Thnx Lottie! LiveSTRONG Summit photos in Carolyn's Family - Re: Carolyn's Hope

[Guest guest]

Hi everyone and thanks Lottie. I have just posted some photos from

the Livestrong Summit. Some of you may recall that Lottie suggested

that we try to get a delegate spot. I applied and was fortunate

enought to get a spot. The Summit provided so many learning

opportunities, as well as a chance to meet and talk with other

advocates from across the country. Thanks to all of you for your

support, encouragement, and emails both now and during the Summit.

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> I've been checking and looking for your picture, Greg. Maybe I

have one more rock to look under. LOL. Thank you for keeping us

posted on your lovely web site. Gosh, Carolyn would have been proud

to see everything that is going on posted on her web site. You are

not only keeping her memory alive, but helping others in their

struggles. She is certainly someone we would want to emulate. There

ae some unsung heroes out there who really go out of their way to

bring attention to CML and how close they are to finding a real

cure.

> Everyone, please read the rest of this post, make note of it

and then do something to let Sen. Rchard Barr know what we think of

his statements.

> Dorothy Emery went to congress to testify and ask for more

funding for National Institutes of Health and National Cancer

Institute. Mr. Personality himself told her point blank that " we

can't afford to be keeping people with cancer alive. It's costing

the taxpayers too much money. " Imagine the audicity of a man in

public office telling a woman with cancer something as sarcastic and

mean spirited as that. His own mother died of cancer.

> Here is more of what he said: " We asked him about that and he

backpedaled. He mumbled something about signing that earlier but now

he thinks we shouldn't give so much to researchers. He gave a really

stupid reason--he thought if we gave them money they would never find

cures as they would just want to keep getting the money! I know a

lot of researchers and there's not one I know who is doing it for the

money. He talked about them like they were a bunch of WELFARE

QUEENS. I told him that all the researchers I know would love to

find a cure and it drives them on. There is no danger that they are

going to run out of research projects--that's just a dumb idea. "

This transpired in late June or early July of 2008. Three cheers for

Dorothy for standing up to this man. Maybe he's in the wrong

profession, maybe he should be an undertaker.

> Here's some information on him and if you like what he said,

write and congratulate him, if not, tell him what you really think

about him. He is now in the senate and you are urged to send him a

letter telling him how you feel about his statement. Burr

missed 254 (4%) of 6828 votes since Jan 4, 1995. You can't email that

cutthroat from this web site, but there are some phone numbers you

can call and leave a message about what you think about his

statement. He even offers tours of his office. LOL One of the sites

will have his address, also if you want to send a private letter

about his callused answers.

> http://burr.senate.gov/public/index.cfm?FuseAction=Contact.Home

> http://projects.washingtonpost.com/congress/members/b001135/

> http://projects.washingtonpost.com/congress/members/b001135/

> I believe this is the one with faxes for all of his offices. Why

don't we all send him a letter or phone call? If you do, please post

it for us to read. That would really make everyone's day. Most of

congress only accepts emails from their own constituents, but we can

circumvent that by using the phone and faxes and the pony express if

you think he's worth the 42 cents.

> Get your quills out,

> Lottie

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