Gleevec side effects

[Guest guest]

Hi all,

I must chime in here on gleevec and side effects. I was on 400 mg

for 5 years. The side effects, including fatigue, bone and joint

pain, muscle cramping, rash of blisters, joint effusion and such all

continued in a gradual manner until I couldn't stand them. I

thought I would have to quit work. Remission did not make any

difference. I was PCRU the whole time.

I had to take a break for 10 weeks ( guided by my oncologist and

Druker) and then began again on 300 mg. Still, they returned. So I

went on tasigna. I had some side effects at first on 800 mg and

dropped to 400. I have been on this 5 months. Side effects are

GONE. I am living a normal life and I just want you all to know,

there is hope from those dasterdly side effects. I am STILL PCRU as

well. We are so lucky to have choices on drugs. I consider the

option for tasigna heaven sent....

Best to all and welcome new members. It is good to see you on the

list...

Blessings

Barb in AZ

--- In , Margaret Peake <mpraymond@...>

wrote:

>

> (Diagnosed almost 2 years ago).The worst two side effects I have

with gleevic now are fatigue and edema. After being at zero for the

past 6 months, I was surprised that fatigue continues to plague me.

Not all the time but every few weeks I have a period of several days

or a couple weeks of overwhelming fatigue when I don't feel like

getting dressed...(however I DO and try to keep my normal routine).

It does seem to pass after awhile. Does anyone else continue to

experience fatigue after getting to zero?

>

> The edema take management with lasiz, 20 mg or 40 mg every other

day, then I struggle with getting enough potassium to avoid muscle

spasms. But all in all I feel much better taking some of the fluid

off so it's worth it.

>

> Margaret

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> Margaret ,

> mpraymond@...

> margaret-raymond@...

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