Re: Re: Posting Articles

[Guest guest]

Esther,

Your onocologist sounds a lot like mine, except mine has never suggested I get a

second opinion.  Do you happen to be from the West Michigan Area?

>

> Dear Esther,

> It may appear that I know a lot, but I really don't know much

more than the average person on this list. There are several that

know becoup more than I can cram in my chemo brain. I'm happy that

several in the group find these posts useful enough to bring the

information to their doctors. I went for so many years not knowing

anything because my doctor didn't tell me anything and it took years

to learn that I had to do my own research and be my own advocate if

I was to be able to find out the latest news and where the trials

were, so I'm happy to share with anyone who is interested. I just

remember what it was like for me for the first few years. I hate to

see anyone in the dark about CML. Now they think I am outspoken.

When you don't know anything, you don't know what questions to ask.

> I had a big falling out with my local oncologist, not in words

so much, but in being ignored after I went to MDACC. If I had not

followed my instincts, I wouldn't be here, I am convinced of that,

because no other patient in that office with CML has survived as long

as I have. Now he calls me his miracle patient. Baloney, he had

nothing to do with it. He's Irish, so maybe he kissed the blarney

stone. LOL (I did, can't you tell?)

> For the longest time, I was treated as a second class

citizen. My goodness, if you have cancer and the people in the

office are lucky enough to have a nice job, why in the world would

they want to treat people so shabbily? I would be glad to trade

places with them if it was possible. I came for my CBC one day and

the lights were turned off. I asked if they had paid their electric

bill and they said it was because the receptionist had a migrane. I

think they finally figured out that she was ignoring the patients and

kept her back turned so you couldn't get her attention. They finally

got rid of her. Well one down and one more to go and when she is

gone, I will throw myself a party. LOL.

> All good wishes,

> Lottie

>

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