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It's a big O!!! YIPPEEE!!! for you. The numbers are going in the right

direction.

Zavie

Zavie (age 70)

67 Shoreham Avenue

Ottawa, Canada, K2G 3X3

dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

2.8 log reduction Sep/05

3.0 log reduction Jan/06

2.9 log reduction Feb/07

3.6 log reduction Apr/08

e-mail: zmiller@...

Tel: 613-726-1117

Fax: 309-296-0807

Cell: 613-282-0204

ID: zaviem

YM: zaviemiller

Skype: Zavie

_____

From: [mailto: ] On Behalf Of

ROBERTA DOYLE

Sent: July 8, 2008 2:21 PM

Subject: [ ] QPCR

Hi folks, my trial nurse called today, my QPCR on May 28, was 0.583, and on

June 26, 0.203, so it has dropped again, good for XL228. BMA is coming up

the end of the month, the first since I started the trial, will keep you

posted. Bobby

a (Bobby) Doyle

Brecksville, Ohio, USA

DX 05/1995

02/2000 - Gleevec Trial/OHSU

06/2002 - Gleevec/Trisenox Trial/OHSU

06/2003 - Gleevec/Zarnestra Trial/OHSU

04/2004 - Sprycel Trial/MDACC, CCR in 10 months

#840 - Zavie's Zero Club

09/2006 - out of CCR

04/29/08 - XL228 Trial/ U.of Michigan

06/02/08 - CCR ( in 4 weeks)

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You go girlfriend!!!! for XL228

From: ROBERTA DOYLE <rcd1929@...>

Subject: [ ] QPCR

" " < >

Date: Tuesday, July 8, 2008, 11:20 AM

Hi folks, my trial nurse called today, my QPCR on May 28, was 0.583, and on June

26, 0.203, so it has dropped again, good for XL228. BMA is coming up the end of

the month, the first since I started the trial, will keep you posted. Bobby

a (Bobby) Doyle

Brecksville, Ohio, USA

DX 05/1995

02/2000 - Gleevec Trial/OHSU

06/2002 - Gleevec/Trisenox Trial/OHSU

06/2003 - Gleevec/Zarnestra Trial/OHSU

04/2004 - Sprycel Trial/MDACC, CCR in 10 months

#840 - Zavie's Zero Club

09/2006 - out of CCR

04/29/08 - XL228 Trial/ U.of Michigan

06/02/08 - CCR ( in 4 weeks)

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3 time in a month, if you keep at that rate you ll be pretty low

pretty soon. Looks you are getting the break you deserve for a long

time. I keep my fingers crossed.

Cheers,

marcos.

On Tue, Jul 8, 2008 at 11:20 AM, ROBERTA DOYLE <rcd1929@...> wrote:

> Hi folks, my trial nurse called today, my QPCR on May 28, was 0.583, and on

> June 26, 0.203, so it has dropped again, good for XL228. BMA is coming up

> the end of the month, the first since I started the trial, will keep you

> posted. Bobby

>

> a (Bobby) Doyle

> Brecksville, Ohio, USA

> DX 05/1995

> 02/2000 - Gleevec Trial/OHSU

> 06/2002 - Gleevec/Trisenox Trial/OHSU

> 06/2003 - Gleevec/Zarnestra Trial/OHSU

> 04/2004 - Sprycel Trial/MDACC, CCR in 10 months

> #840 - Zavie's Zero Club

> 09/2006 - out of CCR

> 04/29/08 - XL228 Trial/ U.of Michigan

> 06/02/08 - CCR ( in 4 weeks)

>

>

>

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Hi, Bobby. Those numbers look pretty darn good to me!! Keep up the

great response and you will be a big fat zero in no time.

Love,

> > Hi folks, my trial nurse called today, my QPCR on May 28, was

0.583, and on

> > June 26, 0.203, so it has dropped again, good for XL228. BMA is

coming up

> > the end of the month, the first since I started the trial, will

keep you

> > posted. Bobby

> >

> > a (Bobby) Doyle

> > Brecksville, Ohio, USA

> > DX 05/1995

> > 02/2000 - Gleevec Trial/OHSU

> > 06/2002 - Gleevec/Trisenox Trial/OHSU

> > 06/2003 - Gleevec/Zarnestra Trial/OHSU

> > 04/2004 - Sprycel Trial/MDACC, CCR in 10 months

> > #840 - Zavie's Zero Club

> > 09/2006 - out of CCR

> > 04/29/08 - XL228 Trial/ U.of Michigan

> > 06/02/08 - CCR ( in 4 weeks)

> >

> >

> >

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Fantastic - what a confidence booster, Bobbie

Did you consider it might very well be that Spanish Chef and dancing class that

got you to the new low point.

Sue

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Well, after yesterday, not sure how long I will be on this new wonder drug.

That was my 8th infusion, and it did not go well. I took 1/2 an Ativan, that is

1/2 mg, got a little sleepy, then got short of breath. I didn't really think to

much of it the first time, but it happened again, then again and I told the

nurse. They stopped the infusion, got in the Dr. did an ekg, did a neuological

exam, did vitals every 15 min, said I turned white, and quite frankly, scared me

half to death. The PB dropped,. and they decided not to continue, and I had to

get a chest X-ray. My daughter and I spent the night, just in case. But we did

meet up with Len and Ernie, had dinner with them, and spent the night there. I

was just plain exhausted at this point. One of the problems, I've had vertigo

in the past, and this Sat. it returned, as it has done from time to time. But

when you tell a room full of nurses you are light headed, and it's only vertigo,

it rings a loud bell! For all I

know the drug did bring on the vertigo. I do know, I am not looking forward to

next week and another infusion......I am also zero fish, plus the good QPCR.

Dr, Talpaz is still not in the office, I hope he is by next week, I really want

to talk to him about yesterday. Will keep you posted. On the other hand, Len

seems to be handling the higher dose, much better than I am, Good For Her !!!

love, Bobby

<icynena@...> wrote:

Hi, Bobby. Those numbers look pretty darn good to me!! Keep up the

great response and you will be a big fat zero in no time.

Love,

> > Hi folks, my trial nurse called today, my QPCR on May 28, was

0.583, and on

> > June 26, 0.203, so it has dropped again, good for XL228. BMA is

coming up

> > the end of the month, the first since I started the trial, will

keep you

> > posted. Bobby

> >

> > a (Bobby) Doyle

> > Brecksville, Ohio, USA

> > DX 05/1995

> > 02/2000 - Gleevec Trial/OHSU

> > 06/2002 - Gleevec/Trisenox Trial/OHSU

> > 06/2003 - Gleevec/Zarnestra Trial/OHSU

> > 04/2004 - Sprycel Trial/MDACC, CCR in 10 months

> > #840 - Zavie's Zero Club

> > 09/2006 - out of CCR

> > 04/29/08 - XL228 Trial/ U.of Michigan

> > 06/02/08 - CCR ( in 4 weeks)

> >

> >

> >

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Bobby,

 

Praying for you.  Hope you can hang in there with the meds.

 

Chi

Hi, Bobby. Those numbers look pretty darn good to me!! Keep up the

great response and you will be a big fat zero in no time.

Love,

> > Hi folks, my trial nurse called today, my QPCR on May 28, was

0.583, and on

> > June 26, 0.203, so it has dropped again, good for XL228. BMA is

coming up

> > the end of the month, the first since I started the trial, will

keep you

> > posted. Bobby

> >

> > a (Bobby) Doyle

> > Brecksville, Ohio, USA

> > DX 05/1995

> > 02/2000 - Gleevec Trial/OHSU

> > 06/2002 - Gleevec/Trisenox Trial/OHSU

> > 06/2003 - Gleevec/Zarnestra Trial/OHSU

> > 04/2004 - Sprycel Trial/MDACC, CCR in 10 months

> > #840 - Zavie's Zero Club

> > 09/2006 - out of CCR

> > 04/29/08 - XL228 Trial/ U.of Michigan

> > 06/02/08 - CCR ( in 4 weeks)

> >

> >

> >

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Hi Bobby,

I wonder if you have a problem with the Ativan? Because it seems

that you have problems everytime you take it. Maybe the infusion

isn't so bad after all, maybe you just need to skip the Ativan?

Vertigo is a pretty well known side effect of Ativan.

As far as the exercises go, if you can scan the paper you have and

send it to me, I'd be happy to post it in the files section for you.

Take care,

Tracey

> > > Hi folks, my trial nurse called today, my QPCR on May 28, was

> 0.583, and on

> > > June 26, 0.203, so it has dropped again, good for XL228. BMA

is

> coming up

> > > the end of the month, the first since I started the trial,

will

> keep you

> > > posted. Bobby

> > >

> > > a (Bobby) Doyle

> > > Brecksville, Ohio, USA

> > > DX 05/1995

> > > 02/2000 - Gleevec Trial/OHSU

> > > 06/2002 - Gleevec/Trisenox Trial/OHSU

> > > 06/2003 - Gleevec/Zarnestra Trial/OHSU

> > > 04/2004 - Sprycel Trial/MDACC, CCR in 10 months

> > > #840 - Zavie's Zero Club

> > > 09/2006 - out of CCR

> > > 04/29/08 - XL228 Trial/ U.of Michigan

> > > 06/02/08 - CCR ( in 4 weeks)

> > >

> > >

> > >

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HI TRACEY, DR. TALPAZ IS GOING TO CALL ME MON. AS HE WILL NOT BE THERE FOR MY

NEXT INFUSION. ONE OF THE QUESTIONS I HAD FOR HIM WAS DID THE NEW DRUG CAUSE THE

VERTIGO? IT NEVER OCCURRED TO ME IT WOULD BE THE ATIVAN. MAYBE I WILL SKIP IT,

AND JUST GO BACK TO THE COMPEZINE. IT DIDN'T REALLY WORK THAT WELL, BUT IT WAS

BETTER TO THROW UP ONCE THAN TO BE AFFECTED BY THE ATIVAN, THANKS FOR TELLING ME

THAT. I AM ALSO ON TRENTAL FOR THE CIRCULATION IN THE LEGS, AND THAT ALSO MAKES

ME NAUSEOUS, UNLESS TAKEN WITH A LOT OF FOOD. ACTUALLY, WHEN I GOT THE VERTIGO,

I QUIT TAKING THE TRENTAL, MAYB E IT WAS ALL IN MY MIND BUT THE LEGS SEEMED

WORSE, SO I AM BACK ON IT AS OF TODAY. SURE IS TOUGH TRYING TO TAKE OFF A LB,

WITH ALL THESE DRUGS!!! LOVE, BOBBY

Tracey <traceyincanada@...> wrote:

Hi Bobby,

I wonder if you have a problem with the Ativan? Because it seems

that you have problems everytime you take it. Maybe the infusion

isn't so bad after all, maybe you just need to skip the Ativan?

Vertigo is a pretty well known side effect of Ativan.

As far as the exercises go, if you can scan the paper you have and

send it to me, I'd be happy to post it in the files section for you.

Take care,

Tracey

> > > Hi folks, my trial nurse called today, my QPCR on May 28, was

> 0.583, and on

> > > June 26, 0.203, so it has dropped again, good for XL228. BMA

is

> coming up

> > > the end of the month, the first since I started the trial,

will

> keep you

> > > posted. Bobby

> > >

> > > a (Bobby) Doyle

> > > Brecksville, Ohio, USA

> > > DX 05/1995

> > > 02/2000 - Gleevec Trial/OHSU

> > > 06/2002 - Gleevec/Trisenox Trial/OHSU

> > > 06/2003 - Gleevec/Zarnestra Trial/OHSU

> > > 04/2004 - Sprycel Trial/MDACC, CCR in 10 months

> > > #840 - Zavie's Zero Club

> > > 09/2006 - out of CCR

> > > 04/29/08 - XL228 Trial/ U.of Michigan

> > > 06/02/08 - CCR ( in 4 weeks)

> > >

> > >

> > >

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