Re: Re: Molecular Remission on Sprycel

June 14, 2008

Hi Carl, good for you! It took me 10 months to reach CCR on Sprycel, that was

in 2005. I have since had to stop it, but I sure did love it, no side effects

to speak of, until last year. Now I am on XL228, and in CCR in 4 weeks! Just 3

infusions. I laugh at my doctors when they ask if I am fatiqued. I am 78, of

course I'm fatigued. Isn't alive good enough for them? Ha Ha!

Have a great day, Bobby

M <johndee_54@...> wrote:

Hi Carl

It is good to hear things are going better. You deserve a break and

it appears by your numbers that is what is happening.

Go ahead and blame the meds for your side effects. You are to young

to blame nature, so use the drugs as long as you can.

Take care,

>

> Dear Group:

> & nbsp;

> After three months on Sprycel I have reached molecular remission,

PCR Zero, and FISH Zero.

> & nbsp;

> I had to switch from Gleevec due to acquiring the G250E mutation.

> & nbsp;

> So far no really serious side effects. Some side effects I do have

include fatigue and inability to concentrate to a certain extent.

> & nbsp;

> These are commonly reported side effects of Gleevec as well.

> & nbsp;

> I turn 61 next month, so maybe it's not totally fair to blame the

meds for everything.

> & nbsp;

> How is everyone else on Sprycel doing?

> & nbsp;

> Best Regards,

> Carl

> & nbsp;

> town, PA, USA

>

> & nbsp;

>

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