Re: ENT

[Guest guest]

Lynn, He's on Protonix, but if he really payed attention to his throat,

body,environment,sinuses,/h/a; he'd realze his symptoms ababte when out

of our Moldy home! My symptoms sure were better out of this house, but

I'm doing all I can to remediate this place, taking my CSM & waiting

for path report to get go ahead on the ruptued boob, which can't be

good sitting in my chest!! I wish you & yours well!

Hugs, Vheryl

[Guest guest]

Cheryl,

I was given Protonix by my regular doc and Nexium by the ENT. I am going to give one a try, just to heal stuff up a bit - short term. I need to test our home for mold. We also need to get our vents cleaned out. Thank you for the response!

No, that does not sound good. I hope you get the answers you are needing and can heal soon.

Hugs and prayers, Lynn

Re: ENT

Lynn, He's on Protonix, but if he really payed attention to his throat, body,environment, sinuses,/ h/a; he'd realze his symptoms ababte when out of our Moldy home! My symptoms sure were better out of this house, but I'm doing all I can to remediate this place, taking my CSM & waiting for path report to get go ahead on the ruptued boob, which can't be good sitting in my chest!! I wish you & yours well!Hugs, Vheryl

[Guest guest]

,

How did you do on the Nexium? It sounds like it didn't work well.

I am thinking I only want to take it for a very short while, just to heal the damage that is done.

I would not do a gallbladder removal, no way jose!

Thanks so much for the advice.

Lynn

Re: ENT

Hi Katy,Just an FYI. I am not a doctor but i have been treated for Acid reflux with Nexuim for the past year or so. When it wasn't working the doctor increased the dosage. It wasn't until I went to the gastro doctor that they put me on something called Carafate. It is basically just a crazy dose of Maalox but in pill form. It is used to coat the stomach and protect ulcers even though I do not have any. This has calmed my stomach issues, for now. I have had endoscopies, gastric empty scans and everything else that they could think of but the tests all came back negative so because they an not explain it they are writing it off as Acid Reflux or GERD. Just please be careful what they give you and what procedures they want to put you through. They want to do a gall bladder scan next but at this point there is no doubt that this is all be caused somehow by my implants and all the tests in the world

are not going to fix anything until I get these things removed. Again please do whatever you have to take care of yourself but be careful as well as to what they want to do to you.> > > I saw the ENT today and she put a scope up my nose> > and down through my throat and viewed my voice box. > > She diagnosed me with GERD or silent acid reflux. > > She prescirbed Nexium. So now I have Nexium and> > Protonix. I don't know which would be better. I> > really hate to take either. She is also scheduling> > me for a barium swallow. > > > > Oh and my memory and brain fog

have been so much> > better since my foot bath - makes working so much> > easier!> > > > Lynn> > Get news delivered with the All new . Enjoy RSS feeds right on your Mail page. Start today at http://mrd.mail. / try_beta? .intl=ca>

[Guest guest]

Hi,

Can you please double check the spelling of clindimyacin? I tried to look it

up, but nothing came up other than some forums. I'm curious about this

antibiotic.

I'm trying to put togther a binder with all that my son has been going through

complete with timelines, labs, symptoms, and possible treatment options to

present and discuss with his doctors. I have only just started to put the

pieces together and have requested his full medical records. I'm starting to

feel like I need to become the expert now since there are so many unknowns.

I personally am very wary of antibiotics. For 99.9% of the population they are

miracles, but my sister had a terrible experience with Cipro and is has robbed

her of the last two years of her live, causing neurological damage. After

watching her go through this, I am exteremely cautious, after researchng the

Cipro, we have found that a small segment of the population develops MS type

side effects that can go on for years...but that's for another forum! However,

I definitly would like to research this drug, clindimyacin. From what I have

read in forums it seems to be commonly used for MERSA. Funny, I read somewhere

that a child ended up having a severe staph infection somewhere in his

throat area (possibly tonsils, can't quite remember) and once the staph

infection was treated the fevers went away. Maybe there is some connection

here?

[Guest guest]

Thanks i needed that .. You are an absolute hoot bobby.. I feel the same way

about plans especially small ones.

Anita

[ ] ENT

OK, I GOOGLED THEM, THE FIRST IS THE ONE WE ALREADY HAVE SEEN AND I DONT;

UNDERSTND ONE WORD OFTHE SECOND, AND LEAVE OUT THE SPACE, THAT IS ONE WORD:

NYSTAGMUS

ALSO, MY TRIAL NURSE CALLED ME WHILE I WAS BEING EXAMINED BY THE ENT DR. AND

SAID I SHOULD GET AN ELECTROCARDIOGRAM, TODAY, IF POSSIBLE, SO THEY CAN RULE OUT

ANY HEART PROBLEMS BE FORE THE INFUSE ME AGAIN ON FRI. i LOVE BEING ABLE TO BE

IN A TRIAL, ESPECIALLY IF IT IS WORKING, BUT I AM SO TIRED OF DOCTORS,

HOSPITALS, TESTS AND NURSES. I AM THANKFUL THEY CAN DO ALL THESE TESTS, I JUST

WANT ONE WEEK WITHOUT SEEING A WHITE COAT !!

AND A BUDDY OF OURS IS A PILOT AND USES A LOCAL COMPANY PLANE FOR ANGEL FLIGHTS.

MY DAUGHTER JUST CALLED AND SAID JIM OFFERED TO FLY US TO ANN ARBOR FRI. I CAN

JUST SEE HIM TRYING TO GET THIS BUTT OF MINE UP INTO THAT LITTLE PLANE,

ESPECIALLY IF I TAKE ATIVAN, I'D LIKE A VIDEO OF THAT ONE...BOBBY

a (Bobby) Doyle

Brecksville, Ohio, USA

DX 05/1995

02/2000 - Gleevec Trial/OHSU

06/2002 - Gleevec/Trisenox Trial/OHSU

06/2003 - Gleevec/Zarnestra Trial/OHSU

04/2004 - Sprycel Trial/MDACC, CCR in 10 months

#840 - Zavie's Zero Club

09/2006 - out of CCR

04/29/08 - XL228 Trial/ U.of Michigan

06/02/08 - CCR ( in 4 weeks)