Re: Jeanie not doing good on Tasigna

[Guest guest]

Hi Barb,

Thanks for the e-mail.

I'm not doing good on Tasigna.

I developed a bad abdominal pain on the second day of treatment.

I thought it was something I had eaten, but it just got worse.

I'll see my onc Monday and see what he says.

Blessings,

Jeanie<3

[ ] Jeanie

How are you doing the first week down on Tasigna?

Barb

[Guest guest]

Hi Jeanie,

I am another Tasigna buddy. I have been on it for over 6 months and doing

well.

Maybe your stomach pain is something else. I sure hope so.

what does did they start you on??

Let me know.

Thinking about you

Aloha Sharon

_____

From: [mailto: ] On Behalf Of Jeanie

Blanton

Sent: Saturday, September 27, 2008 10:25 AM

Subject: Re: [ ] Jeanie not doing good on Tasigna

Hi Barb,

Thanks for the e-mail.

I'm not doing good on Tasigna.

I developed a bad abdominal pain on the second day of treatment.

I thought it was something I had eaten, but it just got worse.

I'll see my onc Monday and see what he says.

Blessings,

Jeanie<3

[ ] Jeanie

How are you doing the first week down on Tasigna?

Barb

[Guest guest]

Jeanie,

Did your ONC do an EKG prior to beginning and is he monitoring your

bloodwork? What dosage did he start you on?

Are you taking it on an empty stomach ( no food 2 hours before or 1 hour

after)?

I could NOT take the 800 dosage. I had to break and begin again at 400.

It is working well and at this level, I don't have many side effects

besides water retention. What does the pain feel like? I don't want

to scare you, but I have heard of folks who start this at a high dosage,

and they have some ill effects. If it gets to the point you can't stand

it, ( or maybe before) I would go to an urgent care..... don't wait....

just in case.

Let me know how you are doing okay?

Peace

Barb

>

>

>

> Hi Barb,

> Thanks for the e-mail.

> I'm not doing good on Tasigna.

> I developed a bad abdominal pain on the second day of treatment.

> I thought it was something I had eaten, but it just got worse.

> I'll see my onc Monday and see what he says.

> Blessings,

> Jeanie<3

>

> [ ] Jeanie

>

>

> How are you doing the first week down on Tasigna?

> Barb

>

>

>

>

>

>

>

[Guest guest]

Hello Jeanie and group, i developed extreme stomach pain on day 4 of tasigna and

was hospitalized on day 6th. I had critically high pancreatic and liver enzyme

levels. So be sure not to " try and tough it out " . My local onc said you can die

from elevated pancreas levels very easily. Also thanks to those who responded to

my cry for help. I am looking into clinical trials all around the country. Just

wish they were closer to home. (central illinois)..Debra

[ ] Jeanie

How are you doing the first week down on Tasigna?

Barb

[Guest guest]

Hi Barb and thanks for the input.

Yes, I had a baseline EKG done and will get one every week.

It's only been 6 days now and they will do blood test tomorrow.

The pain is bad, so I will have to have this checked out.

It could meds related or something else.

Advil seems to help it, but not anti acids.

I don't want to quit the meds, but will see what the onc says.

Thanks again,

Jeanie<3

In a message dated 9/27/2008 1:58:05 P.M. Pacific Daylight Time,

barbarastanley@... writes:

Jeanie,

Did your ONC do an EKG prior to beginning and is he monitoring your

bloodwork? What dosage did he start you on?

Are you taking it on an empty stomach ( no food 2 hours before or 1 hour

after)?

I could NOT take the 800 dosage. I had to break and begin again at 400.

It is working well and at this level, I don't have many side effects

besides water retention. What does the pain feel like? I don't want

to scare you, but I have heard of folks who start this at a high dosage,

and they have some ill effects. If it gets to the point you can't stand

it, ( or maybe before) I would go to an urgent care..... don't wait....

just in case.

Let me know how you are doing okay?

Peace

Barb

**************Looking for simple solutions to your real-life financial

challenges? Check out WalletPop for the latest news and information, tips and

calculators. (http://www.walletpop.com/?NCID=emlcntuswall00000001)

[Guest guest]

Thanks Debra; wow! does that mean I might have to go off Tasigna?

They will test my blood tomorrow; hope they find something that will help

the pain.

Blessings,

Jeanie<3

In a message dated 9/27/2008 9:13:57 P.M. Pacific Daylight Time,

debramoretz@... writes:

Hello Jeanie and group, i developed extreme stomach pain on day 4 of tasigna

and was hospitalized on day 6th. I had critically high pancreatic and liver

enzyme levels. So be sure not to " try and tough it out " . My local onc said

you can die from elevated pancreas levels very easily. Also thanks to those who

responded to my cry for help. I am looking into clinical trials all around

the country. Just wish they were closer to home. (central illinois)..Debra

**************Looking for simple solutions to your real-life financial

challenges? Check out WalletPop for the latest news and information, tips and

calculators. (http://www.walletpop.com/?NCID=emlcntuswall00000001)

[Guest guest]

Jeanie

If it gets worse - don't hesitate to do the hospital today. Pancreattis

can cause not only death but permanent damage to the pancreas. Please,

just don't wait if you doubt anything.

I am posting the info on panceatitis at the Mayo clinic here. Read and

regard. I hope you are good until you see your onc tomorrow. Please

let us know how you are doing. I am worried about you.

http://www.mayoclinic.com/health/pancreatitis/DS00371/DSECTION=symptoms

<http://www.mayoclinic.com/health/pancreatitis/DS00371/DSECTION=symptoms\

>

Love

Barb

>

>

> Hi Barb and thanks for the input.

> Yes, I had a baseline EKG done and will get one every week.

> It's only been 6 days now and they will do blood test tomorrow.

> The pain is bad, so I will have to have this checked out.

> It could meds related or something else.

> Advil seems to help it, but not anti acids.

> I don't want to quit the meds, but will see what the onc says.

> Thanks again,

> Jeanie<3

> In a message dated 9/27/2008 1:58:05 P.M. Pacific Daylight Time,

> barbarastanley@... writes:

>

> Jeanie,

>

> Did your ONC do an EKG prior to beginning and is he monitoring your

> bloodwork? What dosage did he start you on?

>

> Are you taking it on an empty stomach ( no food 2 hours before or 1

hour

> after)?

> I could NOT take the 800 dosage. I had to break and begin again at

400.

> It is working well and at this level, I don't have many side effects

> besides water retention. What does the pain feel like? I don't want

> to scare you, but I have heard of folks who start this at a high

dosage,

> and they have some ill effects. If it gets to the point you can't

stand

> it, ( or maybe before) I would go to an urgent care..... don't

wait....

> just in case.

>

> Let me know how you are doing okay?

> Peace

>

> Barb

>

>

>

>

>

>

> **************Looking for simple solutions to your real-life financial

> challenges? Check out WalletPop for the latest news and information,

tips and

> calculators. (http://www.walletpop.com/?NCID=emlcntuswall00000001)

>

>

>