Re: Re: Ann Arbor- vertigo

[Guest guest]

I had what I think was vertigo several times now . I was at dinner with my

sister and niece and every time one of them reaches for something I felt like I

was dizzy and had the bed spins . I t made me quite sick to my stomach. Eva

From: Barb Stanley

Sent: Sunday, August 10, 2008 9:45 AM

Subject: [ ] Re: Ann Arbor- vertigo

Bobbie

I am SOOOO sorry you are having such a hard time. These d**n infusions!

You are such a trouper!!

I wanted to tell you - regarding vertigo, I did the exercises..... guess

what??? It is GONE! I can't tel you how much I appreciate your telling

me about them. I would have never found them. It will make my

teaching year so much better. I love you for this!!

Hope your day is good.

Thanks again my friend.

Barb

>

>

> Hi All, yesterday was Ann Arbor day, labs were good enough to get the

infusion, yuck, I

> threw up again! Only I had already left the hospital, and was sitting

in my scooter waiting for the car, wh;en, oops! I knew I was going to

toss, so scooted over into a corner of the building hoping I was doing

so in private - nope, I was facing a glass wall, into the front lobby !!

I was fortunate, they had given me a plastic bucket - just in case.

Last night I slept for 11 straight hours, and am tired today. The tongue

is numb, so I am hoping tomorrow the numbness is gone, aside from that,

no ill effects.

> The only result from the previous weeks bma/bmb is qpcr, which is .56,

this is up a bit from.26, no biggy. I was not fortunate to see Len and

Ernie this time, had to get back home, hopefully we will meet next

week,.

>

>

> a (Bobby) Doyle

> Brecksville, Ohio, USA

> DX 05/1995

> 02/2000 - Gleevec Trial/OHSU

> 06/2002 - Gleevec/Trisenox Trial/OHSU

> 06/2003 - Gleevec/Zarnestra Trial/OHSU

> 04/2004 - Sprycel Trial/MDACC, CCR in 10 months

> #840 - Zavie's Zero Club

> 09/2006 - out of CCR

> 04/29/08 - XL228 Trial/ U.of Michigan

> 06/02/08 - CCR ( in 4 weeks)

>

>

>

[Guest guest]

You know, when I was on Gleevec, I had vertigo

very badly, but had no idea that the medication

caused it. I thought it was because I gained

weight and my center of gravity changed (laugh

all you want ).

I found it hardest going down stairs or at least

that is where I noticed it the most.

With the warmest regards,

Matt

CML of Florida

Dx January of 2005

Gleevec March of 2005

Tasigna November of 2007

Number 1078 in the Esteemed Zavie Zero Club

In a message dated 8/10/2008 7:52:58 P.M. Eastern Daylight Time,

barbarastanley@... writes:

Eva

They are loaded in the files section of this site. It really consists

of holding your head a certain angle and laying down while you hold you

head that way, one side and then the other, and counting to 30 each

time. I did them for a week, morning and night and voila! Vertigo is

GONE!!

I am forever grateful. I will tell you while I was 'in position' I did

get really dizzy but it is all gone now!!

Love

Barb

> >

> >

> > Hi All, yesterday was Ann Arbor day, labs were good enough to get

the

> infusion, yuck, I

> > threw up again! Only I had already left the hospital, and was

sitting

> in my scooter waiting for the car, wh;en, oops! I knew I was going to

> toss, so scooted over into a corner of the building hoping I was doing

> so in private - nope, I was facing a glass wall, into the front lobby

!!

> I was fortunate, they had given me a plastic bucket - just in case.

> Last night I slept for 11 straight hours, and am tired today. The

tongue

> is numb, so I am hoping tomorrow the numbness is gone, aside from

that,

> no ill effects.

> > The only result from the previous weeks bma/bmb is qpcr, which is

..56,

> this is up a bit from.26, no biggy. I was not fortunate to see Len and

> Ernie this time, had to get back home, hopefully we will meet next

> week,.

> >

> >

> > a (Bobby) Doyle

> > Brecksville, Ohio, USA

> > DX 05/1995

> > 02/2000 - Gleevec Trial/OHSU

> > 06/2002 - Gleevec/Trisenox Trial/OHSU

> > 06/2003 - Gleevec/Zarnestra Trial/OHSU

> > 04/2004 - Sprycel Trial/MDACC, CCR in 10 months

> > #840 - Zavie's Zero Club

> > 09/2006 - out of CCR

> > 04/29/08 - XL228 Trial/ U.of Michigan

> > 06/02/08 - CCR ( in 4 weeks)

> >

> >

> > [Non-text portions of this message have been removed]

> >

>

> [Non-text portions of this message have been removed]

>

>

>

>

>

> [Non-text portions of this message have been removed]

>

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[Guest guest]

HI BARB, FUNNY, I GAVE THEM  TO YOU BUT NEVER DID THEM MYSELF, AND EARLY THIS

MORNING MY VERTIGO CAMEBACK! I WILL LOOK THEM UP AGAIN AND DO THEM.  AS FOR THE

INFUSION, IT IS REALLY ONLY BAD THE FIRST DAY.  THE SECOND DAY I AM TIRED , AND

THE NEXT 5 DAYS I DON'T EVEN KNOW I HAVE CML.SO COMPARED TO WHAT OTHERS ARE

GOING THROUGH, IT'S NOTHING.

BUT I AM SO GLAD THOSE EXERCISES WORKED FOR YOU,NOW I AM GOING TO DIG THEM UP

AND TRY THEM, BOBB Y

a (Bobby) Doyle

Brecksville, Ohio, USA

DX 05/1995

02/2000 - Gleevec Trial/OHSU

06/2002 - Gleevec/Trisenox Trial/OHSU

06/2003 - Gleevec/Zarnestra Trial/OHSU

04/2004 - Sprycel Trial/MDACC, CCR in 10 months

#840  -   Zavie's Zero Club

09/2006 -  out of CCR

04/29/08 - XL228 Trial/ U.of Michigan

06/02/08 - CCR ( in 4 weeks)

 

From: Barb Stanley <barbarastanley@...>

Subject: [ ] Re: Ann Arbor- vertigo

Date: Sunday, August 10, 2008, 9:45 AM

Bobbie

I am SOOOO sorry you are having such a hard time. These d**n infusions!

You are such a trouper!!

I wanted to tell you - regarding vertigo, I did the exercises... .. guess

what??? It is GONE! I can't tel you how much I appreciate your telling

me about them. I would have never found them. It will make my

teaching year so much better. I love you for this!!

Hope your day is good.

Thanks again my friend.

Barb

>

>

> Hi All, yesterday was Ann Arbor day, labs were good enough to get the

infusion, yuck, I

> threw up again! Only I had already left the hospital, and was sitting

in my scooter waiting for the car, wh;en, oops! I knew I was going to

toss, so scooted over into a corner of the building hoping I was doing

so in private - nope, I was facing a glass wall, into the front lobby !!

I was fortunate, they had given me a plastic bucket - just in case.

Last night I slept for 11 straight hours, and am tired today. The tongue

is numb, so I am hoping tomorrow the numbness is gone, aside from that,

no ill effects.

> The only result from the previous weeks bma/bmb is qpcr, which is .56,

this is up a bit from.26, no biggy. I was not fortunate to see Len and

Ernie this time, had to get back home, hopefully we will meet next

week,.

>

>

> a (Bobby) Doyle

> Brecksville, Ohio, USA

> DX 05/1995

> 02/2000 - Gleevec Trial/OHSU

> 06/2002 - Gleevec/Trisenox Trial/OHSU

> 06/2003 - Gleevec/Zarnestra Trial/OHSU

> 04/2004 - Sprycel Trial/MDACC, CCR in 10 months

> #840 - Zavie's Zero Club

> 09/2006 - out of CCR

> 04/29/08 - XL228 Trial/ U.of Michigan

> 06/02/08 - CCR ( in 4 weeks)

>

>

>

[Guest guest]

If you google " epley maneuvers " , you will get the exercises that Barb said

helped her.  I am going to do them shortly, although they do say to do them with

your doctor.  I'll let yu know if they help me at all, I sure hope so,  I have

been dizzy all day, almost sick to my stomach.

bobby

a (Bobby) Doyle

Brecksville, Ohio, USA

DX 05/1995

02/2000 - Gleevec Trial/OHSU

06/2002 - Gleevec/Trisenox Trial/OHSU

06/2003 - Gleevec/Zarnestra Trial/OHSU

04/2004 - Sprycel Trial/MDACC, CCR in 10 months

#840  -   Zavie's Zero Club

09/2006 -  out of CCR

04/29/08 - XL228 Trial/ U.of Michigan

06/02/08 - CCR ( in 4 weeks)

 

From: Eva <evaob365@...>

Subject: Re: [ ] Re: Ann Arbor- vertigo

Date: Sunday, August 10, 2008, 10:40 AM

I had what I think was vertigo several times now . I was at dinner with my

sister and niece and every time one of them reaches for something I felt like I

was dizzy and had the bed spins . I t made me quite sick to my stomach. Eva

From: Barb Stanley

Sent: Sunday, August 10, 2008 9:45 AM

groups (DOT) com

Subject: [ ] Re: Ann Arbor- vertigo

Bobbie

I am SOOOO sorry you are having such a hard time. These d**n infusions!

You are such a trouper!!

I wanted to tell you - regarding vertigo, I did the exercises... .. guess

what??? It is GONE! I can't tel you how much I appreciate your telling

me about them. I would have never found them. It will make my

teaching year so much better. I love you for this!!

Hope your day is good.

Thanks again my friend.

Barb

>

>

> Hi All, yesterday was Ann Arbor day, labs were good enough to get the

infusion, yuck, I

> threw up again! Only I had already left the hospital, and was sitting

in my scooter waiting for the car, wh;en, oops! I knew I was going to

toss, so scooted over into a corner of the building hoping I was doing

so in private - nope, I was facing a glass wall, into the front lobby !!

I was fortunate, they had given me a plastic bucket - just in case.

Last night I slept for 11 straight hours, and am tired today. The tongue

is numb, so I am hoping tomorrow the numbness is gone, aside from that,

no ill effects.

> The only result from the previous weeks bma/bmb is qpcr, which is .56,

this is up a bit from.26, no biggy. I was not fortunate to see Len and

Ernie this time, had to get back home, hopefully we will meet next

week,.

>

>

> a (Bobby) Doyle

> Brecksville, Ohio, USA

> DX 05/1995

> 02/2000 - Gleevec Trial/OHSU

> 06/2002 - Gleevec/Trisenox Trial/OHSU

> 06/2003 - Gleevec/Zarnestra Trial/OHSU

> 04/2004 - Sprycel Trial/MDACC, CCR in 10 months

> #840 - Zavie's Zero Club

> 09/2006 - out of CCR

> 04/29/08 - XL228 Trial/ U.of Michigan

> 06/02/08 - CCR ( in 4 weeks)

>

>

>

[Guest guest]

Hi Bobby, Hope you are feeling better today, I would appreciate it if you could

send me those exercises for Vertigo. I didn't know what it was at first and it

kind of scared me .Then I remembered reading about Vertigo on this site from one

of you warriors. I was at my trailer with my sister and niece and it was really

weird. Thanks ; Eva

From: ROBERTA DOYLE

Sent: Sunday, August 10, 2008 5:03 PM

Subject: Re: [ ] Re: Ann Arbor- vertigo

HI BARB, FUNNY, I GAVE THEM TO YOU BUT NEVER DID THEM MYSELF, AND EARLY THIS

MORNING MY VERTIGO CAMEBACK! I WILL LOOK THEM UP AGAIN AND DO THEM. AS FOR THE

INFUSION, IT IS REALLY ONLY BAD THE FIRST DAY. THE SECOND DAY I AM TIRED , AND

THE NEXT 5 DAYS I DON'T EVEN KNOW I HAVE CML.SO COMPARED TO WHAT OTHERS ARE

GOING THROUGH, IT'S NOTHING.

BUT I AM SO GLAD THOSE EXERCISES WORKED FOR YOU,NOW I AM GOING TO DIG THEM UP

AND TRY THEM, BOBB Y

a (Bobby) Doyle

Brecksville, Ohio, USA

DX 05/1995

02/2000 - Gleevec Trial/OHSU

06/2002 - Gleevec/Trisenox Trial/OHSU

06/2003 - Gleevec/Zarnestra Trial/OHSU

04/2004 - Sprycel Trial/MDACC, CCR in 10 months

#840 - Zavie's Zero Club

09/2006 - out of CCR

04/29/08 - XL228 Trial/ U.of Michigan

06/02/08 - CCR ( in 4 weeks)

From: Barb Stanley <barbarastanley@...>

Subject: [ ] Re: Ann Arbor- vertigo

Date: Sunday, August 10, 2008, 9:45 AM

Bobbie

I am SOOOO sorry you are having such a hard time. These d**n infusions!

You are such a trouper!!

I wanted to tell you - regarding vertigo, I did the exercises... .. guess

what??? It is GONE! I can't tel you how much I appreciate your telling

me about them. I would have never found them. It will make my

teaching year so much better. I love you for this!!

Hope your day is good.

Thanks again my friend.

Barb

>

>

> Hi All, yesterday was Ann Arbor day, labs were good enough to get the

infusion, yuck, I

> threw up again! Only I had already left the hospital, and was sitting

in my scooter waiting for the car, wh;en, oops! I knew I was going to

toss, so scooted over into a corner of the building hoping I was doing

so in private - nope, I was facing a glass wall, into the front lobby !!

I was fortunate, they had given me a plastic bucket - just in case.

Last night I slept for 11 straight hours, and am tired today. The tongue

is numb, so I am hoping tomorrow the numbness is gone, aside from that,

no ill effects.

> The only result from the previous weeks bma/bmb is qpcr, which is .56,

this is up a bit from.26, no biggy. I was not fortunate to see Len and

Ernie this time, had to get back home, hopefully we will meet next

week,.

>

>

> a (Bobby) Doyle

> Brecksville, Ohio, USA

> DX 05/1995

> 02/2000 - Gleevec Trial/OHSU

> 06/2002 - Gleevec/Trisenox Trial/OHSU

> 06/2003 - Gleevec/Zarnestra Trial/OHSU

> 04/2004 - Sprycel Trial/MDACC, CCR in 10 months

> #840 - Zavie's Zero Club

> 09/2006 - out of CCR

> 04/29/08 - XL228 Trial/ U.of Michigan

> 06/02/08 - CCR ( in 4 weeks)

>

>

>

[Guest guest]

I found them thank you very much. Eva

From: Barb Stanley

Sent: Sunday, August 10, 2008 7:52 PM

Subject: [ ] Re: Ann Arbor- vertigo

Eva

They are loaded in the files section of this site. It really consists

of holding your head a certain angle and laying down while you hold you

head that way, one side and then the other, and counting to 30 each

time. I did them for a week, morning and night and voila! Vertigo is

GONE!!

I am forever grateful. I will tell you while I was 'in position' I did

get really dizzy but it is all gone now!!

Love

Barb

> >

> >

> > Hi All, yesterday was Ann Arbor day, labs were good enough to get

the

> infusion, yuck, I

> > threw up again! Only I had already left the hospital, and was

sitting

> in my scooter waiting for the car, wh;en, oops! I knew I was going to

> toss, so scooted over into a corner of the building hoping I was doing

> so in private - nope, I was facing a glass wall, into the front lobby

!!

> I was fortunate, they had given me a plastic bucket - just in case.

> Last night I slept for 11 straight hours, and am tired today. The

tongue

> is numb, so I am hoping tomorrow the numbness is gone, aside from

that,

> no ill effects.

> > The only result from the previous weeks bma/bmb is qpcr, which is

..56,

> this is up a bit from.26, no biggy. I was not fortunate to see Len and

> Ernie this time, had to get back home, hopefully we will meet next

> week,.

> >

> >

> > a (Bobby) Doyle

> > Brecksville, Ohio, USA

> > DX 05/1995

> > 02/2000 - Gleevec Trial/OHSU

> > 06/2002 - Gleevec/Trisenox Trial/OHSU

> > 06/2003 - Gleevec/Zarnestra Trial/OHSU

> > 04/2004 - Sprycel Trial/MDACC, CCR in 10 months

> > #840 - Zavie's Zero Club

> > 09/2006 - out of CCR

> > 04/29/08 - XL228 Trial/ U.of Michigan

> > 06/02/08 - CCR ( in 4 weeks)

> >

> >

> >