SharonS Update

[Guest guest]

Hello Everyone,

I was finally able to see another Dr. for a second opinion on the

course of treatment for the CML.I was Dx 5/29/08.I had a FISH test and

CBC. My Hemo/Onc started me on Gleevec(400mg) and Zyloprem.He ordered

no BMB or anything else.The first follow up was one month later and he

then started doing finger pricks(for CBC)every week.I waited for a

second opinion.Today I saw another DR.who set up a BMB for 8/11/08.He

also did another FISH test.He spent time with me and explained what we

were looking to achieve and what we would do if we didn't acheive it.He

wants bi-weekly CBC's.He also gave me a copy(generic) of a plan of

treatment.What to do at the 3 month mark,six month etc.He was nice and

seemed to want to take a little more aggressive approach to the

treatment.He may even increase the Gleevec if the test results don't

show what he wants.My hematological levels have come down within normal

range and he is happy with that but says that doesn't really tell the

whole story.So I have a new DR an hope his approach is better I already

feel better at least I'm getting a BMB.

Thanks

SharonS

[Guest guest]

>

> Hello Everyone,

> I was finally able to see another Dr. for a second opinion on

the

> course of treatment for the CML.I was Dx 5/29/08.I had a FISH test

and

> CBC. My Hemo/Onc started me on Gleevec(400mg) and Zyloprem.He

ordered

> no BMB or anything else.The first follow up was one month later and

he

> then started doing finger pricks(for CBC)every week.I waited for a

> second opinion.Today I saw another DR.who set up a BMB for

8/11/08.He

> also did another FISH test.He spent time with me and explained what

we

> were looking to achieve and what we would do if we didn't acheive

it.He

> wants bi-weekly CBC's.He also gave me a copy(generic) of a plan of

> treatment.What to do at the 3 month mark,six month etc.He was nice

and

> seemed to want to take a little more aggressive approach to the

> treatment.He may even increase the Gleevec if the test results

don't

> show what he wants.My hematological levels have come down within

normal

> range and he is happy with that but says that doesn't really tell

the

> whole story.So I have a new DR an hope his approach is better I

already

> feel better at least I'm getting a BMB.

> Thanks

> SharonS

Dear Sharon S,

I am so happy for you that you stood up for yourself and got a second

opinion. I did not understand any of your other doctor's methods or

even how he/she thought that CML could be treated that way.

Confidence in your doctor has everything to do with your recovery. I

know you will keep us posted and soon Zavie will be giving your your

very own number in the Zero Club. Best wishes, Lottie

>

[Guest guest]

So glad you have a second opinion and a new DR. To have conficence in your Dr

can do a world of good for your well being.

Nothing like stress if the Dr is really doing what is right for you. I can say

this from experience have had three Dr's not knowing a thing about Leukemia or

what the med's do to you,

Nor show any care about the patient. I have learned all from the members on here

and they have helped a whole lot, me some knowing others not.

Thanks to everyone out there posting. You are all such wonderful caring people.

And all the positive out put keeps my spirits up.

Good luck to you Sharon S on your journey  and God Bless you all

Anita

>

> Hello Everyone,

> I was finally able to see another Dr. for a second opinion on

the

> course of treatment for the CML.I was Dx 5/29/08.I had a FISH test

and

> CBC. My Hemo/Onc started me on Gleevec(400mg) and Zyloprem.He

ordered

> no BMB or anything else.The first follow up was one month later and

he

> then started doing finger pricks(for CBC)every week.I waited for a

> second opinion.Today I saw another DR.who set up a BMB for

8/11/08.He

> also did another FISH test.He spent time with me and explained what

we

> were looking to achieve and what we would do if we didn't acheive

it.He

> wants bi-weekly CBC's.He also gave me a copy(generic) of a plan of

> treatment.What to do at the 3 month mark,six month etc.He was nice

and

> seemed to want to take a little more aggressive approach to the

> treatment.He may even increase the Gleevec if the test results

don't

> show what he wants.My hematological levels have come down within

normal

> range and he is happy with that but says that doesn't really tell

the

> whole story.So I have a new DR an hope his approach is better I

already

> feel better at least I'm getting a BMB.

> Thanks

> SharonS

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[Guest guest]

SharonS,

Congrats...I had outstanding results with Gleevec, and it still keeps me in

remission. I still have side effects but they are controlled by other meds.

I am very happy for you:)

Terry

On Fri, Aug 1, 2008 at 9:43 PM, serenitywon <serenitywon@...> wrote:

> Hello Everyone,

> I was finally able to see another Dr. for a second opinion on the

> course of treatment for the CML.I was Dx 5/29/08.I had a FISH test and

> CBC. My Hemo/Onc started me on Gleevec(400mg) and Zyloprem.He ordered

> no BMB or anything else.The first follow up was one month later and he

> then started doing finger pricks(for CBC)every week.I waited for a

> second opinion.Today I saw another DR.who set up a BMB for 8/11/08.He

> also did another FISH test.He spent time with me and explained what we

> were looking to achieve and what we would do if we didn't acheive it.He

> wants bi-weekly CBC's.He also gave me a copy(generic) of a plan of

> treatment.What to do at the 3 month mark,six month etc.He was nice and

> seemed to want to take a little more aggressive approach to the

> treatment.He may even increase the Gleevec if the test results don't

> show what he wants.My hematological levels have come down within normal

> range and he is happy with that but says that doesn't really tell the

> whole story.So I have a new DR an hope his approach is better I already

> feel better at least I'm getting a BMB.

> Thanks

> SharonS

>

>

>

[Guest guest]

I think there were a few women on here having issues with the bleeding.

I am on sprycel but do think it all effects our hormones and female issues.

Maybe some one will chime in soon.

Hope your vacation is the best.

Anita

[ ] SharonS update

Hello Everyone,

Just an update after my BMB. I also had a second FISH test.I am a

little over two months on Gleevec.I can now stop the Zyloprim that was

perscribed initially.My Blood levels are now within normal ranges.My

first FISH said I had 66 of 200 with Philadelphia chromosom.The second

one says I now have 48 of 200.So I haven't made alot of progress yet at

a cytogenetic level.The DR wants to increase the Gleevec from 400mg to

600 mg as soon as I get back from vacation on the 25th.I will coninue

with byweekly cbc's.

I am now starting to experience stomach distress/cramps and

diahrea.I have IBS and Diverticulosis and take Amitiza for treatment.I

usually suffer with severe constipation. I am 40 and am having excessive

periods.I will have a 7-10 day period then it ends for a few days and

then starts back up again.I am scheduled for a tubal and endometrial

ablation for Sept 5th to hopefull help this issue.Anyone else having

menstration issues while on Gleevec?

Thanks

SharonS