Guest guest Posted September 10, 1999 Report Share Posted September 10, 1999 ---------- From: " Probert " <jpro@...> Donna and Ray <mousepotatoes@...> Subject: Re: rheumatic Got it! Date: Thu, Sep 9, 1999, 10:32 PM Thanks for the encouragement! I was curious, have others had the experience of " herxing " on other antibiotics, when using them for other routine infections? Seems that could be a problem then, too. Jean ---------- >From: " Donna and Ray " <mousepotatoes@...> > " Probert " <jpro@...> >Subject: Re: rheumatic Got it! >Date: Thu, Sep 9, 1999, 9:23 PM > > It probably is the same stuff....the generic. > > Don't forget that you may feel crappy at the start and your labs may get > worse but don't let the doctor panic. Take all the info with you every time > and stay on guard to defend your choice. > > Good for you. > > Donna > Ottawa, Canada > Scleroderma, Jan.95, AP Oct.97 > (My Story) www3.sympatico.ca/mousepotatoes > > rheumatic Got it! > > >>From: " Probert " <jpro@...> >> >>Hi, folks. I saw my sports med doc today, and he prescribed the minocin. He >>said was a bit reluctant at first ( I sent him information about a month >>ago) but the more he thought about it, the more he thought it was worth a >>try. He said he used to prescribe the same drug all the time for kids with >>acne, and they were not suffering nearly as much as I am. >> >>As you may recall, I have reactive arthritis, so the fact that the studies >>have been done on RA worked against me a bit, too. But, neither Celebrex > nor >>Vioxx have been tested on reactive arthritis, and he wanted to get me to > try >>them right away because I don't tolerate the other nsaid's, and was >>essentially untreated for 8 years until they came along. >> >>Incidentally, he said he had tried glucosamine for his own osteoarthritis > of >>the knee, thinking there was probably nothing to it, but found it helped > him >>appreciably. He'd even gotten one of the hot-shot rheumatology researchers >>at Washington University Med. School, here in St. Louis, to give it a > little >>more thought. >> >>I'll let you know how the it goes with the minocin. >> >>Jean >> >>P.S. I called around and found the Lederle generic. It wasn't available at >>my first choice pharmacy, but I found it only a few blocks farther away. It >>cost about 40% more than the Schien generic, but only abut one third the >>price of the Minocin name brand. The pharmacist said the name brand and >>generic from Lederle looked like the exact same capsule. >> >>--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 1999 Report Share Posted September 10, 1999 Actually, I would be interested, but don't want you to go to excessive effort. So, if it is not too much trouble, please do. No hurry. The reason I asked that question is that I have had a few courses of antibiotics recently, with no flare of my joint symptoms. In fact, a week's worth of Cipro or Septra will give me noticeable relief, but it does not last much beyond the drug therapy. So. I'm hopeful I will not have a herx reaction. Not everyone does, right? Jean ---------- >From: " Donna and Ray " <mousepotatoes@...> > " Probert " <jpro@...> >Subject: Re: rheumatic Got it! >Date: Fri, Sep 10, 1999, 8:12 AM > > Herxing is a normal part of any antibiotic treatment. > > There is an interesting site explaining this....do you want me to dig it up > for you? > > > rheumatic Got it! >>> >>> >>>>From: " Probert " <jpro@...> >>>> >>>>Hi, folks. I saw my sports med doc today, and he prescribed the minocin. > He >>>>said was a bit reluctant at first ( I sent him information about a month >>>>ago) but the more he thought about it, the more he thought it was worth a >>>>try. He said he used to prescribe the same drug all the time for kids > with >>>>acne, and they were not suffering nearly as much as I am. >>>> >>>>As you may recall, I have reactive arthritis, so the fact that the > studies >>>>have been done on RA worked against me a bit, too. But, neither Celebrex >>> nor >>>>Vioxx have been tested on reactive arthritis, and he wanted to get me to >>> try >>>>them right away because I don't tolerate the other nsaid's, and was >>>>essentially untreated for 8 years until they came along. >>>> >>>>Incidentally, he said he had tried glucosamine for his own osteoarthritis >>> of >>>>the knee, thinking there was probably nothing to it, but found it helped >>> him >>>>appreciably. He'd even gotten one of the hot-shot rheumatology > researchers >>>>at Washington University Med. School, here in St. Louis, to give it a >>> little >>>>more thought. >>>> >>>>I'll let you know how the it goes with the minocin. >>>> >>>>Jean >>>> >>>>P.S. I called around and found the Lederle generic. It wasn't available > at >>>>my first choice pharmacy, but I found it only a few blocks farther away. > It >>>>cost about 40% more than the Schien generic, but only abut one third the >>>>price of the Minocin name brand. The pharmacist said the name brand and >>>>generic from Lederle looked like the exact same capsule. >>>> >>>>--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 1999 Report Share Posted September 12, 1999 > From: " Probert " <jpro@...> > > > The reason I asked that question is that I have had a few courses of > antibiotics recently, with no flare of my joint symptoms. In fact, a week's > worth of Cipro or Septra will give me noticeable relief, but it does not > last much beyond the drug therapy. a Carnes replies: Hi, I am jumping in the middle of someone else's coversation, but just want to respond to the above based on my experience. If you have a mycoplasma infection, a week of Cipro would just be treating the tip of the iceberg. IT would take many months of cipro to make a dent in the infection. The fact that you show some improvement in symptoms in a week is an excellent sign. Why don't you take the antibiotic longer? > > So. I'm hopeful I will not have a herx reaction. Not everyone does, right? a C replies: No, not everyone does. I have never had one. I just slowly improve. But I still relapse when I stop the antibiotic even after 3 years. I have been on Zithromax most of that time. I am now maintaining on half the dose I started with, but only with vitamins and supplements and rest. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 1999 Report Share Posted September 12, 1999 a: The reasons I am NOT trying Cipro for arthritis at this time are: (1) Expense, especially for a long-term course of treatment (2) Track record of safety for minocycline in long-term use for other conditions (my doc is a sports med physician, with a background in general practice, and has used it for acne with patients in the past) (3) Recent research trials have been with minocycline (MIRA and others) and postulated efficacy is due to other specific properties of minocycline, esp. possible immuno-modulatory and anti-inflammatory effects besides or in addition to anti-microbial effects (4) Arthritis Foundation's qualified endorsement of minocycline as a DMARD (5) Experience that other antibiotics in addition to Cipro help me ---------- >From: a Carnes <paulajeanne@...> >Probert <jpro@...> >Subject: Re: rheumatic Got it! >Date: Sun, Sep 12, 1999, 1:35 PM > > this sounds good and logical. My guess would be you won't herx since > you didn't. The only question I have is why not keep taking Cipro? It is > on Nicolson's list for mycoplasma, and you had a good response to it. See > what your doctor thinks. Nicolson's recommended dose for Cipro is > 1000-1500mg per day, that is 2 or 3 pills at 500mg each a day and can be > taken with or without food.Stay out of the sun with this one. Also, this > does not cross the blood brain barrier as well, thus the high dose needed. > Minocyn does cross better, so if it works it is probably cheaper and more > effective. > Keep me posted. > a C. > Re: rheumatic Got it! >> >Date: Sat, Sep 11, 1999, 9:14 PM >> > >> >> > From: a Carnes <paulajeanne@...> >> > >> > >> > >> > >> >> From: " Probert " <jpro@...> >> >> >> >> >> >> The reason I asked that question is that I have had a few courses of >> >> antibiotics recently, with no flare of my joint symptoms. In fact, a >> > week's >> >> worth of Cipro or Septra will give me noticeable relief, but it does > not >> >> last much beyond the drug therapy. >> > >> > a Carnes replies: >> > Hi, I am jumping in the middle of someone else's coversation, but just > want >> > to respond to the above based on my experience. If you have a > mycoplasma >> > infection, a week of Cipro would just be treating the tip of the > iceberg. >> > IT would take many months of cipro to make a dent in the infection. The >> > fact that you show some improvement in symptoms in a week is an > excellent >> > sign. Why don't you take the antibiotic longer? >> >> >> >> So. I'm hopeful I will not have a herx reaction. Not everyone does, > right? >> > >> > a C replies: >> > No, not everyone does. I have never had one. I just slowly improve. > But >> > I still relapse when I stop the antibiotic even after 3 years. I have > been >> > on Zithromax most of that time. I am now maintaining on half the dose I >> > started with, but only with vitamins and supplements and rest. >> > >> > >> > >> > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 1999 Report Share Posted September 12, 1999 What must one do to get off this list? I've tried and tried. PLEASE TAKE ME OF YOUR LIST. OTHERWISE IM GOING TO START FORWARDING EVERYTHING BACK TO EVERYONE EVER DAY. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2001 Report Share Posted August 10, 2001 PAULA! GREAT NEWS! I am so happy for you! WOOO HOOOO!!! in Ark Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2001 Report Share Posted August 10, 2001 Congratulations a!!!! Sounds like a good job. Just do your best, I'm sure you will be an asset to your employer. Good luck on your new job. Let us know how you like it. Bonded by our experience, strength and hope Rhonda MGB - 11/30/00 279/203/1?? > Hi all! I just wanted you all to know I got the better job! Pays more, straight days, no weekends or holidays!! That means.. I'm coming to all the events!! There was really nothing I liked about the airport job except possibly the travel, but that is so little compared to having to do the job day in day out.. or should I say night in night out plus weekends and holidays. If i didn't have a life, of course, but I DO have a life!! I am so happy!! NOw all I have to do is prove myself on the job! Oh, it is an Orderly position at Fairfax Surgical Center. Not a hard job, not AS labor intensive as the airport, but will keep me on my toes. > > aW > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2001 Report Share Posted August 11, 2001 a, I am glad to hear about the new job. I know you will be happy, especially being able to make the picnic. I hope to see you there with our other MGB group. I have gallstones to take care of, my appt. is the 30th at 10:15, Pray for me to still make it there. I hear it is easy surgery. SEE you hopefully, Overman 2/5/01 245/171/140? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2001 Report Share Posted August 11, 2001 Okie, you are on my prayer list! aW Re: Got It! a, I am glad to hear about the new job. I know you will be happy, especially being able to make the picnic. I hope to see you there with our other MGB group. I have gallstones to take care of, my appt. is the 30th at 10:15, Pray for me to still make it there. I hear it is easy surgery. SEE you hopefully, Overman 2/5/01 245/171/140? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2008 Report Share Posted April 15, 2008 Congratulations Crystal! Great to hear good news! Ann -- [ ] Got it! I got my disability approval today. I'm amazed. I have no idea what the doctors said but I'm glad. Just had to share my good news. Crystal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2008 Report Share Posted August 15, 2008 Hi All, Thanks for responding to my No One Posting? message. We're all back in touch. Think, in retrospect that it was just a quiet day and no one WAS posting! Cheers! Quote Link to comment Share on other sites More sharing options...
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