Alice and Steph

[Guest guest]

I was on 400 mg gleevec for 5 years. I am now on tasigna. However in

regard to the muscle, joint and bone pain, it was awful for the

beginning. Eventually what I found was that it cycled then, and

would be gone for a while only to return after about 3 months. It

did seem bearable after a while. I know of folks who eventually had

it all settle down and remain good. Myself, that, along with other

side effects, made it necessary for me to switch to tasigna. I have

NO side effects. It is amazing. It may be wise to stay on gleevec

to see if you are one of the ones that begin to tolerate the side

effects. Many do. And if not, you always have the option to change

drugs.

Isn't it wonderful that what used to be a life threateneing disease,

now have drug protocol options? My, 2008 is not a bad time to have

leukemia eh? We are all so very lucky to have choices.

Blessings and good luck.

Barb

> >

> > Hi everyone! I hope you all enjoyed the holiday. Well, I've

been on

> > Gleevec for 10 days now, and boy am I feeling the side effects!!

I had

> > nausea from the word go, but for the past few days I've been

having

> > muscle/joint pain behind my knees and now in my calves. And

today I

> > look like the Michelin marshmallow man with my puffy eyes and

swollen

> > ankles. Geez! All the things I read say that the side

effects will

> > go away " with time. " Well, how long is that " time " ?? Months?

Years?

> > Can anyone share how long they experienced all of these side

effects at

> > once and when/if they will ever go away? Thanks, guys! Sorry to

be

> > complaining!

> >

> > Alice

> >

>