Guest guest Posted March 31, 2008 Report Share Posted March 31, 2008 Everything you are talking about is THYROID!!!!!! (diagnosis, including PCOS, Tachycardia, hypertension, depression/anxiety, gastrointestinal issues and allergy related asthma and of course wight gainz(I am sure realted to pbllod sugar issues) You thyroid is your master gland! When you are hypo everything slows down. Joint pain goes in with that. So some of the joint pain might be hypo related not RA related. (Not saying you couldn't have RA) Please take a look at a thyroid check list. If a doctor missed this, they need to go back to medical school. And yes, tachycardia is NOT just a hyperthyroid is it Hypothyroid too..often related to adrenal fatigue(but often just from being hypo. But most doctors miss this part. It's old school knowledge. Tests to get run: TSH, Free T3, Free T4, antibodies, female hormones, iron, ferritin, CBC and am cortisol. Kate G Hashi's AS At 07:32 PM 3/30/2008, you wrote: >What tests did you have them run? I would love to get off some of this stuff. > Joy > > > > > > I am finding out more and more that Doctors like to > > > give me MULTIPLE > > > diagnosis (thus mutiple drugs). WHEN in FACT my > > > symptoms can be > > > explained by one or two diagnosis. I went from > > > taking 24 pills, to > > > only 3, and hopefully just 2 soon, just by doing my > > > own research > > > (whith help from my Dad). I just needed to figure > > > out how to convince > > > my doctors to run the correct tests. COME TO FIND > > > OUT, that most of > > > my symttoms are due to a hormonal imbalance, which > > > researchers in > > > Europe how found is related to RA. SO not only has > > > this hormonal > > > imbalance cause me to have the 20 different > > > diagnosis, including > > > PCOS, Tachycardia, hypertension, depression/anxiety, > > > gastrointestinal > > > issues and allergy related asthma and of course > > > wight gainz(I am sure > > > realted to pbllod sugar issues) etc. BUT, come to > > > find out it is also > > > making my RA worse. Some research suggests that it > > > may have even > > > cause my RA?!?!?! I am working on a plan with my > > > father, who is a > > > naturopathic physician/DC and my MD to try to > > > balance out my > > > hormones, and so far the prognosis looks better than > > > ever. Soon I > > > will get to stair step off my Xanax, and maybe only > > > need 1 or 2 > > > medicines along with natural supplements. > > > I can't even explain how excited I am! > > > If you don't like taking so many meds or can't > > > afford them, tell your > > > doctor, I am sure that many of them are redundant or > > > react with one > > > another and are doing you more harm than good. > > > After having been in your situation, that is just my > > > opinon. I feel > > > much better now, than when I was taking 24 pills. > > > > > > Hope this helps. I will keep everyone update on my > > > symptoms. I am > > > starting on Progesterone (which is also a birth > > > control) and DHEA > > > supplements in Two weeks (since is has to coincide > > > with my cycle) > > > along with other supplements and homeopathic stuff > > > > > > P.S. I good 14 day detox did me a lot of good too! > > > > > > > > > > > > > > > > > Does anyone here just take one drug for their > > > RA? > > > > > > I feel like one drug leads to another and I > > > can't > > > > > > believe how many I take. > > > > > > I worry about my senior years and being able > > > to > > > > > > afford all this med on a limited income. > > > > > > Joy > > > > > > > > > > > > > > > > > > [Non-text portions of this message have been > > > > > > removed] > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >______________________________________________________________________ > > > > ______________ > > > > > Never miss a thing. Make your home page. > > > > > http://www./r/hs > > > > > > > > > well I am only taking one drug and just started > > > it.We all know that > > > > RA is an auto immune problem.Our body is attacking > > > itself.To get to > > > > the root of the problem and supress the immune > > > system and more or > > > > less get it under control I feel is the > > > answer.most doctors favor > > > > this also.To just treat the damage that is > > > occuring does not stop > > > the > > > > maine culprit.The damage is not reversible to my > > > knowledge.most > > > > importent is to find a good doctor.Kathleen > > > has RA and is > > > > doing well.She also states when you find the right > > > doctor kiss him > > > as > > > > they are out there.This can only be controled. > > > Good luck! > > > > > > > > > > > > > > > > > > > > > >______________________________________________________________________ >______________ > > Never miss a thing. Make your home page. > > http://www./r/hs > > > > > >------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2008 Report Share Posted April 1, 2008 hi to all ra group!! im soo HAPPY to have such an AWESOME group to chat & exchange messages with.... with all this information i have been reading about too MUCH MEDS,it soo TRUE!! yesterday i went to see my ortho.in san antonio,tx. cuz i have been having bad pain on my right side of my leg... im sooo cautious cuz my bones are very BRITTLE due to my osteo. & that SCARES me!! anyway,i told him im soo tired of TAKING all these MEDS for(ra,osteo.neuropathy,depression,anxienty,sleep, & pain). i take,take,take & nothing is working anymore,so why SHOULD i continue & mess up my immune system & my health the lil i HAVE LEFT. i started to get emotional then his nurse came in & we talked about all my meds,BELIEVE IT OR NOT some of my meds are being treated for the same thing. i was oblivious! to make a long story short, today will be my first day to try & cut my meds in half...... PLEASE PRAY for me that this will work..... god bless,melyndagamez 4/1/08 11:16a.m.central Re: [ ] Re: Drugs what is a ANA pre? laurenrosepeters <laurenrosepeters@...> wrote: Hormone panel , DHEA, free testosterone. and then RA factor and CBC and ANA pre and post therapy. I havn't started yet. It will be more that a coincidence if my RA factor is negative post therapy????? We'll See. It's crazy, I saw all these different doctors, some of them even thought I had a tumor....and all it might be is hormones! Which can be controlled (for most people) naturally. > > > > > > > > > > > Does anyone here just take one drug for their > > > RA? > > > > > > I feel like one drug leads to another and I > > > can't > > > > > > believe how many I take. > > > > > > I worry about my senior years and being able > > > to > > > > > > afford all this med on a limited income. > > > > > > Joy > > > > > > > > > > > > > > > > > > [Non-text portions of this message have been > > > > > > removed] > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ______________________________________________________________________ > > > > ______________ > > > > > Never miss a thing. Make your home page. > > > > > http://www./r/hs > > > > > > > > > well I am only taking one drug and just started > > > it.We all know that > > > > RA is an auto immune problem.Our body is attacking > > > itself.To get to > > > > the root of the problem and supress the immune > > > system and more or > > > > less get it under control I feel is the > > > answer.most doctors favor > > > > this also.To just treat the damage that is > > > occuring does not stop > > > the > > > > maine culprit.The damage is not reversible to my > > > knowledge.most > > > > importent is to find a good doctor.Kathleen > > > has RA and is > > > > doing well.She also states when you find the right > > > doctor kiss him > > > as > > > > they are out there.This can only be controled. > > > Good luck! > > > > > > > > > > > > > > > > > > > > > > ______________________________________________________________________ > ______________ > > Never miss a thing. Make your home page. > > http://www./r/hs > > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2008 Report Share Posted April 1, 2008 Hi Melynda: I read all your e-mails, and think of you often. I will pray that this new round of decreasing your meds. works for you. You have such a hard life with RA, and hope things improve for you. You sure need some positive things to happen to you. RA is a very tough disease to battle. I thank GOD that there are wonderful Rheumy's for us, and all the help they can give us to try to have a functioning life. I too, take Pred. 5 mg. a day, but have taken much more in a bad flare-up. I also inject MTX 1x a week, 8mg., and they have both been a big help to me. Also take Sulfasalazine and Placquenil. I have not taken any thing else, but sometimes I do take prescrip. pain meds. I am now awaiting for the results of MRI's on both feet and hands. I have discussed the bio-logical drugs with my Rheumy, but not ready for that yet. I am scared to death about them with my med. history. I know being on line, and being in this wonderful support group makes a diff. in our lives. I too, am glad I found it. I don't write in often, but I read the e-mails each day. Keep the faith, and remember, I do care. God Bless You Always, and in all ways. Barbara Re: [ ] Re: Drugs what is a ANA pre? laurenrosepeters <laurenrosepeters> wrote: Hormone panel , DHEA, free testosterone. and then RA factor and CBC and ANA pre and post therapy. I havn't started yet. It will be more that a coincidence if my RA factor is negative post therapy????? We'll See. It's crazy, I saw all these different doctors, some of them even thought I had a tumor....and all it might be is hormones! Which can be controlled (for most people) naturally. > > > > > > > > > > > Does anyone here just take one drug for their > > > RA? > > > > > > I feel like one drug leads to another and I > > > can't > > > > > > believe how many I take. > > > > > > I worry about my senior years and being able > > > to > > > > > > afford all this med on a limited income. > > > > > > Joy > > > > > > > > > > > > > > > > > > [Non-text portions of this message have been > > > > > > removed] > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ _ > > > > ____________ __ > > > > > Never miss a thing. Make your home page. > > > > > http://www.. com/r/hs > > > > > > > > > well I am only taking one drug and just started > > > it.We all know that > > > > RA is an auto immune problem.Our body is attacking > > > itself.To get to > > > > the root of the problem and supress the immune > > > system and more or > > > > less get it under control I feel is the > > > answer.most doctors favor > > > > this also.To just treat the damage that is > > > occuring does not stop > > > the > > > > maine culprit.The damage is not reversible to my > > > knowledge.most > > > > importent is to find a good doctor.Kathleen > > > has RA and is > > > > doing well.She also states when you find the right > > > doctor kiss him > > > as > > > > they are out there.This can only be controled. > > > Good luck! > > > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ _ > ____________ __ > > Never miss a thing. Make your home page. > > http://www.. com/r/hs > > > > > > ------------ --------- --------- ------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2008 Report Share Posted April 2, 2008 hi barbara,THANK-YOU that means alot to me. i know we dont know each other but this group HELPS me to chat with others who understand what i live day in & day out everyday of my life... its a comfort to know people can actually relate to you & UNDERSTAND where your coming from,not just by reading or hearing about it but by LIVING IT!!!!!!!!! you are right barbara I DO NEED POSITIVE IN MY LIFE!! i HOPE today is my new TOMORROW, no more dark places only LIGHT.... god bless,melyndagamez 4/2/08 1:22p.m.central time Re: [ ] Re: Drugs what is a ANA pre? laurenrosepeters <laurenrosepeters> wrote: Hormone panel , DHEA, free testosterone. and then RA factor and CBC and ANA pre and post therapy. I havn't started yet. It will be more that a coincidence if my RA factor is negative post therapy????? We'll See. It's crazy, I saw all these different doctors, some of them even thought I had a tumor....and all it might be is hormones! Which can be controlled (for most people) naturally. > > > > > > > > > > > Does anyone here just take one drug for their > > > RA? > > > > > > I feel like one drug leads to another and I > > > can't > > > > > > believe how many I take. > > > > > > I worry about my senior years and being able > > > to > > > > > > afford all this med on a limited income. > > > > > > Joy > > > > > > > > > > > > > > > > > > [Non-text portions of this message have been > > > > > > removed] > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ _ > > > > ____________ __ > > > > > Never miss a thing. Make your home page. > > > > > http://www.. com/r/hs > > > > > > > > > well I am only taking one drug and just started > > > it.We all know that > > > > RA is an auto immune problem.Our body is attacking > > > itself.To get to > > > > the root of the problem and supress the immune > > > system and more or > > > > less get it under control I feel is the > > > answer.most doctors favor > > > > this also.To just treat the damage that is > > > occuring does not stop > > > the > > > > maine culprit.The damage is not reversible to my > > > knowledge.most > > > > importent is to find a good doctor.Kathleen > > > has RA and is > > > > doing well.She also states when you find the right > > > doctor kiss him > > > as > > > > they are out there.This can only be controled. > > > Good luck! > > > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ _ > ____________ __ > > Never miss a thing. Make your home page. > > http://www.. com/r/hs > > > > > > ------------ --------- --------- ------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2008 Report Share Posted April 2, 2008 my name is terri and i read all your e-mails and get scared to death. i was diagosed 2 yrs ago and my rf was 600. the doctor i first saw wanted to put me on mtx but i refused..i was afraid of side effects also diddn't like him much. long story short found a new rheumy and she started me on plaquenil 2x a day and i have been very lucky. not to mush pain alittle stiff in fingers now nd thenso i pop an advil or 2. i don't understand why all of you are on so many pills. i feel very bad for u all and i will pray for all of you Barbara Creedon <bcreedon@...> wrote: Hi Melynda: I read all your e-mails, and think of you often. I will pray that this new round of decreasing your meds. works for you. You have such a hard life with RA, and hope things improve for you. You sure need some positive things to happen to you. RA is a very tough disease to battle. I thank GOD that there are wonderful Rheumy's for us, and all the help they can give us to try to have a functioning life. I too, take Pred. 5 mg. a day, but have taken much more in a bad flare-up. I also inject MTX 1x a week, 8mg., and they have both been a big help to me. Also take Sulfasalazine and Placquenil. I have not taken any thing else, but sometimes I do take prescrip. pain meds. I am now awaiting for the results of MRI's on both feet and hands. I have discussed the bio-logical drugs with my Rheumy, but not ready for that yet. I am scared to death about them with my med. history. I know being on line, and being in this wonderful support group makes a diff. in our lives. I too, am glad I found it. I don't write in often, but I read the e-mails each day. Keep the faith, and remember, I do care. God Bless You Always, and in all ways. Barbara Re: [ ] Re: Drugs what is a ANA pre? laurenrosepeters <laurenrosepeters> wrote: Hormone panel , DHEA, free testosterone. and then RA factor and CBC and ANA pre and post therapy. I havn't started yet. It will be more that a coincidence if my RA factor is negative post therapy????? We'll See. It's crazy, I saw all these different doctors, some of them even thought I had a tumor....and all it might be is hormones! Which can be controlled (for most people) naturally. > > > > > > > > > > > Does anyone here just take one drug for their > > > RA? > > > > > > I feel like one drug leads to another and I > > > can't > > > > > > believe how many I take. > > > > > > I worry about my senior years and being able > > > to > > > > > > afford all this med on a limited income. > > > > > > Joy > > > > > > > > > > > > > > > > > > [Non-text portions of this message have been > > > > > > removed] > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ _ > > > > ____________ __ > > > > > Never miss a thing. Make your home page. > > > > > http://www.. com/r/hs > > > > > > > > > well I am only taking one drug and just started > > > it.We all know that > > > > RA is an auto immune problem.Our body is attacking > > > itself.To get to > > > > the root of the problem and supress the immune > > > system and more or > > > > less get it under control I feel is the > > > answer.most doctors favor > > > > this also.To just treat the damage that is > > > occuring does not stop > > > the > > > > maine culprit.The damage is not reversible to my > > > knowledge.most > > > > importent is to find a good doctor.Kathleen > > > has RA and is > > > > doing well.She also states when you find the right > > > doctor kiss him > > > as > > > > they are out there.This can only be controled. > > > Good luck! > > > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ _ > ____________ __ > > Never miss a thing. Make your home page. > > http://www.. com/r/hs > > > > > > ------------ --------- --------- ------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2008 Report Share Posted April 2, 2008 I started on Plaquenil too, but after being on it for a couple of years, it began to not be enough so we added 3000mgs of Sulfasalazine. My next step is Methotrexate or Enbrel. I do take an NSAID too. If I eliminate it or miss a dose the pain level really shoots up. Keeping you in my prayers too! I hope the Plaquenil keeps doing great for you:) --- Terry Reinhardt <lazerloo@...> wrote: > my name is terri and i read all your e-mails and get > scared to death. i was diagosed 2 yrs ago and my rf > was 600. the doctor i first saw wanted to put me on > mtx but i refused..i was afraid of side effects also > diddn't like him much. long story short found a new > rheumy and she started me on plaquenil 2x a day and > i have been very lucky. not to mush pain alittle > stiff in fingers now nd thenso i pop an advil or 2. > i don't understand why all of you are on so many > pills. i feel very bad for u all and i will pray for > all of you > > Barbara Creedon <bcreedon@...> wrote: > Hi Melynda: > I read all your e-mails, and think of you often. I > will pray that this new round of decreasing your > meds. works for you. You have such a hard life with > RA, and hope things improve for you. You sure need > some positive things to happen to you. RA is a very > tough disease to battle. I thank GOD that there are > wonderful Rheumy's for us, and all the help they can > give us to try to have a functioning life. I too, > take Pred. 5 mg. a day, but have taken much more in > a bad flare-up. I also inject MTX 1x a week, 8mg., > and they have both been a big help to me. Also take > Sulfasalazine and Placquenil. I have not taken any > thing else, but sometimes I do take prescrip. pain > meds. I am now awaiting for the results of MRI's on > both feet and hands. I have discussed the > bio-logical drugs with my Rheumy, but not ready for > that yet. I am scared to death about them with my > med. history. > I know being on line, and being in this wonderful > support group makes a diff. in our lives. I too, am > glad I found it. I don't write in often, but I read > the e-mails each day. Keep the faith, and remember, > I do care. God Bless You Always, and in all ways. > Barbara > > Re: [ ] Re: Drugs > > what is a ANA pre? > > laurenrosepeters <laurenrosepeters> > wrote: Hormone panel , DHEA, free testosterone. and > then RA factor and CBC > and ANA pre and post therapy. I havn't started yet. > It will be more > that a coincidence if my RA factor is negative post > therapy????? > We'll See. > It's crazy, I saw all these different doctors, some > of them even > thought I had a tumor....and all it might be is > hormones! Which can > be controlled (for most people) naturally. > > > > > > > > > > > > > I know what you mean Joy! I have a myriad > of > > > > other > > > > > > health issues and am on quite a bit of > > > > medications! > > > > > > > > > > > > I take Plaquenil, Sulfasalazine, and Mobic > just > > > > for > > > > > > the RA. I have to take Prevacid to protect > the > > > > > > stomach from these medications. For the > FMS I > > > > take > > > > > > Effexor XR and Flexeril and Ultram ER, > Lunesta > > > > for > > > > > > Insomnia. For a cardiac arrythmia I take > > > > Atenolol. I > > > > > > use Xanax for anxiety. I take Prometrium > for > === message truncated === ________________________________________________________________________________\ ____ You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost. http://tc.deals./tc/blockbuster/text5.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2008 Report Share Posted October 14, 2008 I was wondering if anyone has taken the drug called filgastrim, it was suggested I talk with my hem doc about it. As after this last while I am very low on ANC as well as white cells. http://www.cancerhelp.org.uk/help/default.asp?page=2588 this is where I was directed to read about it. I do hate taking extra drugs, after all these years just taking a drug for cml. also he mentioned we may in the future talk about a mini-transplant. I am very leary of that, as I still feel not all bad after the Pneumonia, they took another 2 liters of fluid, which makes 4 liters all together in the past two weeks, boy do I feel much beter being able to breath. I was hoping that if anyone has taken this filgastrim, to tell me about any bad effects or even good ones thank in advance SkipD dx'ed 30++++ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2008 Report Share Posted October 15, 2008 -skip what is a MINI transplant? aliza yaffa -- In , Skip Duffie <skipd_2002@...> wrote: > > I was wondering if anyone has taken the drug called filgastrim, > it was suggested I talk with my hem doc about it. As after this last > while I am very low on ANC as well as white cells. > > http://www.cancerhelp.org.uk/help/default.asp?page=2588 > > this is where I was directed to read about it. I do hate taking extra drugs, after all these years just taking a drug for cml. also he mentioned we may in > the future talk about a mini-transplant. I am very leary > of that, as I still feel not all bad after the Pneumonia, > they took another 2 liters of fluid, which makes 4 liters > all together in the past two weeks, boy do I feel much beter > being able to breath. I was hoping that if anyone has taken > this filgastrim, to tell me about any bad effects or even good ones > thank in advance > SkipD > dx'ed 30++++ > Quote Link to comment Share on other sites More sharing options...
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