Guest guest Posted September 4, 2008 Report Share Posted September 4, 2008 My name is and I am a 35-year old CML patient. I was dx'd on Nov. 2001. I was on Gleevec until 2005 and became intolerant. I was switched to Sprycel and it worked beautifully. I was PCRU for 2 years. With my doc from OHSU on board, we decided to get pregnant. Things have not gone as well as expected. I am 6 months pregnant and my test results continue to get worse. *1/2003 - .97 (Baseline) 3/2008 - undetectable 6/2008 - .0076 7/2008 - .085 8/2008 - .31 In my last sample, my doctor says they found a mutation. It is not the T315 but a rather new one. He used the term " insertion mutation. " Can anyone shed light on this for me? I don't exactly understand mutations but I need to know what is ahead for us. We are already planning to have the baby early so that I can get back on treatment. I just feel so helpless and my husband is worried sick. Thanks in advance for any information. Quote Link to comment Share on other sites More sharing options...
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