Re: Call for Updates - it could be you!! - Vicky

[Guest guest]

>

> Mandi what would indicate being a viral kid? I know I should

know

> myself but am not absorbing any info at the moment, for example

listening to you

> on the radio the other night you raised a point very relevent to our

situation,

> I made a mental note to ask you about it and now it's completely

gone.

> Vicky

> xx

>

[Guest guest]

Hi Vicky

I regard Darryl as Viral kid.

From 8 months - 2 years he got viruses - high temp/ unexplained

rashes.HHV6.

Also coincided with teething (immune system) .

Also coincided with slowdown into autism.

Which means Mercury had already done its job at 2.3.4 months.

Which we know he has cos we have just done porphrin test.

Its the old cascade of events yet again.

Yes we did give him MMR as well. - which probably didnt help either

with the bowel /sleep department.

We have done immunosciences premier autism panel.

He had titres for herpes 1 and 2 so think that what he may have got

back then - no way of knowing for sure.

Keen to know how your NHS funding appeal is going.

Joanne

>

> Mandi what would indicate being a viral kid? I know I should

know

> myself but am not absorbing any info at the moment, for example

listening to you

> on the radio the other night you raised a point very relevent to

our situation,

> I made a mental note to ask you about it and now it's completely

gone.

> Vicky

> xx

>

[Guest guest]

Me too Vicky for update on NHS appeal!

Zoe

> >

> > Mandi what would indicate being a viral kid? I know I

should

> know

> > myself but am not absorbing any info at the moment, for example

> listening to you

> > on the radio the other night you raised a point very relevent to

> our situation,

> > I made a mental note to ask you about it and now it's

completely

> gone.

> > Vicky

> > xx

> >

>

[Guest guest]

Thanks Vicky. Do you know when the funding meeting is that they

will be submitting it to?

Good luck, keeping our fingers crossed.

Zoe x

>

> Hi, Joanne and Zoe, I posted last week that my PCT had phoned me

to ask if

> we had our letter back from RF, as when they contacted paed she

had not had

> hers, they left it that they would contact her again to ask for a

copy and then

> submit it as a case for reconsidering at next funding meeting.

> The man I spoke to told me they would need to give a very good

reason for

> not funding as now our own head of paediatrics and Royal Free,

paediatric

> Gastroentologist has supported our request, so it's everything

crossed I believe

> now for the third time.

> Whichever way it goes you will all be first to know, for sure.

> Vicky

> xx

>