Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 Hi Everyone, Thanks to all of you who have responded so far. I can't begin to tell you how much I appreciate your participation. Keep those stories coming! Together, we can make a difference! I promise to handle all of your stories with the utmost integrity and know that they will make a huge impact for CML Awareness at the Summit in late July! If you experience difficulties with the form, don't hesitate to send it as a Word document or simply text. There's still plenty of time to submit, but I just wanted to thank you for your reponses thus far. Keep on keepin' on! Greg > > Several months ago, a listmate (that a " lottie " of us love and > respect...not mentioning names here ;-)) mentioned the LiveSTRONG > Summit, happening this July at Ohio State University , Columbus , > OH , USA. The LiveSTRONG Summit, a part of the Lance Armstrong > Foundation, will bring together delegates from across the country to > be inspired, empowered and trained to lead community-centered efforts > to help make cancer a national priority. > > I have been fortunate enough to gain a delegate spot for this year's > Summit and want to carry your voice and your stories with me. As > many of you know, CML has forever impacted my family and we want to > give back. As a delegate, I will have the opportunity to meet and > discuss CML specific issues with others in the cancer community; > bringing CML awareness to the discussions. I NEED YOUR HELP TO > EFFECTIVELY DO THIS! > > Would you consider sharing your story, words of advice, needs, and > concerns so that I may more adequately represent the real needs that > you as a patient, family member, or caregiver face daily? I am in > the process of creating a document/booklet called " Faces of CML: > Stories of Courage, Hope, and Inspiration from the Worldwide CML > Community " and would love to include you and your family. It doesn't > matter where you call home; I want to carry your story to this > event. Please don't hesitate to contact me. > > I have provided a questionnaire (Faces of CML Questionnaire) in the > files section and on our website (www.carolynshope.org) that you can > fill out if you'd like to be included in the booklet that I am > preparing for the Summit . Also, you may email me directly at > gstephens@... with any comments, ideas, thoughts and > needs. I respect your opinions and welcome your input. > > Thanks, > > Greg s > Mom Carolyn, dx Jan 05, bc 12/06, bc2 03.07 > www.carolynshope.org > Quote Link to comment Share on other sites More sharing options...
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