Guest guest Posted June 29, 2008 Report Share Posted June 29, 2008 Dear Cogan, That is a great idea. There are several in the group who have been diagnosed early on and of course Skip is the champ with 32+ years. Maybe Greg would like to devote a chapter on how we survived and what drugs we were on. There are people who have survived 20 years and don't belong to any support groups, they feel they are better off not talking about it. Who knows, maybe they don't feel the need to belong to a support group because they managed to survive on courage and hope. That's another story. I have a friend who survived breast cancer and pulmonary embolism twice. She refuses to join a support group or talk about it. She says that is in her past and she never thinks about it, if she would, she's afraid it might come back. She doesn't believe in support groups because she thinks we are obsessive. She asks how I am and when I tell her, she changes the subject. She is 87, but I still think she is playing Russian roulette. She didn't see the doctor on a regular basis or to have yearly mamograms and admits it is her fault. She doesn't believe in going to specialists, her Internal Medicine doctor has been practicing over 50 years and she wouldn't think of going to anyone else. Then there is the " other group - us " who want to know everything. Had I followed the advice of the local oncologist and stayed in the first trial I was in, I don't think I would be here today. There have been a lot of twists and turns since I was diagnosed and I have to give a lot of the credit to the people on the lists who were willing to share their journeys with me. Ignorance is not bliss. I know now that CML is not a death sentence. Yes, we lost some of our warriors and we grieve for them and their families, but who knows what went wrong that the same drugs that kept us going didn't work for them. Maybe some time in the future, we could have a memorial archive with all the names of the ones we lost and a brief biography, they all mattered and it would be nice to remember them. They were the real pioneers. Blessings, Lottie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2008 Report Share Posted June 29, 2008 Lottie What a nice idea to recognise those who came before us. You are inspirational you know!! By the way - had a shrimp (casserole) and prawn wok last night. Everytime I see shrimp I now think of you and Jimmy and your great recipe. Sue xx > > Dear Cogan, > That is a great idea. There are several in the group who have been diagnosed early on and of course Skip is the champ with 32+ years. Maybe Greg would like to devote a chapter on how we survived and what drugs we were on. There are people who have survived 20 years and don't belong to any support groups, they feel they are better off not talking about it. Who knows, maybe they don't feel the need to belong to a support group because they managed to survive on courage and hope. That's another story. > I have a friend who survived breast cancer and pulmonary embolism twice. She refuses to join a support group or talk about it. She says that is in her past and she never thinks about it, if she would, she's afraid it might come back. She doesn't believe in support groups because she thinks we are obsessive. She asks how I am and when I tell her, she changes the subject. She is 87, but I still think she is playing Russian roulette. She didn't see the doctor on a regular basis or to have yearly mamograms and admits it is her fault. She doesn't believe in going to specialists, her Internal Medicine doctor has been practicing over 50 years and she wouldn't think of going to anyone else. > Then there is the " other group - us " who want to know everything. Had I followed the advice of the local oncologist and stayed in the first trial I was in, I don't think I would be here today. There have been a lot of twists and turns since I was diagnosed and I have to give a lot of the credit to the people on the lists who were willing to share their journeys with me. Ignorance is not bliss. I know now that CML is not a death sentence. Yes, we lost some of our warriors and we grieve for them and their families, but who knows what went wrong that the same drugs that kept us going didn't work for them. Maybe some time in the future, we could have a memorial archive with all the names of the ones we lost and a brief biography, they all mattered and it would be nice to remember them. They were the real pioneers. > Blessings, > Lottie > > Quote Link to comment Share on other sites More sharing options...
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