(No subject)

August 1, 2008

Hi everyone, had quite the visit yesterday. First the poor tech doing the bma

could not get a piece of bone for the bmb. She tried a couple of times, no

success, but she did manage to get a good marrow sample for the bms. Whew!

that one took a long time, but was really painless, as she does an excellant job

of numbing the area. That was about my 46th one, and I guess there is so much

scar tissue there, it is hard to get a good sample.

Anyway, on the the infusion, which did not take place, again, second week in a

row. last week it was becaue I had an angioplasty , so they said no to the

infusion. This week the labs were to low: wbc - 2,7; hgb - 9.6; pltl - 138;

anc - 1.4

This is really a good sign, as it's been two weeks and nothing went up. they all

dropped or stayed the same. So this drug is working for me real well.

I was also told this 7.2 that I am on will stay the same for the next ones in

the trial, at they did 10% and there were side effects, I think quite severe.

Len also did not get infused last week, but I don't know what her counts were

this week to compare to mine after missing a dose. I would like to miss one more

dose, so that would make it one in one month, so see if there were any changes,

but this is a trial, and they can't do that.

I took 1/2 an Ativan when I got labs done, in anticipation of the infusion,

which did not happen, But I do think it helped me with the bmb/bma considering

the trouble she had, but I was sleep the rest of the afternoon. so, that's it

for this week, but for the first time, did not get to see Len and Ernie, Len

did not have appointments . Will keep you posted on next week's saga, but Dr. T

is very pleased with this drug, and that is very reassuring.

a (Bobby) Doyle

Brecksville, Ohio, USA

DX 05/1995

02/2000 - Gleevec Trial/OHSU

06/2002 - Gleevec/Trisenox Trial/OHSU

06/2003 - Gleevec/Zarnestra Trial/OHSU

04/2004 - Sprycel Trial/MDACC, CCR in 10 months

#840 - Zavie's Zero Club

09/2006 - out of CCR

04/29/08 - XL228 Trial/ U.of Michigan

06/02/08 - CCR ( in 4 weeks)

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