Guest guest Posted August 2, 2008 Report Share Posted August 2, 2008 Hey Katy I was excited to see that you are from Paducah!!! My Husband was born and raised there we visit a few times a year, it would be good to meet another CMLer. Do you go Downtown very often? My Husbands Mom has a shop down there called Berrycreative she sells sock monkeys, art etc. Did you go to Heath High School by any chance? regards, Donna DX May 2007 Gleevec since then > > > > > > > > Just to let everyone know....I got the results of the eyebrow and rash > > > biopsy, the eyebrow was not BCC, and the rash under my knee is still as > > yet > > > unidentified, probably a dermatitis. So good news. Sorry I havent been > > > posting for a week, it is just sooooo hot here I havent felt like doing > > > much, and as I found out while ago when I came over here in the corner to > > > post it is even hotter by the puter!!! This heat is making me crazy! I > > told > > > ya'll how I have to have sunlight or I get depressed. Well we live in a > > > mobile home and we have three tree's in the front yard but unfortunately > > > they do not shade the trailor, so we have to keep the shades closed to > > keep > > > it under 90 in here! I dont get to open them until around 6 or so when the > > > sunlight is fading, so it is driving me nutz and it is too hot to get out > > > for more then a few minutes. I spent about six hours in the heat Sunday > > and > > > have been paying for it ever since. Good news though, now that I have my > > > stitches out maybe I can get to the pool in the next week! Hope everyone > > is > > > well. > > > Hugs, > > > Katy > > > > > > __________________________________________________________ > > > Use video conversation to talk face-to-face with Windows Live Messenger. > > > > > > http://www.windowsl > > <http://www.windowslive.com/messenger/connect_your_way.html? ocid=TXT_TAGLM_W > > L_Refresh_messenger_video_072008> > > ive.com/messenger/connect_your_way.html? ocid=TXT_TAGLM_WL_Refresh_messenger_ > > video_072008 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2008 Report Share Posted August 2, 2008 Dear Katy, Hawaii is a beautiful relaxing, serene place. I go there to return to nature and all the wonderful things in life.! I was born and raised on a little island called Kauai. It has changed so so much since I was a child but I still return almost every year. I know the places to go where it is not crowded. I never even give volcanoes a second thought. You would love it if you decided to visit. I know you would. It is heaven to me. When I was first dx in 2004 I immediately wanted to return to Kauai. So my husband and I went there for three weeks and just relaxed. Of course I would love to visit Kentucky too! From what I see of it - it is beautiful!!! We must live every day to it's fullest and enjoy our loved ones. I am a gramma of 11- twelfth on the way. I am 65 and have had CML for 4 years. I am on Tasigna and doing very very well. I hope it lasts. Take care and aloha sharon _____ From: [mailto: ] On Behalf Of donnaberry99 Sent: Saturday, August 02, 2008 8:08 AM Subject: Re: [ ] KATY Hey Katy I was excited to see that you are from Paducah!!! My Husband was born and raised there we visit a few times a year, it would be good to meet another CMLer. Do you go Downtown very often? My Husbands Mom has a shop down there called Berrycreative she sells sock monkeys, art etc. Did you go to Heath High School by any chance? regards, Donna DX May 2007 Gleevec since then > > > > > > > > Just to let everyone know....I got the results of the eyebrow and rash > > > biopsy, the eyebrow was not BCC, and the rash under my knee is still as > > yet > > > unidentified, probably a dermatitis. So good news. Sorry I havent been > > > posting for a week, it is just sooooo hot here I havent felt like doing > > > much, and as I found out while ago when I came over here in the corner to > > > post it is even hotter by the puter!!! This heat is making me crazy! I > > told > > > ya'll how I have to have sunlight or I get depressed. Well we live in a > > > mobile home and we have three tree's in the front yard but unfortunately > > > they do not shade the trailor, so we have to keep the shades closed to > > keep > > > it under 90 in here! I dont get to open them until around 6 or so when the > > > sunlight is fading, so it is driving me nutz and it is too hot to get out > > > for more then a few minutes. I spent about six hours in the heat Sunday > > and > > > have been paying for it ever since. Good news though, now that I have my > > > stitches out maybe I can get to the pool in the next week! Hope everyone > > is > > > well. > > > Hugs, > > > Katy > > > > > > __________________________________________________________ > > > Use video conversation to talk face-to-face with Windows Live Messenger. > > > > > > http://www.windowsl > > <http://www.windowsl <http://www.windowslive.com/messenger/connect_your_way.html?> ive.com/messenger/connect_your_way.html? ocid=TXT_TAGLM_W > > L_Refresh_messenger_video_072008> > > ive.com/messenger/connect_your_way.html? ocid=TXT_TAGLM_WL_Refresh_messenger_ > > video_072008 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2008 Report Share Posted August 3, 2008 Donna, Lol...nope sorry I wasnt a pirate I was a greyhound! I graduated in 1978 from Reidland. Although I admit I would have much wrather have gone to heath. My best friends lived in Heath and I went to church at Highpoint. What year did your husband graduate? I dont go downtown too much usually just to drop my daughter off at the Saturday Night after dinner thing they do and to take my son to work at the McCracken County Library. I am pretty much a hermit (as my husband calls me...lol) but he cant talk cause he is too. I think he and I both would enjoy the Saturday Night thing, they have five blocks blocked off and have street venders and street singers and stuff, but he works midnights and is so tired that he doesnt want to do much more then sit in his chair on his days off. It 's funny cause he is 15 years younger then I and I cant get him to move!!! Yes it would be nice to meet someone else who actually has CML. I have only met one person with it and that is my neurologist. Which since being dx'ed he (he has had it for about 13 yrs now, me only 5) has become more a friend then a doctor. He even volunteered at one point to pay for a plane ticket so I could get into a trial. I refused though, I felt that would be the quickest way to lose a good friend. He has been very inspirational to me and has even told me to call him at home anytime I just need to talk. I had asked my original onc. (Dr. who just retired) if there was a support group for CML in Paducah and he said there werent enough people here to form one. So this group and my Neuro. are my support. It would be nice sometime when your in town to meet you. Just let me know! Hugs, Katy From: no_reply Date: Sat, 2 Aug 2008 15:07:56 +0000 Subject: Re: [ ] KATY Hey Katy I was excited to see that you are from Paducah!!! My Husband was born and raised there we visit a few times a year, it would be good to meet another CMLer. Do you go Downtown very often? My Husbands Mom has a shop down there called Berrycreative she sells sock monkeys, art etc. Did you go to Heath High School by any chance? regards, Donna DX May 2007 Gleevec since then > > > > > > > > Just to let everyone know....I got the results of the eyebrow and rash > > > biopsy, the eyebrow was not BCC, and the rash under my knee is still as > > yet > > > unidentified, probably a dermatitis. So good news. Sorry I havent been > > > posting for a week, it is just sooooo hot here I havent felt like doing > > > much, and as I found out while ago when I came over here in the corner to > > > post it is even hotter by the puter!!! This heat is making me crazy! I > > told > > > ya'll how I have to have sunlight or I get depressed. Well we live in a > > > mobile home and we have three tree's in the front yard but unfortunately > > > they do not shade the trailor, so we have to keep the shades closed to > > keep > > > it under 90 in here! I dont get to open them until around 6 or so when the > > > sunlight is fading, so it is driving me nutz and it is too hot to get out > > > for more then a few minutes. I spent about six hours in the heat Sunday > > and > > > have been paying for it ever since. Good news though, now that I have my > > > stitches out maybe I can get to the pool in the next week! Hope everyone > > is > > > well. > > > Hugs, > > > Katy > > > > > > __________________________________________________________ > > > Use video conversation to talk face-to-face with Windows Live Messenger. > > > > > > http://www.windowsl > > <http://www.windowslive.com/messenger/connect_your_way.html? ocid=TXT_TAGLM_W > > L_Refresh_messenger_video_072008> > > ive.com/messenger/connect_your_way.html? ocid=TXT_TAGLM_WL_Refresh_messenger_ > > video_072008 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2008 Report Share Posted August 3, 2008 Katy Wow, I live presently in Louisville Kentucky, but will be moving to Southern Indiana soon with my 14 year old. That's pretty wild you live so close. I went through Paducah on my a road trip to New Orleans before I was dxed. I did not actually stop there but drove through to get to I think it was I-150 that goes straight to LA from KY. With my hair and being so pale I tend to scare people and small children, until they get to know me at least..lol. So I tend to not go out much anymore...lol. Terry On Sun, Aug 3, 2008 at 1:15 AM, Katy Bugg <katybug45@...> wrote: > > Donna, > Lol...nope sorry I wasnt a pirate I was a greyhound! I graduated in 1978 > from Reidland. Although I admit I would have much wrather have gone to > heath. My best friends lived in Heath and I went to church at Highpoint. > What year did your husband graduate? I dont go downtown too much usually > just to drop my daughter off at the Saturday Night after dinner thing they > do and to take my son to work at the McCracken County Library. I am pretty > much a hermit (as my husband calls me...lol) but he cant talk cause he is > too. I think he and I both would enjoy the Saturday Night thing, they have > five blocks blocked off and have street venders and street singers and > stuff, but he works midnights and is so tired that he doesnt want to do much > more then sit in his chair on his days off. It 's funny cause he is 15 years > younger then I and I cant get him to move!!! Yes it would be nice to meet > someone else who actually has CML. I have only met one person with it and > that is my neurologist. Which since being dx'ed he (he has had it for about > 13 yrs now, me only 5) has become more a friend then a doctor. He even > volunteered at one point to pay for a plane ticket so I could get into a > trial. I refused though, I felt that would be the quickest way to lose a > good friend. He has been very inspirational to me and has even told me to > call him at home anytime I just need to talk. I had asked my original onc. > (Dr. who just retired) if there was a support group for CML in > Paducah and he said there werent enough people here to form one. So this > group and my Neuro. are my support. It would be nice sometime when your in > town to meet you. Just let me know! > Hugs, > Katy > > <%40> > From: no_reply <no_reply%40> > Date: Sat, 2 Aug 2008 15:07:56 +0000 > Subject: Re: [ ] KATY > > Hey Katy > > I was excited to see that you are from Paducah!!! My Husband was > > born and raised there we visit a few times a year, it would be good > > to meet another CMLer. Do you go Downtown very often? My Husbands > > Mom has a shop down there called Berrycreative she sells sock > > monkeys, art etc. Did you go to Heath High School by any chance? > > regards, > > Donna > > DX May 2007 > > Gleevec since then > > > > > > > > > > > > > > > > > > > > > > Just to let everyone know....I got the results of the eyebrow and > > rash > > > > > > > biopsy, the eyebrow was not BCC, and the rash under my knee is > > still as > > > > > > yet > > > > > > > unidentified, probably a dermatitis. So good news. Sorry I havent > > been > > > > > > > posting for a week, it is just sooooo hot here I havent felt like > > doing > > > > > > > much, and as I found out while ago when I came over here in the > > corner to > > > > > > > post it is even hotter by the puter!!! This heat is making me > > crazy! I > > > > > > told > > > > > > > ya'll how I have to have sunlight or I get depressed. Well we > > live in a > > > > > > > mobile home and we have three tree's in the front yard but > > unfortunately > > > > > > > they do not shade the trailor, so we have to keep the shades > > closed to > > > > > > keep > > > > > > > it under 90 in here! I dont get to open them until around 6 or so > > when the > > > > > > > sunlight is fading, so it is driving me nutz and it is too hot to > > get out > > > > > > > for more then a few minutes. I spent about six hours in the heat > > Sunday > > > > > > and > > > > > > > have been paying for it ever since. Good news though, now that I > > have my > > > > > > > stitches out maybe I can get to the pool in the next week! Hope > > everyone > > > > > > is > > > > > > > well. > > > > > > > Hugs, > > > > > > > Katy > > > > > > > > > > > > > > __________________________________________________________ > > > > > > > Use video conversation to talk face-to-face with Windows Live > > Messenger. > > > > > > > > > > > > > > http://www.windowsl > > > > > > <http://www.windowslive.com/messenger/connect_your_way.html? > > ocid=TXT_TAGLM_W > > > > > > L_Refresh_messenger_video_072008> > > > > > > ive.com/messenger/connect_your_way.html? > > ocid=TXT_TAGLM_WL_Refresh_messenger_ > > > > > > video_072008 > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2008 Report Share Posted August 4, 2008 Hi Katy, Stan graduated in 83 he is younger than I am (6 1/2 yrs). We went to the Downtown thing once it was alot of fun, my Mother in Law really enjoys it, it is good for business too. Was it you that was asking if others worried about other cancers? I am a complete headcase about it, I am convinced I have cancer in my Lymph nodes, I know that it is really bad to dwell on things like that but I think about it constantly. I have lost my sane mind since dx in many ways!!! Have a great week! Donna x > > > > > > > > > > > > > > > > > > > > Just to let everyone know....I got the results of the eyebrow and > > rash > > > > > > > biopsy, the eyebrow was not BCC, and the rash under my knee is > > still as > > > > > > yet > > > > > > > unidentified, probably a dermatitis. So good news. Sorry I havent > > been > > > > > > > posting for a week, it is just sooooo hot here I havent felt like > > doing > > > > > > > much, and as I found out while ago when I came over here in the > > corner to > > > > > > > post it is even hotter by the puter!!! This heat is making me > > crazy! I > > > > > > told > > > > > > > ya'll how I have to have sunlight or I get depressed. Well we > > live in a > > > > > > > mobile home and we have three tree's in the front yard but > > unfortunately > > > > > > > they do not shade the trailor, so we have to keep the shades > > closed to > > > > > > keep > > > > > > > it under 90 in here! I dont get to open them until around 6 or so > > when the > > > > > > > sunlight is fading, so it is driving me nutz and it is too hot to > > get out > > > > > > > for more then a few minutes. I spent about six hours in the heat > > Sunday > > > > > > and > > > > > > > have been paying for it ever since. Good news though, now that I > > have my > > > > > > > stitches out maybe I can get to the pool in the next week! Hope > > everyone > > > > > > is > > > > > > > well. > > > > > > > Hugs, > > > > > > > Katy > > > > > > > > > > > > > > __________________________________________________________ > > > > > > > Use video conversation to talk face-to-face with Windows Live > > Messenger. > > > > > > > > > > > > > > http://www.windowsl > > > > > > <http://www.windowslive.com/messenger/connect_your_way.html? > > ocid=TXT_TAGLM_W > > > > > > L_Refresh_messenger_video_072008> > > > > > > ive.com/messenger/connect_your_way.html? > > ocid=TXT_TAGLM_WL_Refresh_messenger_ > > > > > > video_072008 > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2008 Report Share Posted August 6, 2008 By now you will have had the LLC so I hope all went well and they sedated you. I know what you mean about BMB's and being painful. The first one I had was absolutely brutal - this will be just a little uncomfortable - what an understatement. No more of them without sedation for me. Let us know how you made out today. Hugs, Judy P. in Calgary __________________________________________________________________ Instant Messaging, free SMS, sharing photos and more... Try the new Canada Messenger at http://ca.beta.messenger./ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2008 Report Share Posted September 23, 2008 Katy, your poem is absolutely beautiful and so very true. Having CML is a journey that none of us wants to take, but once we're on that road, God can show us some blessings that we would have missed otherwise, if we'll let Him. One of those is definitely the lovely, supportive friends that we find along the way. I hope things are better for you soon. Gay Bratton It has been a few weeks since I posted. So much has gone wrong in the last month for my family! One thing right after the other....Four weeks ago I took my son and dropped him off at Bellermine University,(so of course I have empty nest and have been kinda depressed)two days later our air quit on our trailor. It cost 129 dollars for someone to come out and tell us it was actually going to cost over $1700 to fix it! We did'nt even have the $129 to begin with....soooo I went out and bought window fans. I cannot take the Sprycel while it is getting up to almost 100 degree's inside so I have been off of it for a month! Well about a week later our car broke down, so now we drive it only when nessacary and hope and pray it doesnt die. Then two weeks later (last weekend) Ike blew thru Texas and visited Kentucky!! Our trailor has about $6000 dollars worth of damage. We went without power or water for about 24 hours. But you know it coulda been alot worse! A neighbor had their whole roof torn off, my son went without power for about 4 days and Texas is still suffering. I am just grateful to God that we still have a roof over our heads and food! Anyway I said all that to kind of lay the ground work for why I wrote what I am about to post. From time to time I get words in my head and they just seem to burst out onto paper. I write pro's and some poetry. Usually it is when I am kind of depressed...(you know that artist thing goin on..lol) I start writing and it is very therapuetic, by the time I am done I usually feel alot better. I don't usually share alot of my writing but this one I would like to share....I hope you enjoy and I am sorry all this is so long! Hugs, Katy ps....sorry about some of the spelling, I may not know how to spell it but I DO know how to use it..lol Traveling This road so weary and worn............ My heart unravels broken and torn......... I'm sick, I'm tired, I'm down and out... Like a farmer after a long hard drought..... Anguish and despair fill my soul....... CML carries it's very own set of woe's....... We carry a burden so heavey and sad....... Regreting what we have left behind..... Or maybe just never had......... The rain pours a cold hard mist........ We search blindly in the darkness and Stumble upon a list........ Full of knowledge and caring concern...... Strangers meeting in uncertainty...... Falling into one anothers virtual arms..... Comforting and calling and sharing our pain..... The fog of confusion begins to fade..... Drops of golden sun filter into our minds..... Lush green umbrella's formed of tree's.... Spring into existence...... They fill us with hope..... People coming together as one....... Our hearts start to sing....... Home come's into view...... Suddenly it no longer matters...... How battered and beaten our bodies appear....... Our spirits soar as our burdens are lifted by unseen hands..... We are loved and comforted by fellow man....... Who are we to say...... That maybe, just maybe that was not what He had in mind...... That it was not exactly God's plan....... To open us up, and make us see...... That we cannot make it alone....it has to be......You and Me! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2008 Report Share Posted September 24, 2008 -- That was beautifull Katy, I hope things get easier for you. Esther - In , " Gay Bratton " <ghbratton@...> wrote: > > > > > > Katy, your poem is absolutely beautiful and so very true. Having CML is a > journey that none of us wants to take, but once we're on that road, God can > show us some blessings that we would have missed otherwise, if we'll let > Him. One of those is definitely the lovely, supportive friends that we find > along the way. I hope things are better for you soon. > > Gay Bratton > It has been a few weeks since I posted. So much has gone wrong in the > last month for my family! One thing right after the other....Four > weeks ago I took my son and dropped him off at Bellermine > University,(so of course I have empty nest and have been kinda > depressed)two days later our air quit on our trailor. It cost 129 > dollars for someone to come out and tell us it was actually going to > cost over $1700 to fix it! We did'nt even have the $129 to begin > with....soooo I went out and bought window fans. I cannot take the > Sprycel while it is getting up to almost 100 degree's inside so I have > been off of it for a month! Well about a week later our car broke > down, so now we drive it only when nessacary and hope and pray it > doesnt die. Then two weeks later (last weekend) Ike blew thru Texas > and visited Kentucky!! Our trailor has about $6000 dollars worth of > damage. We went without power or water for about 24 hours. But you > know it coulda been alot worse! A neighbor had their whole roof torn > off, my son went without power for about 4 days and Texas is still > suffering. I am just grateful to God that we still have a roof over > our heads and food! Anyway I said all that to kind of lay the ground > work for why I wrote what I am about to post. From time to time I get > words in my head and they just seem to burst out onto paper. I write > pro's and some poetry. Usually it is when I am kind of > depressed...(you know that artist thing goin on..lol) I start writing > and it is very therapuetic, by the time I am done I usually feel alot > better. I don't usually share alot of my writing but this one I would > like to share....I hope you enjoy and I am sorry all this is so long! > Hugs, > Katy > ps....sorry about some of the spelling, I may not know how to spell it > but I DO know how to use it..lol > > Traveling This road so weary and worn............ > My heart unravels broken and torn......... > I'm sick, I'm tired, I'm down and out... > Like a farmer after a long hard drought..... > Anguish and despair fill my soul....... > CML carries it's very own set of woe's....... > We carry a burden so heavey and sad....... > Regreting what we have left behind..... > Or maybe just never had......... > The rain pours a cold hard mist........ > We search blindly in the darkness and > Stumble upon a list........ > Full of knowledge and caring concern...... > Strangers meeting in uncertainty...... > Falling into one anothers virtual arms..... > Comforting and calling and sharing our pain..... > The fog of confusion begins to fade..... > Drops of golden sun filter into our minds..... > Lush green umbrella's formed of tree's.... > Spring into existence...... > They fill us with hope..... > People coming together as one....... > Our hearts start to sing....... > Home come's into view...... > Suddenly it no longer matters...... > How battered and beaten our bodies appear....... > Our spirits soar as our burdens are lifted by unseen hands..... > We are loved and comforted by fellow man....... > Who are we to say...... > That maybe, just maybe that was not what He had in mind...... > That it was not exactly God's plan....... > To open us up, and make us see...... > That we cannot make it alone....it has to be......You and Me! > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.