Amusement Parks, Sex etc

[Guest guest]

Hey All

Did I read that when you go to an amusement park you can tell them

you have CML and they will let you go Fastrak etc??? I could have

made this up (chemo brain)

That darn tiredness it is the one thing that brings me to tears I

feel like I am letting the side down when I have to admit I am tired

and need a nap. My house has suffered......it looks like it needs a

spring clean all the time and is untidy which is totally unlike it

was before dx.

I got on the scales for the first time in 2 weeks and I had gained

another 7lbs, that is a total of 30+ since July 07 aaaaaaaaaahhh!!

Sex.....it does seem to be more of any effort these days but well

worth the bother (I atribute this

Welcome to Sharon, you seem to be taking this CML thing very well.

What part of the US do you live? Do you have any children? A

supportive partner? How old are you? Just call me nosey!!!!

Donna x

>

> Tammy, Amusement parks are not out of the question BUT you have to

build into the cost for your day a rental of an ECV, it's one of

those chairs that will allow you to drive around the park. They're

usually about $40/day. I acutally bought one to have for myself and

now whenever we are going on a trip or to a park I have my own to

take with me. It allows you to exert your energy on things that

matter and not on walking all around the park. If you don't have one

you won't last long at a park. Good luck!

> :}

> J.

>

>

>

> [ ] New fatigue question

>

> Is this the new normal? It sucks!!! Since DX in Aug.... I was

recovering

> from surgery. Then I was into marital problems, then holidays. So,

yeah, I

> was tired - but there was a reason. Jan, Feb and March didn't bring

much

> activity. April and May and now that it is starting to warm up... I

can't

> " DO " things that require more than a few hours. I went to help at my

> daughter's school on Fri. from 11 - 2. By 1:30 I was wondering when

it would

> be over. I got home at 2:30 and slept until 6:00! Today we went and

walked

> around downtown from 1-3. And I came home and slept for 2 hours.

Does this

> mean I'm a wimp? Is this normal? Do I actually have to PLAN to be

totally

> exhausted after 2-3 hours of activities? Wouldn't this mean an

amusement

> park is out of the question? About a month ago, we did go to a

science

> museaum, where we watched a movie, walked around and then watched a

> different movie. Then went to walk around a mall. I was tired, but

not

> totally exhausted, though I did sleep in the car on the way home.

But the

> past couple weeks - tired!

>

> Is there something else I should be doing? I see the onc in about 2

weeks,

> I'll mention it to her. But it just doesn't seem like a 36 yo

should be this

> tired. Or is this one of those side effects that just showed up and

will

> hopefully disappear again.

>

> Sorry I'm so negative. On the way home today when had to change

plans so I

> could lay down, I heard the frustrated " OK " sighs of the 13 and 8

yos. Along

> with my own frustration, theirs made it worse.

>

> Tammy

>

>

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