Re: Cautionary tale - make changes very carefully

[Guest guest]

Hello Steph,

How very generous of you to share your mistake to help others. I've

certainly made my share of mistakes and it's been just pure luck

that most of the consequences have been financial. But one hasn't.

I switched my son to the LOD for a week. During that time, because

of dietary restrictions, he had almost no fibre. That was more than

a month ago, and he's still suffering the consequences from the

constipation. Looking back the mistake seems so obvious--at the

time, of course, it wasn't. Not very proud of what I did, that's

for sure, but reading your post I thought it might be something

someone else could learn from.

I'm sure your Tom will be back to better than ever with the new

dosing schedule.

Anita

>

> Hello

>

> We got Tom's doseage too high on changing from 48 hourly to 8

hourly.

> We divided by 3, not 6. Disastrous. Poor little man has been very

> uneven - some nice gains but some real fury (bacteria??) and lots

of

> horrible biting. My arm looks like I've been attacked with a

baseball

> bat (in fact my lovely son's surprisingly strong teeth). Really

> grim. So - be careful - regression with chelation is part and

parcel

> I gather but trying to run before he can walk (and we've been

> chelating since April!) not advised. I wouldn't want anyone to go

> through the past few days, if you change (and we're sticking with

8

> hourly but at low low dose) be careful. Presumably means it's

pulling

> more (good) but so much more that it's really upset the apple

cart. I

> could weep. (and when he bites, swear, inventively)

>

> All of which Mandi said a long time ago but my brain was clearly

on

> standby when we changed over.

>

> Sigh

>

> Steph x

>

[Guest guest]

Poor you, it makes you feel so entirely awful. When Tom was on SCD

he wasn't getting anywhere near enough roughage (he gets most from

brown rice cakes). He's not prone to constipation but he was going

two or three days with nothing, despite loads of extra water. Very

hard to consider everything in one go!

> >

> > Hello

> >

> > We got Tom's doseage too high on changing from 48 hourly to 8

> hourly.

> > We divided by 3, not 6. Disastrous. Poor little man has been

very

> > uneven - some nice gains but some real fury (bacteria??) and

lots

> of

> > horrible biting. My arm looks like I've been attacked with a

> baseball

> > bat (in fact my lovely son's surprisingly strong teeth). Really

> > grim. So - be careful - regression with chelation is part and

> parcel

> > I gather but trying to run before he can walk (and we've been

> > chelating since April!) not advised. I wouldn't want anyone to

go

> > through the past few days, if you change (and we're sticking

with

> 8

> > hourly but at low low dose) be careful. Presumably means it's

> pulling

> > more (good) but so much more that it's really upset the apple

> cart. I

> > could weep. (and when he bites, swear, inventively)

> >

> > All of which Mandi said a long time ago but my brain was clearly

> on

> > standby when we changed over.

> >

> > Sigh

> >

> > Steph x

> >

>