RE: I'm So Confused???

[Guest guest]

,

While I ws on sprycel I had bouts like that and actually stopped Sprycell

twice for a week. Usually everything went back to normal for a few months

and then it would start again so I wuld stop again for a week. The ONC said

I had to be off for a full week. It never affected my PCR results. But then

after three years I got PE so they put me on Tasigna. I have no side affects

except weight gain. But I know I gained weight because I eat so much. So

actually what it does is increase my appitite. But other then that I would

not even know I had CML and I do forget sometimes. Maybe you need to switch

your medication. Talk to y our Doctor about it. Everyone is different but I

believe you need to try to live the best quality of life you can get. I do

not take any other medications at all. I hardly even take a pain pil

(ibrophryn) . I think some of that may be my good luck with this medication.

Good luck to you.

Sharon T

_____

From: [mailto: ] On Behalf Of

Sent: Wednesday, June 04, 2008 10:49 PM

Subject: [ ] I'm So Confused???

Okay I posted yesterday that I was getting over Salmonella. But now I

am wondering if it wasnt just sprycel????? Let me explain, I had

stopped taking sprycel for about a week because of how awful it was

making me feel, actually I am on several meds right now and could not

tell which one was making me sick, sooo, I stopped all of them for a

week just to see and was adding them back one at a time. Well, night

before last I had taken my sprycel, and it was a couple of hours later

that I started getting reeeeaaaallly sick and then the diarrhea

started. Well it was also about 7 1/2 hours since I had eaten the

ribs. So I " assumed " it was the food not the drug. I was very sick all

day yesterday with several runs to the bathroom, and just so you will

know how sick I was, I stayed in bed ALL day, I don't care how sick I

get I usually stay in the living room with Dale and the kids. So since

I was so sick yesterday I left the sprycel off last night because I

didnt want to add the nausea from that to whatever else was going on.

This morning I woke up feeling pretty good just really tired from the

phenergen I had taken all day yesterday and the night before to stave

off nausea. So I went back to bed for a couple of hours but got up and

did the errands I needed to do. I overdid it and felt pretty bad by

the time I got home, BUT, my bowells had started to ease up and I had

a fairly normal BM (sorry know it's gross to talk about that) I was

starving and ate pretty good. All n All it seemed to be about over,

sooo tonight I took my sprycel, guess what??? Diarrhea!!! Again and

nausea.....soooo did I really have salmonella or was it just side

effects from the sprycel, OOOR since my stomach and bowells were

already in an uproar did the sprycel just add to it?? It all confuses

me sometimes. I am never quite sure when I am just having side effects

or if I am having stomach bugs. If it is bugs then I am catching them

frequently. If not then it seems that when I take a break from spyrcel

(I have taken a couple since the first of the year for various

reasons) that when I start it up again the side effects are worse then

the last time??? I hope what I have said makes sense and doesnt

confuse ya'll the way it does me. I am so tired of all the drugs, I

just cant hardly stand it sometimes.

Hugs,