Re: The Leukemia & Lymphoma Society Suppor

[Guest guest]

Not to knock The Leukemia & Lymphoma Society but that aid they offer...$500

a year not based on income, does not cover a BMB!?!?!??? That is my only

major expense I have and have to get one every year. They said they would be

glad to cover travel cost, but not BMB's. If they would cover that I would

not owe so much money to my Onco...Just does not make sense to me, they will

pay for me to drive to a conference or something like that but not a

BMB...needless to say I was not a happy camper when they told me that.

Terry

On Sun, Jul 6, 2008 at 8:46 PM, vickistu <vickistu@...> wrote:

> Wow--what a hero! He has my support for sure.

>

> Vicki

>

>

> >

> > Hi:

> >

> > For all of you who have heard me talk about my great MDACC doctor,

> Dr.

> > A. Koller, I recently received his letter that he is again

> joining

> > the Houston Police Bicycle Relay Team on their July 17, 2008,

> relay from

> > Houston to Kelowna, British Columbia. They will arrive on July

> 23, after

> > approximately 2600 miles. Participants in this relay are mostly

> members of

> > the Houston Police Department, the Houston Fire Department, and

> the Houston

> > Emergency Medical Team. Dr. Koller has made several relay trips

> along with

> > the HPD in the past.

> >

> > He apologizes for being so late in announcing his trip, but says

> that a

> > recurrence of his kidney cancer resulted in two tumors growing on

> his chest

> > wall that had to be removed in March. This caused his recovery to

> take

> > longer than anticipated, but he now feels strong enough for the

> relay.

> >

> > The Team has raised almost 4 million dollars for our cause over 25

> years.

> > The dollars have gone to fight leukemia and related blood

> cancers. Dr.

> > Koller is as ardent as ever in his fight against blood cancers and

> wants

> > this scourge to be erased forever.

> >

> > If you are in a position to make any donation, please write a tax-

> deductible

> > check to " The Leukemia & Lymphoma Society " and send it to:

> > A. Koller, MD

> > MD Cancer Center-Box 428

> > 1515 Holcombe Blvd.

> > Houston, TX 77030

> > Or you can go to www.hpdrelay.com and click on his name or that of

> any of

> > the officers and donate online.

> >

> > I urge you to give whatever you can to our and Dr. Koller's

> cause. I

> > believe that his effort is absolutely wonderful, especially in

> view of his

> > own ongoing health problems.

> >

> > Thank you for your help.

> >

> > Margot

> > (P.S.: FYI—I was diagnosed March 27, 1998, and was given 3 to 5

> years.

> > We are just into my 11th year. Thanks for your prayers and

> concern.)

> >

> >

> >

[Guest guest]

Hi Terry,

I don't think the LLS will pay for you to drive to a conference. They

provide $500 for travel for medical treatment--for example if you went

to MDACC or OHSU for a consultation. I personally don't request aid

from the LLS however, as I'd rather they spent the money on finding a

cure. Every dollar toward patient aid means a dollar less toward

research. Wouldn't it be great if everyone who accepts aid from them

would form a Light the Night team and raise back the funds they use

and then some? That is something that everyone could do and it would

certainly benefit all of us.

Dorothy

On Jul 9, 2008, at 9:13 AM, Terry Dailey wrote:

> Not to knock The Leukemia & Lymphoma Society but that aid they

> offer...$500

> a year not based on income, does not cover a BMB!?!?!??? That is my

> only

> major expense I have and have to get one every year. They said they

> would be

> glad to cover travel cost, but not BMB's. If they would cover that I

> would

> not owe so much money to my Onco...Just does not make sense to me,

> they will

> pay for me to drive to a conference or something like that but not a

> BMB...needless to say I was not a happy camper when they told me that.

>

> Terry

>

>

[Guest guest]

Actually the lady said she would send me a check for $10 for travel time to

my doc...that was to me like a smack in the face. Since I am on SS

disability, Aetna, the company that was subsidizing what I get from SS

decided they are not going to pay me anything for 40 months, so I lost $600

a month in income and now cannot afford to have a place on my own for me and

my son, so that $500 would have helped allot to help me pay for the BMB's I

have to have. I hate not being able to work as it is,l let along being told

they do not cover BMB's?? I am sure for those that have enough money that

$500 is not much, but in my case I am living on a tight budget so I could

have really used that to pay my onco bill. Lucky for me they are letting me

pay $50 a month, but at this rate I will be paying them $50 a month forever.

Not everyone has a spouse or plenty of income.

Terry

On Wed, Jul 9, 2008 at 6:45 PM, Dorothy Emery <doemery@...> wrote:

> Hi Terry,

>

> I don't think the LLS will pay for you to drive to a conference. They

> provide $500 for travel for medical treatment--for example if you went

> to MDACC or OHSU for a consultation. I personally don't request aid

> from the LLS however, as I'd rather they spent the money on finding a

> cure. Every dollar toward patient aid means a dollar less toward

> research. Wouldn't it be great if everyone who accepts aid from them

> would form a Light the Night team and raise back the funds they use

> and then some? That is something that everyone could do and it would

> certainly benefit all of us.

>

> Dorothy

>

> On Jul 9, 2008, at 9:13 AM, Terry Dailey wrote:

>

> > Not to knock The Leukemia & Lymphoma Society but that aid they

> > offer...$500

> > a year not based on income, does not cover a BMB!?!?!??? That is my

> > only

> > major expense I have and have to get one every year. They said they

> > would be

> > glad to cover travel cost, but not BMB's. If they would cover that I

> > would

> > not owe so much money to my Onco...Just does not make sense to me,

> > they will

> > pay for me to drive to a conference or something like that but not a

> > BMB...needless to say I was not a happy camper when they told me that.

> >

> > Terry

> >

> >

>

>

>

[Guest guest]

Terry,

Sorry to hear you are struggling.I am very familiar with where you

are.I am there also.I am raising a son and live on Social Security.I

am 40 and disabled prior to my CML dx.I live on less than 900 a

month.It is a battle.I need to find a secialist to treat my CML

however the closest Dr.would probably be at UCLA or USC and that is

over 80 miles one way.With gas costing nearly 5.00 dollars a gallon t

would cost over 100.00 for each trip made howwill I pay my bills? So

I am not seeing a secialist until I can find a way to afford it.Gee

wonder if I can ask S.S. for a raise?lol ..What a spot to be in..Keep

a roof over our heads and eat OR get proper medical treatment? You

are not alone..

Good luck and hope things improve

SharonS

- In , " Terry Dailey " <terrydailey@...> wrote:

>

> Actually the lady said she would send me a check for $10 for travel

time to

> my doc...that was to me like a smack in the face. Since I am on SS

> disability, Aetna, the company that was subsidizing what I get from

SS

> decided they are not going to pay me anything for 40 months, so I

lost $600

> a month in income and now cannot afford to have a place on my own

for me and

> my son, so that $500 would have helped allot to help me pay for the

BMB's I

> have to have. I hate not being able to work as it is,l let along

being told

> they do not cover BMB's?? I am sure for those that have enough

money that

> $500 is not much, but in my case I am living on a tight budget so I

could

> have really used that to pay my onco bill. Lucky for me they are

letting me

> pay $50 a month, but at this rate I will be paying them $50 a month

forever.

> Not everyone has a spouse or plenty of income.

>

> Terry

>

> On Wed, Jul 9, 2008 at 6:45 PM, Dorothy Emery <doemery@...> wrote:

>