Re: Thanks Everyone! re:Hi Everyone - I NEED YOUR HELP!

[Guest guest]

Hello Everyone,

I wanted to take a moment, on the eve of the LiveSTRONG Summit, to

express my thanks to each and every one of you. Many of you sent

your story, some sent great questions and food for thought, and

you've all been a great encouragement to me. IF YOU HAVEN'T SENT

YOURS and would like to, go to www.carolynshope.org/links and other

info, and download the Faces of CML questionnaire.

You truly have been " wind beneath my wings " as I've prepared for the

event. Thank you for allowing me to carry your voice to the Summit

Beginning tomorrow, you can see " live from the Summit " updates on our

website, www.carolynshope.org. Just click on the " Click here for

LiveSTRONG Summit daily updates " link on the home page. In addition

to the " live feed " there will be daily updates and photographs

If you think of any questions for the Presidential Candidate Town

Hall, please email them to me prior to 4:30 p.m. Central time (GMT -5

during Daylight Savings Time US).

You will not be far from my thoughts.

Greg

Carolyn's son

>

> Several months ago, a listmate (that a " lottie " of us love and

> respect...not mentioning names here ;-)) mentioned the LiveSTRONG

> Summit, happening this July at Ohio State University , Columbus ,

> OH , USA. The LiveSTRONG Summit, a part of the Lance Armstrong

> Foundation, will bring together delegates from across the country

to

> be inspired, empowered and trained to lead community-centered

efforts

> to help make cancer a national priority.

>

> I have been fortunate enough to gain a delegate spot for this

year's

> Summit and want to carry your voice and your stories with me. As

> many of you know, CML has forever impacted my family and we want to

> give back. As a delegate, I will have the opportunity to meet and

> discuss CML specific issues with others in the cancer community;

> bringing CML awareness to the discussions. I NEED YOUR HELP TO

> EFFECTIVELY DO THIS!

>

> Would you consider sharing your story, words of advice, needs, and

> concerns so that I may more adequately represent the real needs

that

> you as a patient, family member, or caregiver face daily? I am in

> the process of creating a document/booklet called " Faces of CML:

> Stories of Courage, Hope, and Inspiration from the Worldwide CML

> Community " and would love to include you and your family. It

doesn't

> matter where you call home; I want to carry your story to this

> event. Please don't hesitate to contact me.

>

> I have provided a questionnaire (Faces of CML Questionnaire) in the

> files section and on our website (www.carolynshope.org) that you

can

> fill out if you'd like to be included in the booklet that I am

> preparing for the Summit . Also, you may email me directly at

> gstephens@... with any comments, ideas, thoughts and

> needs. I respect your opinions and welcome your input.

>

> Thanks,

>

> Greg s

> Mom Carolyn, dx Jan 05, bc 12/06, bc2 03.07

> www.carolynshope.org

>