Re: CML 2yrs

[Guest guest]

Hi,

I am still having tiredness from Gleevec. Right now, I am working

part-time office job. Working 4-5 hours a day. But after work, I

feel pretty exhausted. I sleep 9-10 hours each night since I take

Gleevec at night. I have hard time getting out of bed in the

morning. My head is still tipsy. I have to get up slowly and with a

cup of coffee.

Does anyone work full time (40 hours/week) while on Gleevec? I feel

like it will be too much to handle if I work full time.

>

> Hi,

>

> Yesterday, Aug 12 was my 2nd year anniversary of CML's survivor. I

am

> in PCRU now. And I hope it stays that way.

>

>

>

[Guest guest]

Hi ,

I have been on Gleevac since Dec 2002, I work in the hotel/restaurant industry

and I have pretty much worked full-time since mid 2003. I consider myself to be

very active and keep up with the young ones, ( I " m 56), but every now and then I

just have to take advantage of a morning off and go back to bed and sleep till I

wake, then my batteries are charged and I'm off again. I keep myself very busy

with all sorts of interests and try to keep as busy and as positive as I can and

I find most of the time I don't notice the tiredness. I also find I have to

drink lots of water and that helps with the fatigue as well.

I take my Gleevac in the morning, I don't know if that makes any difference or

not.

Good luck and believe me it does get better.

Liddy

[ ] Re: CML 2yrs

Hi,

I am still having tiredness from Gleevec. Right now, I am working

part-time office job. Working 4-5 hours a day. But after work, I

feel pretty exhausted. I sleep 9-10 hours each night since I take

Gleevec at night. I have hard time getting out of bed in the

morning. My head is still tipsy. I have to get up slowly and with a

cup of coffee.

Does anyone work full time (40 hours/week) while on Gleevec? I feel

like it will be too much to handle if I work full time.

>

> Hi,

>

> Yesterday, Aug 12 was my 2nd year anniversary of CML's survivor. I

am

> in PCRU now. And I hope it stays that way.

>

>

>

[Guest guest]

Everyone is different. I think our reaction to the drug is

different and varied.I was on gleevec 400 mg and had to take a break

for side effects. I switched to tasigna and now am doing SOOOOO

well. I thought I would need to quit work on gleevec, even with a

300 mg dose. So I sympathize with you. I did and still do, teach

40Hour+ work weeks at a high school. I am okay, but tired.

Hang in there. Do that which you can and give up the rest. Your

self care is most important.

Blessings

Barb

ML2 , " cy_butterfly3 " <cy_butterfly3@...> wrote:

>

> Hi,

>

> I am still having tiredness from Gleevec. Right now, I am working

> part-time office job. Working 4-5 hours a day. But after work, I

> feel pretty exhausted. I sleep 9-10 hours each night since I take

> Gleevec at night. I have hard time getting out of bed in the

> morning. My head is still tipsy. I have to get up slowly and

with a

> cup of coffee.

>

> Does anyone work full time (40 hours/week) while on Gleevec? I

feel

> like it will be too much to handle if I work full time.

>

>

>

> --- In , " cy_butterfly3 " <cy_butterfly3@>

wrote:

> >

> > Hi,

> >

> > Yesterday, Aug 12 was my 2nd year anniversary of CML's

survivor. I

> am

> > in PCRU now. And I hope it stays that way.

> >

> >

> >

>

[Guest guest]

:

That is great, three cheers to you!

With the warmest regards,

Matt

CML of Florida

Dx January of 2005

Gleevec March of 2005

Tasigna November of 2007

Number 1078 in the Esteemed Zavie Zero Club

In a message dated 8/14/2008 7:57:12 A.M. Eastern Daylight Time,

awristen1@... writes:

Hello ,

Congratulations on your 2nd year cancerversary with many more to come

Anita

[ ] CML 2yrs

Hi,

Yesterday, Aug 12 was my 2nd year anniversary of CML's survivor. I am

in PCRU now. And I hope it stays that way.

[Non-text portions of this message have been removed]

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[Guest guest]

,

I am almost a year into DX. I had my spleen removed Aug. 13th 2007. It had

ruptured. (From toooooo many bad white blood cells it was trying to filter.)

So, although I don't remember what date I started Gleevec, I consider Aug.

13th to be my cancerversary.

I too am tired. I tried taking my Gleevec in the morning - for a few days -

but that made for bad days. I am better taking it a night and sleeping

through the " yucky " feeling. I need 9-10 hours of sleep too. I work, but I

am a consultant, so usually I make my own hours. You can bet that I try not

to make appointments until 10 am!

I find that I have to pace myself. I can't expect to do 100 things in the

same day anymore. I am hoping to take my kids to the amusement park yet this

summer. I am glad they are old enough to go by themselves for awhile...

because I am going to need to just SIT and possibly even nap in the middle

of the day! Ha- I'm just exhausted thinking about it! What does that say?

When we had relatives come, we went to a nearby tourist town. I had my kid

push me in a wheelchair while we were at the giant store, so that I would

save my energy for walking around town. It worked. I made it through the

day!

I am sick right now though. Major sore throat. That is why I am up at 4:30

am. Ugh. Did not know that 4:30 was an AM hour. I usually sleep through

this side of the clock!

Tammy

_____

From: [mailto: ] On Behalf Of

cy_butterfly3

Sent: Wednesday, August 13, 2008 10:26 PM

Subject: [ ] Re: CML 2yrs

Hi,

I am still having tiredness from Gleevec. Right now, I am working

part-time office job. Working 4-5 hours a day. But after work, I

feel pretty exhausted. I sleep 9-10 hours each night since I take

Gleevec at night. I have hard time getting out of bed in the

morning. My head is still tipsy. I have to get up slowly and with a

cup of coffee.

Does anyone work full time (40 hours/week) while on Gleevec? I feel

like it will be too much to handle if I work full time.

>

> Hi,

>

> Yesterday, Aug 12 was my 2nd year anniversary of CML's survivor. I

am

> in PCRU now. And I hope it stays that way.

>

>

>

[Guest guest]

Hello ,

Congratulations on your 2nd year cancerversary with many many more to come

Anita

[ ] CML 2yrs

Hi,

Yesterday, Aug 12 was my 2nd year anniversary of CML's survivor. I am

in PCRU now. And I hope it stays that way.

[Guest guest]

Me too, . We have much to be thankful for, don't we?

anita <awristen1@...> wrote: Hello ,

Congratulations on your 2nd year cancerversary with many many more to come

Anita

[ ] CML 2yrs

Hi,

Yesterday, Aug 12 was my 2nd year anniversary of CML's survivor. I am

in PCRU now. And I hope it stays that way.

[Guest guest]

Congrats !

Rock on girl! Enjoy celebrating!

Sent from my Verizon Wireless BlackBerry

Re: [ ] CML 2yrs

Me too, . We have much to be thankful for, don't we?

anita <awristen1@...> wrote: Hello ,

Congratulations on your 2nd year cancerversary with many many more to come

Anita

[ ] CML 2yrs

Hi,

Yesterday, Aug 12 was my 2nd year anniversary of CML's survivor. I am

in PCRU now. And I hope it stays that way.

[Guest guest]

Thank you all for your kind words and encouragement.

:-)

Hello ,

> Congratulations on your 2nd year cancerversary with many many more

to come

> Anita

>

> [ ] CML 2yrs

>

> Hi,

>

> Yesterday, Aug 12 was my 2nd year anniversary of CML's survivor. I

am

> in PCRU now. And I hope it stays that way.

>

>

>

>

[Guest guest]

>

> Hi,

>

> Yesterday, Aug 12 was my 2nd year anniversary of CML's survivor. I

am

> in PCRU now. And I hope it stays that way.

>

>

>

Hi , congratulations of your 2nd cancerversary. Know that the

best is yet to come. You will have many more years of productivity to

enjoy life. You will be able to do nearly everything you did before,

except for interruptions to get your regularly scheduled CBC's and

doctor visits. It's all important that you read and understand your

restults and bring anything you question to your doctor's attention.

A veteran in the CML army,

Lottie

[Guest guest]

---

Hello ,

Congratulations of your 2nd cancerversary, and being PCRU.

Sorry to hear you feel so tired on Glivec, I am one of the lucky ones

I only have mild side effects. I am usually in bed by 9.30pm, feeling

pretty tired by then. Puffy eyes and eyebleeds are my worst problem

from Glivec. I take 400mg morning and 200mg at night. If anything I

have trouble sleeping, keep on waking up all the time. I'm not sure

if this is due to glivec or not.

Take care

Sheryl

In , " cy_butterfly3 " <cy_butterfly3@...>

wrote:

>

> Hi,

>

> I am still having tiredness from Gleevec. Right now, I am working

> part-time office job. Working 4-5 hours a day. But after work, I

> feel pretty exhausted. I sleep 9-10 hours each night since I take

> Gleevec at night. I have hard time getting out of bed in the

> morning. My head is still tipsy. I have to get up slowly and with

a

> cup of coffee.

>

> Does anyone work full time (40 hours/week) while on Gleevec? I

feel

> like it will be too much to handle if I work full time.

>

>

>

>

> >

> > Hi,

> >

> > Yesterday, Aug 12 was my 2nd year anniversary of CML's survivor.

I

> am

> > in PCRU now. And I hope it stays that way.

> >

> >

> >

>

[Guest guest]

Dear Friends,

It's funny, my one year anniversary was on July 17th and I did

not celebrate or really even discuss it with anyone besides my

husband. I felt like it was bitter sweet to even acknowledge the

day. I think every day is a celebration since we were diagnosed just

because we have a wealth of treatment options that CMLers did not

have years ago and that other cancer patients simply do not have.

Having said that, maybe one day I will figure out how I want to spend

that day, in quiet reflection or down and out party mode. In any

case, congratulations, , may you have many, many, more

anniversaries.

Love,

NYC

> >

> > Hi,

> >

> > I am still having tiredness from Gleevec. Right now, I am

working

> > part-time office job. Working 4-5 hours a day. But after work,

I

> > feel pretty exhausted. I sleep 9-10 hours each night since I

take

> > Gleevec at night. I have hard time getting out of bed in the

> > morning. My head is still tipsy. I have to get up slowly and

with

> a

> > cup of coffee.

> >

> > Does anyone work full time (40 hours/week) while on Gleevec? I

> feel

> > like it will be too much to handle if I work full time.

> >

> >

> >

> > --- In , " cy_butterfly3 " <cy_butterfly3@>

wrote:

> > >

> > > Hi,

> > >

> > > Yesterday, Aug 12 was my 2nd year anniversary of CML's

survivor.

> I

> > am

> > > in PCRU now. And I hope it stays that way.

> > >

> > >

> > >

> >

>

[Guest guest]

Congrats , May you stay well always. God Bless ; Eva

From: cy_butterfly3

Sent: Wednesday, August 13, 2008 10:07 PM

Subject: [ ] CML 2yrs

Hi,

Yesterday, Aug 12 was my 2nd year anniversary of CML's survivor. I am

in PCRU now. And I hope it stays that way.