Guest guest Posted March 3, 2002 Report Share Posted March 3, 2002 So far apart and yet so close.This group has a wonderfull feeling about it. newcomers Hello Beverly & . Sorry to see you here, but welcome anyway. gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2002 Report Share Posted March 3, 2002 So far apart and yet so close.This group has a wonderfull feeling about it. newcomers Hello Beverly & . Sorry to see you here, but welcome anyway. gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2008 Report Share Posted August 13, 2008 Dear Newcomers, Welcome to our support group. There isn't much I can add to what our other members have already posted. I celebrated my 12th cancerversary a week after my 80th birthday, just last month. I have been on 7 different kinds of chemo and 5 trials, fixing to go to another as soon as I get back to MDACC in Houston, but that is a few weeks away yet. Set your goals as you would in ordinary circumstances and live your life as though you didn't have CML to the best of your ability. If you need information, we have an army who are ready and able through their own experiences to tell you their story and maybe you will see in the long run that having CML isn't the worst thing that could happen to you. Take Zavie (our elder statesman)'s advice and look for the best doctors you can find. I recommend further that if at all possible, find one who is a specialist in CML. If you think your oncologist is not experienced enough or shows enough interest in your case, move on. Most side effects are manageable and if not, there are an assortment of other drugs which may help you live a more comfortable lifestyle. Many of our members continue to work and travel, keep their hobbies, yet others are unable to keep pace with their former routine. I am privileged to have met some of the finest people online and in person and I have seen some of the best doctors in the country, so in that respect, I consider myself lucky. Some people have never met anyone else with CML, but they belong to support groups and sometimes we talk about things we don't ordinarily discuss with family and friends because they don't understand our emotions and our desire to be more informed about CML. Unfortunately for some, they allow their doctors to make all the decisions and they don't learn enough to be able to converse with their doctors about their real needs. It is not necessary to fill you up with all kinds of information that you will probably forget anyway, but when the time comes and you experience something you have questions about, your CML buddies are dedicated to helping the newcomers. When the pupil is ready, the teacher will appear. Good luck, we are all cheering you on. Blessings, Lottie Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.