CML Hope

[Guest guest]

Dear Group,

After reading 's post about Bob, I thought about her life as a

caregiver and how she had taken such good care of Bob. Bob was finally PCRU

after taking Sprycel, but as Bobby indicated, our bodies take a toll and there

is no guarantee that we won't fall prey to something else. In Bob's case it has

been strokes. Now his body is shutting down. That's why it is so important to

have regular checkups and see a specialist for whatever it is that ails you.

Once I have been diagnosed with something, I look for the best specialist I can

find. As Zazzy suggested, our bodies age much faster, also.

I know has been comforted by all the responses from the group; this is

really a trying time for her. I think of our caregivers and how much support we

get from them, and sometimes our caregivers are the ones who post. I'm sure they

get tired, too, but I never hear my husband complain. There of some of you who

are alone, without caregivers. I have met patients at MDACC who fly alone every

month because their mates have to work and there are some who have to stay there

because they are in a trial, but their husbands or wives have to stay at home

with the children. Yes, Bobby, we are fortunate, we have opportunity and

support. It's a little late to be complaining of my lot in life, I have lived a

full life and I'm grateful for all of it. Some of you have young children and

still have to get on with life. I think those in that group must suffer the most

anxiety, but I say to them to hang in, there are promising new drugs and new

information and data from the trials which which give us more hope and have

every indication that CML will be chronic like diabetes or asthma. Maybe some

day we will have to get one injection or infusion a month. I know that some of

you have traveled and lived in other countries, so they never put a limit on

what they could do, they just went out and did it, whether it was for pleasure

or necessity. NEVER GIVE UP.

Blessings,

Lottie