Re: Many thanks and BMB question

August 3, 2008

SharonS,

You have a good doc there my dear. I have had 4 BMB since being dxed in 04

and have never been knocked out. They give me a local and some other stuff

to make me loopy, but otherwise I am awake. Not to scare you(you will be

knocked out so you will not feel a thing) but BMB to me are very painful

even with being medicated, and I was stabbed once in my youth...lol. I love

my docs but I always have to remind them that if they do not want me to come

off the table they better drug me..lol. Take care and hang in there:)

Terry

On Sat, Aug 2, 2008 at 11:58 AM, serenitywon <serenitywon@...> wrote:

> Hello,

> First I would like to thank everyone for the positive feedback from

> my update.I also have a BMB quetion.

> What can I expect with my 1st BMB? My DR. said nothing by mouth 8

> hours prior to BMB.I will be knocked out but no tube.It will take about

> 15 minutes.Does this sound right? Anything else I should be concerned

> with?

> Thank You

> SharonS

>

August 3, 2008

Sharon:

BMBs are part of who we are, for the foreseeable future,

and some facilities do them better than others. While

they are uncomfortable, you will get used to them and

learn how to prepare. I like to take my iPod and listen

to Christian music as they prep the area and insert the

Lidocaine, when they prepare for the aspiration (which

is the most uncomfortable part) then I switch to heavy

metal and turn it up loud. The aspiration is always over

before the end of the song and the uncomfortableness

only lasts a short period of time. LET THEM KNOW IF

YOU ARE UNCOMFORTABLE AND THEY WILL TRY

AND GO SLOWER OR GIVE YOU MORE LIDOCAINE.

I have tried various drugs before hand and for the duration,

it really was not worth it to me. It was over and done

with before I knew it. I have been sedated for one and

that was not painful, but it was cumbersome as it took

time for the medications and prep and oh my, that back-

less gown showing my now plump rear to everyone.

If you are going to big cancer centers like MDACC or

Sloan Kettering, try speaking to older patients and

they may be able to tell you who to ask for to do your

BMB/BMA. For instance, I learned that at

MDACC was virtually painless and he did 6 or 7 of

mine. Other patients will fill you in, good advice

for us all as we move from place to place.

Matt

CML in Florida

DX in January of 2005

Tasigna since November 2007

SharonS,

You have a good doc there my dear. I have had 4 BMB since being dxed in 04

and have never been knocked out. They give me a local and some other stuff

to make me loopy, but otherwise I am awake. Not to scare you(you will be

knocked out so you will not feel a thing) but BMB to me are very painful

even with being medicated, and I was stabbed once in my youth...lol. I love

my docs but I always have to remind them that if they do not want me to come

off the table they better drug me..lol. Take care and hang in there:)

Terry

On Sat, Aug 2, 2008 at 11:58 AM, serenitywon <_serenitywon@serenityw_

(mailto:serenitywon@...) > wrote:

> Hello,

> First I would like to thank everyone for the positive feedback from

> my update.I also have a BMB quetion.

> What can I expect with my 1st BMB? My DR. said nothing by mouth 8

> hours prior to BMB.I will be knocked out but no tube.It will take about

> 15 minutes.Does this sound right? Anything else I should be concerned

> with?

> Thank You

> SharonS

>

[Non-text portions of this message have been removed]

**************Looking for a car that's sporty, fun and fits in your budget?

Read reviews on AOL Autos.

(http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut00050000000017

)

August 4, 2008

I would make sure the person doing the BMB does tons and has experience, And

must be good experience.

I have been fortunate enough to be one person's first time. Before I new what

questions to ask, Oh boy was that a lasting memory.

Good luck

Anita

[ ] Many thanks and BMB question

Hello,

First I would like to thank everyone for the positive feedback from

my update.I also have a BMB quetion.

What can I expect with my 1st BMB? My DR. said nothing by mouth 8

hours prior to BMB.I will be knocked out but no tube.It will take about

15 minutes.Does this sound right? Anything else I should be concerned

with?

Thank You

SharonS

August 4, 2008

Matt,

I live in a little tiny town.So no big medical center for me.I was

told that I would be knocked out for the procedure but not tubed.I

would rather be knocked out then go through the nervusness of it

all.I have very bad hips already.I am disabled and need bilateral hip

replacements.I wonder how that will afect my recovery.I live on

M.S.Contin and Norco for pain.Do most just go back to work the same

day or do you take a day off to recoupe? Seems like you would have

some on going pain from the procedure? Does it last ong?

Thanks

SharonS

In , mtmaynor@... wrote:

>

> Sharon:

>

> BMBs are part of who we are, for the foreseeable future,

> and some facilities do them better than others. While

> they are uncomfortable, you will get used to them and

> learn how to prepare. I like to take my iPod and listen

> to Christian music as they prep the area and insert the

> Lidocaine, when they prepare for the aspiration (which

> is the most uncomfortable part) then I switch to heavy

> metal and turn it up loud. The aspiration is always over

> before the end of the song and the uncomfortableness

> only lasts a short period of time. LET THEM KNOW IF

> YOU ARE UNCOMFORTABLE AND THEY WILL TRY

> AND GO SLOWER OR GIVE YOU MORE LIDOCAINE.

>

> I have tried various drugs before hand and for the duration,

> it really was not worth it to me. It was over and done

> with before I knew it. I have been sedated for one and

> that was not painful, but it was cumbersome as it took

> time for the medications and prep and oh my, that back-

> less gown showing my now plump rear to everyone.

>

> If you are going to big cancer centers like MDACC or

> Sloan Kettering, try speaking to older patients and

> they may be able to tell you who to ask for to do your

> BMB/BMA. For instance, I learned that at

> MDACC was virtually painless and he did 6 or 7 of

> mine. Other patients will fill you in, good advice

> for us all as we move from place to place.

>

> Matt

> CML in Florida

> DX in January of 2005

> Tasigna since November 2007

>

> SharonS,

>

> You have a good doc there my dear. I have had 4 BMB since being

dxed in 04

> and have never been knocked out. They give me a local and some

other stuff

> to make me loopy, but otherwise I am awake. Not to scare you(you

will be

> knocked out so you will not feel a thing) but BMB to me are very

painful

> even with being medicated, and I was stabbed once in my

youth...lol. I love

> my docs but I always have to remind them that if they do not want

me to come

> off the table they better drug me..lol. Take care and hang in

there:)

>

> Terry

>

> On Sat, Aug 2, 2008 at 11:58 AM, serenitywon

<_serenitywon@serenityw_

> (mailto:serenitywon@...) > wrote:

>

> > Hello,

> > First I would like to thank everyone for the positive feedback

from

> > my update.I also have a BMB quetion.

> > What can I expect with my 1st BMB? My DR. said nothing by mouth 8

> > hours prior to BMB.I will be knocked out but no tube.It will

take about

> > 15 minutes.Does this sound right? Anything else I should be

concerned

> > with?

> > Thank You

> > SharonS

> >

>

> [Non-text portions of this message have been removed]

>

> **************Looking for a car that's sporty, fun and fits in your

budget?

> Read reviews on AOL Autos.

> (http://autos.aol.com/cars-BMW-128-2008/expert-review?

ncid=aolaut00050000000017 )

>

August 4, 2008

Sharon:

Like any procedure when you are knocked out, you

will be a little " foggy " for a while, so unless your

procedure is done really early in the day, you

may not want to return to work.

Having had this procedure as well, it will be painless

and when you wake up you will be still have the local.

When the local wears off, just remember to walk around

a little bit as that helps it from hurting.

There is nothing to be nervous about, this will be a walk

in the park for you.

Matt

In a message dated 8/4/2008 12:33:26 A.M. Eastern Daylight Time,

serenitywon@... writes:

Matt,

I live in a little tiny town.So no big medical center for me.I was

told that I would be knocked out for the procedure but not tubed.I

would rather be knocked out then go through the nervusness of it

all.I have very bad hips already.I am disabled and need bilateral hip

replacements.replacements.<WBR>I wonder how that will afect my recov

M.S.Contin and Norco for pain.Do most just go back to work the same

day or do you take a day off to recoupe? Seems like you would have

some on going pain from the procedure? Does it last ong?

Thanks

SharonS

In _@..._ (mailto: ) , mtmaynor@... wrote:

>

> Sharon:

>

> BMBs are part of who we are, for the foreseeable future,

> and some facilities do them better than others. While

> they are uncomfortable, you will get used to them and

> learn how to prepare. I like to take my iPod and listen

> to Christian music as they prep the area and insert the

> Lidocaine, when they prepare for the aspiration (which

> is the most uncomfortable part) then I switch to heavy

> metal and turn it up loud. The aspiration is always over

> before the end of the song and the uncomfortableness

> only lasts a short period of time. LET THEM KNOW IF

> YOU ARE UNCOMFORTABLE AND THEY WILL TRY

> AND GO SLOWER OR GIVE YOU MORE LIDOCAINE.

>

> I have tried various drugs before hand and for the duration,

> it really was not worth it to me. It was over and done

> with before I knew it. I have been sedated for one and

> that was not painful, but it was cumbersome as it took

> time for the medications and prep and oh my, that back-

> less gown showing my now plump rear to everyone.

>

> If you are going to big cancer centers like MDACC or

> Sloan Kettering, try speaking to older patients and

> they may be able to tell you who to ask for to do your

> BMB/BMA. For instance, I learned that at

> MDACC was virtually painless and he did 6 or 7 of

> mine. Other patients will fill you in, good advice

> for us all as we move from place to place.

>

> Matt

> CML in Florida

> DX in January of 2005

> Tasigna since November 2007

>

> SharonS,

>

> You have a good doc there my dear. I have had 4 BMB since being

dxed in 04

> and have never been knocked out. They give me a local and some

other stuff

> to make me loopy, but otherwise I am awake. Not to scare you(you

will be

> knocked out so you will not feel a thing) but BMB to me are very

painful

> even with being medicated, and I was stabbed once in my

youth...lol. I love

> my docs but I always have to remind them that if they do not want

me to come

> off the table they better drug me..lol. Take care and hang in

there:)

>

> Terry

>

> On Sat, Aug 2, 2008 at 11:58 AM, serenitywon

<_serenitywon@_serenitywo

> (mailto:serenitywon (mailto:s> wrote:

>

> > Hello,

> > First I would like to thank everyone for the positive feedback

from

> > my update.I also have a BMB quetion.

> > What can I expect with my 1st BMB? My DR. said nothing by mouth 8

> > hours prior to BMB.I will be knocked out but no tube.It will

take about

> > 15 minutes.Does this sound right? Anything else I should be

concerned

> > with?

> > Thank You

> > SharonS

> >

>

August 4, 2008

Sharon, ditto to what Matt said. It is not worth being put to sleep. Most

technicians give you the lidocaine, then check it out to be sure you are numb,

if not, they give you more., After the numbing, the procedure does not take

that long, and maybe if you are that nervous you could ask for a tranquilizer,

like Valium? I have really never had a bad one, and hate being sedated, it

lasts too long. When I was in the Gleevec trial and had to fly to Oregon all

the time, I would get a bma/bmb procedure done at 10 am and fly back home on the

1 pm flight, no discomfort at all. So, good luck to you, and try not to worry

about it, when it's all over you will laugh and say, that wasn't all that bad!!

Bobby

a (Bobby) Doyle

Brecksville, Ohio, USA

DX 05/1995

02/2000 - Gleevec Trial/OHSU

06/2002 - Gleevec/Trisenox Trial/OHSU

06/2003 - Gleevec/Zarnestra Trial/OHSU

04/2004 - Sprycel Trial/MDACC, CCR in 10 months

#840 - Zavie's Zero Club

09/2006 - out of CCR

04/29/08 - XL228 Trial/ U.of Michigan

06/02/08 - CCR ( in 4 weeks)

>

> > Hello,

> > First I would like to thank everyone for the positive feedback

from

> > my update.I also have a BMB quetion.

> > What can I expect with my 1st BMB? My DR. said nothing by mouth 8

> > hours prior to BMB.I will be knocked out but no tube.It will

take about

> > 15 minutes.Does this sound right? Anything else I should be

concerned

> > with?

> > Thank You

> > SharonS

> >

>

August 4, 2008

Hi Sharon,

As others have said, if you get someone who knows what they're doing,

there is no need for sedation, let alone general sedation.

I've never had any kind of sedation, just the lidocaine. Once the

lidocaine wears off you might feel like you've been kicked in the

back side, (a lingering achy kind of feeling) but it's very tolerable

and many people do go back to work right away. Since you're already

on narcotics, you may not even feel that much.

The entire procedure from start to finish shouldn't last longer than

15 mins so it would seem a shame to be knocked out and have to deal

with a day of lingering effects from the sedation for something that

can be finished so quickly but it's up to you.

As for your bad hips, is it your joints that are bad or the hip bones

themselves? The biopsy is done in the middle of the hip bone and has

nothing to do with the joint so hopefully it won't be a problem but

if it is, you could ask your doctor if he/she does sternum biopsies.

Goodluck,

Tracey

> >

> > > Hello,

> > > First I would like to thank everyone for the positive feedback

> from

> > > my update.I also have a BMB quetion.

> > > What can I expect with my 1st BMB? My DR. said nothing by

mouth 8

> > > hours prior to BMB.I will be knocked out but no tube.It will

> take about

> > > 15 minutes.Does this sound right? Anything else I should be

> concerned

> > > with?

> > > Thank You

> > > SharonS

> > >

> >

> > [Non-text portions of this message have been removed]

> >

> > **************Looking for a car that's sporty, fun and fits in

your

> budget?

> > Read reviews on AOL Autos.

> > (http://autos.aol.com/cars-BMW-128-2008/expert-review?

> ncid=aolaut00050000000017 )

> >

August 5, 2008

Tracey,

Thank you and all who have taken the time to respond to my

questions. I don't have fluid left between the joints and my bones

themselves are deteriorating.So I believeit is joints and bones tha I

have issues with.I will ask about the sternum bmb.Anyone here have

them done? Maybe I shuld just try the hip BMB and see how it goes?The

Dr. said he would use the better of the two bad hips..My left is

worse than he right.I will keep everyone posted as what happens.

Thaks again to you and everyone for responding.

SharonS

In , " Tracey " <traceyincanada@...> wrote:

>

> Hi Sharon,

>

> As others have said, if you get someone who knows what they're

doing,

> there is no need for sedation, let alone general sedation.

>

> I've never had any kind of sedation, just the lidocaine. Once the

> lidocaine wears off you might feel like you've been kicked in the

> back side, (a lingering achy kind of feeling) but it's very

tolerable

> and many people do go back to work right away. Since you're

already

> on narcotics, you may not even feel that much.

>

> The entire procedure from start to finish shouldn't last longer

than

> 15 mins so it would seem a shame to be knocked out and have to deal

> with a day of lingering effects from the sedation for something

that

> can be finished so quickly but it's up to you.

>

> As for your bad hips, is it your joints that are bad or the hip

bones

> themselves? The biopsy is done in the middle of the hip bone and

has

> nothing to do with the joint so hopefully it won't be a problem but

> if it is, you could ask your doctor if he/she does sternum biopsies.

>

> Goodluck,

> Tracey

>

> > >

> > > > Hello,

> > > > First I would like to thank everyone for the positive

feedback

> > from

> > > > my update.I also have a BMB quetion.

> > > > What can I expect with my 1st BMB? My DR. said nothing by

> mouth 8

> > > > hours prior to BMB.I will be knocked out but no tube.It will

> > take about

> > > > 15 minutes.Does this sound right? Anything else I should be

> > concerned

> > > > with?

> > > > Thank You

> > > > SharonS

> > > >

> > >

> > > [Non-text portions of this message have been removed]

> > >

> > > **************Looking for a car that's sporty, fun and fits in

> your

> > budget?

> > > Read reviews on AOL Autos.

> > > (http://autos.aol.com/cars-BMW-128-2008/expert-review?

> > ncid=aolaut00050000000017 )

> > >

August 5, 2008

Hi Sharon,

L has had sternum biopsies, hopefully she'll post about it but

I do remember her saying that she prefers them over the hip ones.

They do come with an increased risk for problems though so not all

doctors will do them and those who do, REALLY need to know what

they're doing. You don't want anyone putting a needle that close to

your heart without REALLY knowing what they're doing!

As for the no contact with water, that's just to avoid infection

because the biopsy will leave you with a little hole (open wound)

that needs to close up a bit before you start immersing it in water.

Tracey

> > > >

> > > > > Hello,

> > > > > First I would like to thank everyone for the positive

> feedback

> > > from

> > > > > my update.I also have a BMB quetion.

> > > > > What can I expect with my 1st BMB? My DR. said nothing by

> > mouth 8

> > > > > hours prior to BMB.I will be knocked out but no tube.It

will

> > > take about

> > > > > 15 minutes.Does this sound right? Anything else I should

be

> > > concerned

> > > > > with?

> > > > > Thank You

> > > > > SharonS

> > > > >

> > > >

> > > > [Non-text portions of this message have been removed]

> > > >

> > > > **************Looking for a car that's sporty, fun and fits

in

> > your

> > > budget?

> > > > Read reviews on AOL Autos.

> > > > (http://autos.aol.com/cars-BMW-128-2008/expert-review?

> > > ncid=aolaut00050000000017 )

> > > >

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