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As we were talking about this issue during the chat, I thought I would pass on

some information.

Thanks,

Rhonda

?

http://www.healthfinder.gov/newsletters/relation031008.asp

?

?

?

2008

Gleevec May Disrupt Ovarian Function

WEDNESDAY, March 5 (HealthDay News) -- Although it's a much more targeted

treatment than standard chemotherapy, the effective and much-touted leukemia

drug, Gleevec, isn't without side effects.

In women still in their reproductive years, imatinib (Gleevec) might damage the

chances of having a baby in the future, according to a case report published as

a letter in the March 6 issue of the New England Journal of Medicine.

" Although the odds are not known, it is possible that imatinib and drugs with a

similar mode of action may impair fertility, " said one of the letter's authors,

Dr. Constantinos Christopoulos, deputy director of the 1st department of

internal medicine at Amalia Fleming General Hospital in Athens, Greece. " It is

not known whether imatinib-induced infertility is reversible. "

However, Christopoulos was also quick to point out that this was only a single

case report of premature ovarian failure, and it can be difficult to establish

the exact cause of the condition.

" Imatinib is a very effective drug that has revolutionized the treatment of

chronic myeloid leukemia (CML), but knowledge of the effects of its long-term

administration is still limited, and close medical surveillance of patients

receiving the drug is mandatory, " he said.

The patient Christopoulos and his colleagues reported on was a 28-year-old

female who had Philadelphia chromosome-positive CML. Each year in the United

States, just under 5,000 people are diagnosed with this type of cancer,

according to the Leukemia and Lymphoma Society.

She was initially given 400 milligrams of Gleevec daily. About one year into her

treatment, the dose of Gleevec was increased to 600 milligrams per day, because

she still had some cancer cells. She didn't have any severe side effects due to

the treatment, though she experienced some skin discoloration and muscle

cramping. During the first two years, she also reported having regular menstrual

cycles.

About two years after she first started taking Gleevec, and about six months

after the dose was increased, the woman reported that she was having irregular

menstrual cycles and then her periods ceased altogether.

Doctors confirmed premature ovarian failure. While it's not possible to

definitively prove that Gleevec caused premature menopause, Christopoulos said

that based on the timing, the lack of other causes, and the drugs' mode of

action, it's the most likely culprit.

Gleevec works by targeting tyrosine kinases, which are proteins that are very

active in cancer cells. However, these proteins are also expressed by the

ovaries.

" There are about 60 tyrosine kinases. Can Gleevec be so specific that it only

interacts with one of the 60? This drug is pretty good at targeting and hitting

the bull's-eye, but it's not perfect, " said Dr. Bart Kamen, chief medical

officer of the Leukemia & Lymphoma Society.

" Is it worth that risk? You better believe it, " Kamen said. " The side effects of

Gleevec compared to what else we do in cancer treatment is mild. It has a

wonderful risk-to-benefit ratio. "

" The advantages of this drug clearly outweigh the disadvantages, " said Dr. Jay

, chairman of hematology/oncology at Ochsner Health System in Baton Rouge,

La.

also pointed out that most women with CML are long past their

reproductive years. According to the American Cancer Society, the average age of

CML diagnosis is about 67.

While most women are already counseled about the risks to their fertility before

undergoing any cancer treatment, Christopoulos said that women of reproductive

age receiving Gleevec should know that they shouldn't become pregnant while

taking the drug, and they may want to freeze some of their eggs before

treatment.

More information

The American Cancer Society has more on Gleevec??.

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Hi Rhonda,

Thanks for this article. I find it interesting that they refer to

this patient as having had " premature menopause " based on the sole

fact that her period stopped. Unless there's more that they didn't

report, I don't understand how they can conclude this as being

menopause since there are several reasons that could be attributed to

a ceasation of a menstrual cycle (outside of menopause).

As we talked about last night on the chat, I suspect that Gleevec can

increase prolactin levels (at least in me it did) and for some women,

an increase in prolactin can cause their periods to stop. This

doesn't mean that they're in menopause though. I've found that my

prolactin fluctuates dramatically (like most of the other side

effects).

There was a study I found a long time ago showing that some men have

experienced gynecomastia (breast growth) but in the article, they

attributed it to a lowering of testosterone. There's no mention of

prolactin and I'm fairly confident that prolactin was never checked

in these men. I'm also fairly confident that very few CML paitents

(if any at all) ever get their prolactin checked. I had to

specifically ask for mine to be checked so who knows how many people

are having abnormal levels out there and don't even know it.

There are so many hormones in our bodies, prolactin being just one

example and I wonder how many other hormones are being effected. I

haven't seen any studies done on this subject at all and

unfortunately it seems that none of the doctors has any interest to

investigate it.

I can't help but wonder what long term damage (or risk) we might have

as a result of variously imbalanced hormones and I don't just mean

the sex hormones but thyroid hormones and all the rest of them as

well.

I've always found it interesting (and perhaps not coincidental) that

many of the side effects we experience are suspiciously similar to

symptoms we would experience if we had an imbalance in a variety of

hormones.

For example the fatigue,intolerance to cold temperatures, weight

gain, muscle and joint pain, thin hair, hypopigmentation, dry skin,

puffy face, altered taste or smell, irregular periods, and muscle

cramping, can all be related to thyroid function. So I wonder, do the

tyrosine kinase inhibitors effect our thyroid hormones as well? More

importantly though, I wonder why none of the doctors care about it?

Don't get me wrong, I'm very grateful to have Gleevec and I don't

doubt for a second that it's kept me alive all these years. I just

hope that it doesn't do any harm in the long run....harm that could

have been avoided had someone just taken an interest in monitoring

hormone levels since hormones are something that could easily be

regulated with drugs if the need is identified.

Getting off my soap box now :)

Tracey

>

> As we were talking about this issue during the chat, I thought I

would pass on some information.

>

>

> Thanks,

>

>

> Rhonda

>

>

> ?

>

>

> http://www.healthfinder.gov/newsletters/relation031008.asp

>

>

> ?

>

>

> ?

>

>

> ?

>

>

> 2008

>

>

> Gleevec May Disrupt Ovarian Function

>

>

>

>

>

>

>

> WEDNESDAY, March 5 (HealthDay News) -- Although it's a much more

targeted treatment than standard chemotherapy, the effective and much-

touted leukemia drug, Gleevec, isn't without side effects.

>

>

> In women still in their reproductive years, imatinib (Gleevec)

might damage the chances of having a baby in the future, according to

a case report published as a letter in the March 6 issue of the New

England Journal of Medicine.

>

>

> " Although the odds are not known, it is possible that imatinib and

drugs with a similar mode of action may impair fertility, " said one

of the letter's authors, Dr. Constantinos Christopoulos, deputy

director of the 1st department of internal medicine at Amalia Fleming

General Hospital in Athens, Greece. " It is not known whether imatinib-

induced infertility is reversible. "

>

>

> However, Christopoulos was also quick to point out that this was

only a single case report of premature ovarian failure, and it can be

difficult to establish the exact cause of the condition.

>

>

> " Imatinib is a very effective drug that has revolutionized the

treatment of chronic myeloid leukemia (CML), but knowledge of the

effects of its long-term administration is still limited, and close

medical surveillance of patients receiving the drug is mandatory, " he

said.

>

>

> The patient Christopoulos and his colleagues reported on was a 28-

year-old female who had Philadelphia chromosome-positive CML. Each

year in the United States, just under 5,000 people are diagnosed with

this type of cancer, according to the Leukemia and Lymphoma Society.

>

>

> She was initially given 400 milligrams of Gleevec daily. About one

year into her treatment, the dose of Gleevec was increased to 600

milligrams per day, because she still had some cancer cells. She

didn't have any severe side effects due to the treatment, though she

experienced some skin discoloration and muscle cramping. During the

first two years, she also reported having regular menstrual cycles.

>

>

> About two years after she first started taking Gleevec, and about

six months after the dose was increased, the woman reported that she

was having irregular menstrual cycles and then her periods ceased

altogether.

>

>

> Doctors confirmed premature ovarian failure. While it's not

possible to definitively prove that Gleevec caused premature

menopause, Christopoulos said that based on the timing, the lack of

other causes, and the drugs' mode of action, it's the most likely

culprit.

>

>

> Gleevec works by targeting tyrosine kinases, which are proteins

that are very active in cancer cells. However, these proteins are

also expressed by the ovaries.

>

>

> " There are about 60 tyrosine kinases. Can Gleevec be so specific

that it only interacts with one of the 60? This drug is pretty good

at targeting and hitting the bull's-eye, but it's not perfect, " said

Dr. Bart Kamen, chief medical officer of the Leukemia & Lymphoma

Society.

>

>

> " Is it worth that risk? You better believe it, " Kamen said. " The

side effects of Gleevec compared to what else we do in cancer

treatment is mild. It has a wonderful risk-to-benefit ratio. "

>

>

> " The advantages of this drug clearly outweigh the disadvantages, "

said Dr. Jay , chairman of hematology/oncology at Ochsner

Health System in Baton Rouge, La.

>

>

> also pointed out that most women with CML are long past

their reproductive years. According to the American Cancer Society,

the average age of CML diagnosis is about 67.

>

>

> While most women are already counseled about the risks to their

fertility before undergoing any cancer treatment, Christopoulos said

that women of reproductive age receiving Gleevec should know that

they shouldn't become pregnant while taking the drug, and they may

want to freeze some of their eggs before treatment.

>

>

> More information

>

>

> The American Cancer Society has more on Gleevec??.

>

>

>

>

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