Re: Re: bmb/bma

[Guest guest]

I have my BMA through the sternum and it is quick and pretty pain free and you

are up and moving within minutes.  my Dr. is a specialist and trains a local

Hospital in the procedure.

From: vickistu <vickistu@...>

Subject: [ ] Re: bmb/bma

Date: Tuesday, August 5, 2008, 7:14 PM

Tracey--

You are so right--I think it feels like you are being turned inside

out from the toes up--and then it's over!~ You really don't have

time to even react. I was told by my doctor that they can

anesthetize the skin but it is the marrow part of the bone that

hurts---and it can't be anesthetized. So, it is never going to be

fun, but it isn't as awful as I once thought it was. Sternum sounds

awful and scary--I much prefer the hip.

Vicki

> > >

> > >

> > > Hi everyone, had quite the visit yesterday.  First the poor

tech

> > doing the bma could not get a piece of bone for the bmb.  She

tried

> a

> > couple of times, no success, but she did manage to get a good

> marrow

> > sample for the bms.  Whew!  that one took a long time, but was

> really

> > painless, as she does an excellant job of numbing the area. 

That

> was

> > about my 46th one, and I guess there is so much scar tissue

there,

> it

> > is hard to get a good sample.

> > > Anyway, on the the infusion, which did not take place, again,

> > second week in a row.  last week it was becaue I had an

> angioplasty ,

> > so they said no to the infusion.  This week the labs were to

low: 

> > wbc - 2,7;  hgb - 9.6;  pltl - 138;  anc - 1.4

> > > This is really a good sign, as it's been two weeks and nothing

> went

> > up. they all dropped or stayed the same. So this drug is working

> for

> > me real well.

> > > I was also told this 7.2 that I am on will stay the same for

the

> > next ones in the trial, at they did 10% and there were side

> effects,

> > I think quite severe.  Len also did not get infused last week,

but

> I

> > don't know what her counts were this week to compare to mine

after

> > missing a dose. I would like to miss one more dose, so that

would

> > make it one in one month, so see if there were any changes, but

> this

> > is a trial, and they can't do that.

> > > I took 1/2 an Ativan when I got labs done, in anticipation of

the

> > infusion, which did not happen,  But I do think it helped me

with

> the

> > bmb/bma considering the trouble she had, but I was sleep the

> rest of

> > the afternoon. so, that's it for this week, but for the first

time,

> > did not get to see Len and Ernie,  Len did not have

appointments . 

> > Will keep you posted on next week's saga, but Dr. T is very

pleased

> > with this drug, and that is very reassuring.

> > >

> > >

> > >  

> > > a (Bobby) Doyle

> > > Brecksville, Ohio, USA

> > > DX 05/1995

> > > 02/2000 - Gleevec Trial/OHSU

> > > 06/2002 - Gleevec/Trisenox Trial/OHSU

> > > 06/2003 - Gleevec/Zarnestra Trial/OHSU

> > > 04/2004 - Sprycel Trial/MDACC, CCR in 10 months

> > > #840  -   Zavie's Zero Club

> > > 09/2006 -  out of CCR

> > > 04/29/08 - XL228 Trial/ U.of Michigan

> > > 06/02/08 - CCR ( in 4 weeks)

> > >  

> > >

> > >