

Leukemic

patient. Well, whatever he put and sent to them, the insurance ended

up covering

the whole thing. All my siblings ended up not matching too so I felt

it was

important for me to have the stem cell harvest (just in case) and no

time

better then PCRU, so I did it. I would encourage you to look into

that with

your insurance or doctor if they haven't done so yet. It is certainly

worth

checking into. You, however, sound like your on top of things so this

has

probably already been done but if not, best of luck and I will keep my

fingers

crossed!!! I just wanted to have it in case research came up with

something

that I could use my own stem cells for. I guess we never know what is

coming

up next with their discoveries.

Best wishes- you'll be in PCRU in no time!

Hugs and Hope-

36

CML 5/13/05 PCRU

Gleevec 800mg until 8/07

Sprycel 100 mg since 9/07

Wife and mother of 3 (12,9,7)

# 907 in Zavie's Zero Club

**************Vote for your city's best dining and nightlife. City's

Best

2008. (http://citysbest.aol.com?ncid=aolacg00050000000102)