Guest guest Posted August 18, 2008 Report Share Posted August 18, 2008 Sharon T I live in Australia and hear your anquish and fear of the unknown. The most wonderful event is that your son was diagnosed with CML. Is the one to have if you are going to have Leuk. That could not be said some years ago. Life will be at times stressful and other times quite joyful. A young woman in my home State has just given birth to the most gorgeous fat healthiest little girl. Her pregnancy was a little tricky - and she also was not on glivec but on interferon. Your boy (young man) will have more problems managing the side effects and once he works out his side effects which normally happen in the first 6 months on glivec he will be able to just go forward and have the best life. I have just passed my first cancerversary and on glivec - have had a few ups and downs - but just recently had the two weeks of foodie and drinking celebrations. This morning already rode my horse - don't tell my Haem.(CML Specialist) - he would be shaking in his boots and now getting ready for work. What I am trying to convey is your boy will be just fine. Suggestion Write down all your queries and ask the specialist and also give the list to the support of people here - some of these chatters have been CML for many years and are inspirational. Take their love and support with you everyday - we are all here for you. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 Sharon T Sue again: I had to rush out of the house to drive and catch the train as I work in the City. I thought about you off and on today and when I told my Mum and Dad who are very elderly - it very well rocked them both - but having seen many a decade they were very stoic. It took both about a week though to start to ask sensible questions and not the " Time Left " questions. When my parents were young - many people died from Leuk. as they do now and my Mum actually had a friend who died of CML. No wonder my parents were having to find some courage deep within themselves. So yourself being a much younger Mum - the feelings would of been very similiar. Like your son many CMLers have more than one medical condition. I myself have a Menieres condition - ear inbalance that gives vertigo and other side effects. I manage this condition very well until I have a Menieres type seizure which is vertigo and other side effects. Winter pressure of the prevailing winds is one of my triggers where my condition can become unstable. Someone asked me recently what would you rather have: Menieres or CML That is an absolute No brainer - CML was my response. Did I say that - and today I thought about it again. Yes I would respond the same way. That of course comes with many disclaimers - such as no side effects of glivec, stable at a lower MMR % and being well and you can have a great life if your CML is being managed correctly for you and the big disclaimer that you do not become resistant to all drugs available. Not thinking of Stem Cell Transplant at all. Menieres; what can I say, that really can impact on your quality of life. So Sharon T - take heart - love your guy and we are all here if you need shoulder at times Sue Keep in good health > > Sharon T > > I live in Australia and hear your anquish and fear of the unknown. > > The most wonderful event is that your son was diagnosed with CML. > > Is the one to have if you are going to have Leuk. That could not be said some years ago. > > Life will be at times stressful and other times quite joyful. > > A young woman in my home State has just given birth to the most gorgeous fat healthiest little girl. > Her pregnancy was a little tricky - and she also was not on glivec but on interferon. > > Your boy (young man) will have more problems managing the side effects and once he works > out his side effects which normally happen in the first 6 months on glivec he will be able to just go forward > and have the best life. > > I have just passed my first cancerversary and on glivec - have had a few ups and downs - but just > recently had the two weeks of foodie and drinking celebrations. > > This morning already rode my horse - don't tell my Haem.(CML Specialist) - he would be shaking in his boots > and now getting ready for work. > > What I am trying to convey is your boy will be just fine. > > Suggestion > Write down all your queries and ask the specialist and also give the list to the support of people here > - some of these chatters have been CML for many years and are inspirational. Take their love and support > with you everyday - we are all here for you. > > Sue > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 hi sharon t: after so many wonderful responces from so many knowledgable warriors in this sight , there's so little for me to say but my two cents worth is that only god can determine our days and we have very little control of our lifespan so cml is not a death sentence for your son nor is it your fault in any way its just that moms want to fix everything and by blaming themselves they share in some way with thier children's pain, instead sharon don't blame anyone its the way life is and your son needs you now more than ever he will be fine I am still scared at times and yet i have survived in ccr for 2 yrs. now .its the word CANCER that is scarey but this group has been a light at the end of a scary tunel for me and so will it be for you and your son you your son and all our cml family will be in our prayers hold on everything will be fine god bless aliza yaffa rochester n.y. **************It's only a deal if it's where you want to go. Find your travel deal here. (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) Quote Link to comment Share on other sites More sharing options...
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