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FATHER'S DAY

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This list has a number of fathers and they certainly

do deserve an extra commendation from all of us!! We

appreciate hearing from them and encourage their

input!

HAPPY FATHERS DAY, Guys!

Yes, Kathy, you are so right.....

> P.S. A special Happy Father's Day to the Father

of This List, Louis Harkins, who is dad to us all!!<

Take care, guys..... wendy in canada

_______________________________________________________

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  • 1 year later...
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Crystal, I loved this poem!! Thanks so much for sharing it!! Lillian

[ ] Father's Day

WALK A LITTLE PLAINER DADDY

Walk a little plainer daddy, said a child so frail

I'm following in your footsteps and don't want to fail

Sometimes your steps are very plain,

sometimes they are hard to see

So walk a little plainer daddy for you are leading me.

I know that once you walked this way many years ago

And what you did along the way I'd really like to know

For sometimes when I am tempted I don't know what to do

So walk a little plainer daddy for I must follow you.

Someday when I'm grown up you are like I want to be

Then I will have a little child who will want to follow me

And I would want to lead him right and help him to be true

So walk a little plainer dayddy,

For I must follow you!

Just wanted to share this with all of you, cause came home

with it and his foot print.....HAPPY FATHER'S DAY!!!!!

Crystal Mom to 6 Dyspraxia and Autistic Spectrum Disorder

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  • 11 months later...
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The past few days I spent recollecting about my Dad. I have a picture of my

Dad which is in my dining room that is from his work that had dedicated a

building in his honor. Today I spent my Father's Day visiting a friend of mine

who is in a nursing home. The person is a dear, sweet person that with talking

to them is like being with one's relatives. Recollecting things from the past

and comparing them to the present. Sharing stores with her and listening to

mine is so rewarding and heartwarming. I have learned so much with her and I

believe she has learned as well.

I see the care she gets is not adequate. I see some's tone of voice,

attitude when they deal with her which breaks my heart. I also see the

attitude of

when some of them who are suppose to care for people like her when they see me

and have heard comments made. What can be done for her legally if anything

meaning if I suggest to someone who is a long time friend of her's to have her

out of that particular nursing home and placed in another one? I can handle

the snide comments made about me. What I'm concerned is how she gets treated

and I can only do so much.

This woman is as dear and close to my heart like my parents were and it

breaks my heart to see her get mistreated. If both my parents were alive today

they would feel the same feeling I'm feeling and would want to do something if

nothing major at least something minor than nothing at all.

If anyone knows of anything I would appreciate it.

Helen

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That's sad and beautiful, Judi.

[ ] Father's Day

> Happy Father's Day to all our dads, grandpas, husbands, and everyone

> who has every been a father in any way to someone.

>

> My biological father deserted us when I was six. My mom's brother,

> my dear Uncle Bill, took over and loved us as though we were his

> own. There were other fathers in my life, teachers who recognized a

> need; my friend Norma's dad who always included me as " one of his

> girls, " ; a couple of bosses I had early in my career; my dear

> husband, who became a better father than he thought he would; and our

> son in law Duane, who is a loving and gentle father to his 4

> children, and who never knew the love of a father of his own until he

> and were married, and he adopted Ron as his Dad.

>

> You never know when or where in life you will be called on to be a

> dad, a brother, a mother, or a sister, and sometimes you touch people

> in ways you never thought you could.

>

> peace,

> Judi

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  • 1 year later...
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Thanks Dale for that message. The crazy fear you spoke of (losing your child and

knowing that that will be the worst day of your life and wondering whether

you'll be able to handle that) hit extremely close to home. It is what I

struggle with the most because I can not get the thought out of my head. Not

sure if it is normal or not but the thought is only there for one of my three

children.

If the dad's out there only get one thing out of your message, it should be the

part about loving your kid's mom's. I will admit that it took me years to

realize that myself. When I finally came to that realization the quality of our

lives dramatically increased. Thanks again Dale for taking to time to

legitimize and respect the job that we have as dad's of PID children. Thanks to

you, I will never forget this Father's day.

(husband to , who is Mom to Sara, Casey and who all have

CVID)

__________________________________________________

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This was beautiful! Thank you for being such an amazing woman. I read your

email responses to questions and you are so wise and helpful! God bless this

group with your presence.

Thanks

Amy (mom to Bradley 2 years old and 6 years old)

Father's Day

from Dale, Mom to Katy, CVID, age 20

This is an open letter to all you Dads who are coping (or not) with

having a PID kid. It's a tough job. Not only are you needed to parent

in all the ways that other Dads parent, but you have demands placed on

you that tug at your heart in ways you can't express to other Dads. Hey,

sometimes you can't even express it to your wife. I encourage you to

attend a national conference or a family retreat with IDF sometime soon

so that you can network with other Dads and not feel quite so alone.

Having a PID kid puts you in a very incredibly demanding role. Dads

were designed to be " fixer-of-all-things. " From earliest days you were

the one who could fix their broken toys, their broken bikes, and even

broken hearts. It's Daddy's lap they run to when they are afraid. You

are the one they talked about when they said, " My Dad's better than your

Dad. "

But with PID -- there's no fixing it. And deep down you know that you

are scareder than they are. Your wife may even be telling everyone that

you are not even grieving, but I know better.

I was talking with a Dad recently who teared up as he said, " I'm

supposed to be the strong one, to have answers, but heck -- my wife

knows more about that stuff and I just feel like a big klutz and I don't

know what to do or how to do it. " I want you to know that that's a

universal feeling that I hear when I talk to Dads with chronically ill

kids. But those kids are still watching you for their cues and you know

it. So, you worry about it. Some of you get ulcers worrying -- and

it's not just the medical bills and insurance -- it's all those deep

crazy fears of losing your kid and knowing that that will be the worst

day of your life and wondering whether you'll be able to handle that.

It's wondering how your kid will perform as an adult -- and how you'll

navigate all the pitfalls between here and there.

Hooray for you if you've made the decision to celebrate each day and to

guide your family to a new definition of normal. Isn't it normal to

have an IV pole in the living room? I thought kitchen cabinets were

made to be pharmacy shelves! Hooray for you Dads who do the physical

therapy and chest compressions and sinus rinses and asthma treatments

and those midnight runs to the ER or pharmacy! Hooray for you Dads who

have taken the leadership role of seeing that life stays as normal as

possible and who sees to it that your kids know that they are far more

important that any PID!

When I was a child, Mother had a little magnet on the refrigerator that

said, " Dads, The best thing you can do for your kids is to love their

mother. " That advice is ten times more meaningful with a PID kid.

One dad told me, " One of my roles as Dad to a PID kid is to listen,

listen, listen as my wife cries and screams and despairs. Every night I

dread coming home to hear more complaints about doctors and hospitals

and nurses and I have to be strong while she cries about her fears and

worries. That's one part of being a Dad that most people don't realize.

I'm scared to death -- but I have to stay strong. " Then he went on an

added -- " After she tells me all these terrible, terrible things -- she

curls up in my arms and goes to sleep -- while I lie there awake for

hours wondering what I am supposed to do with all this information. "

So hats off to you Dads -- regardless of what stage of coping you find

yourself. It's a very special role that you've been called to handle.

Remember, that God is available and ready to guide you through this

tough assignment. It's a strong man who places his hand in the Hand of

a strong God.

May God bless you today and guide you as you " Dad " your kids!

In His service,

Dale

This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the sole

responsibility of the poster and should not be taken as professional advice.

To unsubscribe -unsubscribegroups (DOT)

To search group archives go to: /messages

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  • 11 months later...
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Yes!! Happy Father's day to all....

ML

~ ~ ~ ~ ~ ~ Listen to the tide slowly turning, washes all our heartache awayWe’re part of the fire that is burningand from the ashes we can build another day(The Moody Blues “Story In Your Eyes”)

Father's Day

If I may, to all the fellas in the group who are fathers--HAPPY FATHER'S DAY.

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If I may, to all the fellas in the group who are fathers--HAPPY FATHER'S DAY. >>> Yes, I'm with ya there :) Happy Daddy's Day Guys~ Takes a real man to stick it through the shitty diapers being apart of a childs life, helping to structure a future for those that look up to you! Good job being apart of their life.... your presence does make a huge impact on them, that isn't easily replaced by another~

So if your an active dad.... GREAT JOB.... if your a missing dad~ please try to remember your childs needs more then the differences which created the distance between you and make a place in your life for one that needs you in theirs!

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  • 2 years later...
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Hey Lil Brother, #1 Brother, My Hero, and ALL my other Brother Survivors. . .

This is an early

HAPPY FATHERS DAY! ! !

to ALL of you, in case I forget; Gold Brain.

I do plan on calling, emailing, etc., several of you on or before the date.

When's Dad's Day again??? HEHEHE ! ! !

In any event. . .HAPPY FATHERS DAY to ALL of U. . .in advance.

I have ALL of U in my prayers. . . " K "

" K "

" I AIN'T FINISHED YET " !!!

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>

> It's only one week away and I would like to wish Bob Hurt, the father of

> Cancercure...our wonderful list that offers information and hope to hundreds

of

> people, a happy father's day!!! Thank you Bob for giving birth to this list!

> (lol)

>

>

>

>

I'll second that emotion!

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In a message dated 6/8/08 4:25:01 PM Eastern Daylight Time,

Audrianne@... writes:

> Please let me

> know what you gave Fluffy to cure him of his cancer.

> Audrey

>

First I used the black salve, working under the guidance of our very own

. Then I added Low Dose Naltrexone, medical mushrooms and a lot of other

suppliments. Finally, and I do believe this was the deal breaker, I enrolled

her in a research project using bio resonance to kill the DNA in the cancer

cell. So far so good. Flurry is a she..a very beautiful white fluffy Samoyed

who is also a service and therapy dog.

Best,

**************

Get trade secrets for amazing burgers. Watch " Cooking

with Tyler Florence " on AOL Food.

(http://food.aol.com/tyler-florence?video=4? & amp;NCID=aolfod00030000000002)

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:

I emailed you privately -- came back, mailbox full -- Please let me

know what you gave Fluffy to cure him of his cancer.

Audrey

Father's Day

> It's only one week away and I would like to wish Bob Hurt, the father of

> Cancercure...our wonderful list that offers information and hope to

> hundreds of

> people, a happy father's day!!! Thank you Bob for giving birth to this

> list!

> (lol)

>

>

>

>

> **************

> Get trade secrets for amazing burgers. Watch " Cooking

> with Tyler Florence " on AOL Food.

>

> (http://food.aol.com/tyler-florence?video=4? & amp;NCID=aolfod00030000000002)

>

>

>

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