RESULTS

[Guest guest]

Ahem....I think my previous message got fumbled somehow.....mt resukts

are finally here from MDACC I have no Philly chromos and my BCR/ABL is

6.9 (was 11.10 in nov 07) someone tell me this is good!!!

Donna xxx

> >

> > I would make sure the person doing the BMB does tons and has

> experience, And must be good experience.

> > I have been fortunate enough to be one person's first time. Before

> I new what questions to ask, Oh boy was that a lasting memory.

> > Good luck

> > Anita

> >

> >

> >

> > [ ] Many thanks and BMB question

> >

> >

> > Hello,

> > First I would like to thank everyone for the positive feedback from

> > my update.I also have a BMB quetion.

> > What can I expect with my 1st BMB? My DR. said nothing by mouth 8

> > hours prior to BMB.I will be knocked out but no tube.It will take

> about

> > 15 minutes.Does this sound right? Anything else I should be

> concerned

> > with?

> > Thank You

> > SharonS

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Hi Donna,

These two results aren't much different at all which means that

you're very stable. I know it looks like a big increase but it

really isn't and it's within the normal limits of the test.

On the other hand, the results could be better so it's very likely

that your doctor will switch you to another drug to get a better

result.

A BMA is a responsible thing to do at this point because it's the

only way your doctor can really see what's going on in your marrow.

If he hasn't mentioned it, I would also ask if you can have a

mutations test done to see if you have a mutation that will respond

better to one drug over another.

Try not to worry. I know it's easier said than done but you do have

options and most of our members who switched drugs found that they

did well on the new drug with fewer side effects.

Take care,

Tracey

-- In , donnaberry99 <no_reply@...> wrote:

>

> Hi Friends,

> I don't post much but I read all your posts every day on my phone I

> haven't just figured out how to post from my phone yet.

> I need some support just got my BCR/ABL results and they were 3.2

up

> from the last 1.9 I know we're not supposed to but I am freaking

> out!!!!!!! My oncologist has already suggested he wants to do a

> BMA...can they just bounce around this much??? I was so hoping to

be

> PCRU

> I need your thought on this

> Donna x

> DX May 24, 2007 on Gleevec since 7/2007

>

>

>

>

>

>

>

>

> >

> > ,

> >

> > At least you know it could be Celiac, and this gluten problem

> plaques most

> > of us in the USA and especially in Europe.

> >

> > Most of our children in the USA who are obese, are children who

> have the

> > gluten problem, yet, most Physician, and or Pediatrics do not

know

> that most

> > of the problems are due to our fatten processed foods in the USA

> products.

> >

> > My daughter and I have had this problem for many years, and I

> purchase

> > many varieties of gluten-free foods, from many gluten areas.

What

> I found

> > utilizing gluten-free bread, pizza, and even pancake mixes, was

> there were

> > too much sugar or salt contained in the mixes, and if you buy

each

> ingredient

> > separately and make your own homemade gluten-free products it is

a

> trial

> > and error, because one needs to add more liquids in each batter,

> and or

> > substitute other things to enable one to consume them.

> >

> > As my daughter gets older, we found that most of the products we

> purchased in a box, was not necessary, as it was no longer

important

> to consume how

> > schools set up pizza parties for every event.

> >

> > I hope you find an answer about Gleevec and if does contain

gluten,

> please

> > email me and let me know? Someone once informed us on this site,

a

> specific place where the ingredients of Gleevec could be found.

> Perhaps you could inquiry this through Tracey and or Lottie.

> >

> > I don't know where you live, however in Canada there is

Kinmicnick

> Foods

> > from Montreal, Canada, which is a gluten-free bakery. In the

past,

> when

> > we would order in the USA we would get it baked fresh and

shipped,

> with all the gluten-free breads donuts, brownies, and even bread

> crumbs, everything was so delicious. They would even set up deals

> where one could do a trial package of several of their specials

cost

> only $25.00. Today, due to many circumstances especially in the

USA

> we currently have no choices but to purchase frozen. Who needs to

> eat frozen? So, we do not purchase them anymore. If you need to

> question more items or foods that you do not know

> > if gluten is contained, start reading your labels upon your

> purchase.

> >

> > The Celiac Foundation has many website for you to look into, as

far

> as finding

> > foods that suit your needs. Everything has gluten contained, so

if

> you have

> > been diagnosis with this, you will find out 2 things, you either

> have it, or

> > you have a sensitivity, which would also state to eliminate any

> white gluten, or

> > anything containing bleached wheat. If you live in an area that

> has a public

> > library, and you are a card holder, there are books in most

public

> library

> > which contains recipes however, if you consume lunch meats all

> contain

> > nitrates and gluten and are very unhealthy to consume.

> >

> > Good luck on your endeavors in receiving your diagnosis from the

> testings,

> > and keep me posted on what is learned.

> >

> > Happiness comes in abundance!

> > Dory Doggie

> >

> >

> >

> >

> >

> > ________________________________

> > From: Orenstein <scrappygirl123@>

> >

> > Sent: Wednesday, February 4, 2009 8:34:30 AM

> > Subject: [ ] CEliac Disease

> >

> >

> > I have tested positive for celiac disease thru a blood test and

> will now

> > have an upper endoscopy next week. Does anyone know if Gleevec

> contains

> > glutens? I have e mailed Dr. Mauro, and am waiting his his

reply.

> I just

> > thought that I woud throw the question out to all of you.

> > --

> >

> >

> >