Guest guest Posted July 27, 2008 Report Share Posted July 27, 2008 Dear Sheryl, Thank you for sharing your story with us. We are a kaleidoscope; we have young and old, some of us living around the globe and some at different stages and on different drugs. Congratulations on being PCRU, that is where everyone wants to plateau and just leave it at that. We welcome the Aussies, we have a few, and they all have a great sense of humor about them. Like me, you were chosen to have all boys; I have 5 sons, 7 grandchildren, 6 great grandchildren, and 1 great great grandson who was born just over a month ago. He gets as much attention as a rock star. I am so sorry that you lost your husband and it is so tragic that he would die of a brain tumor. My brother in law had lymphoma that eventually led to brain tumors and his death. He noticed that he began to forget things and then was unable to remember anything. Unfortunately like sucks sometimes, but all we can do is fight for our survival and do whatever it takes. You certainly did have a high white count. Donna Berry in our group had half a million to contend with. The doctors thought she had AML, so they began chemo immediately. Imagine everyone's shock when they found out she was in chronic stage. She is on Gleevec also, and I had the pleasure of meeting her in Houston on July 7. Donna is originally from England and travels wherever her husband is posted in the U.S. Air Force. I am always highly pleased and priviliged to meet another CMLer in person. I hope you will become a regular contributor, we all learn from each other, as I'm sure your story will be instrumental in lighting a flame in our readers thoughts and reflections. I wish you the best of luck and hope those grandchildren bring you much joy. By belonging to a good support group like ours, we learn so much more about CML than any doctor's office and we find we are not alone, we have many cyber friends who are willing to support us in any situation. We cheer you on, we cry with you and we rejoice at your good news. May you be blessed in your CML journey, to live long and well, Lottie Quote Link to comment Share on other sites More sharing options...
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