Re: Re: A newbie to some, and and old friend to others........

[Guest guest]

Zavie:

You never get tired of that do you!

And we never get tired of reading it.

Thanks for keeping us motivated.

With the warmest regards,

Matt

CML of Florida

Dx January of 2005

Gleevec March of 2005

Tasigna November of 2007

Number 1078 in the Esteemed Zavie Zero Club

In a message dated 9/9/2008 10:46:40 A.M. Eastern Daylight Time,

zmiller@... writes:

O!!! YIPPEEE!!!

Number 1211 in the Zero Club

Zavie

Zavie (age 70)

67 Shoreham Avenue

Ottawa, Canada, K2G 3X3

dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

2.8 log reduction Sep/05

3.0 log reduction Jan/06

2.9 log reduction Feb/07

3.6 log reduction Apr/08

e-mail: _zmiller@..._ (mailto:zmiller@...)

Tel: 613-726-1117

Fax: 309-296-0807

Cell: 613-282-0204

ID: zaviem

YM: zaviemiller

Skype: Zavie

_____

From: _@..._ (mailto: )

[mailto:_@..._ (mailto: ) ] On Behalf Of

hellodoggie0009

Sent: September 9, 2008 2:57 AM

_@..._ (mailto: )

Subject: [ ] Re: A newbie to some, and and old friend to others......Su

Dear Cmler 2,

Finally I have done it! I have joined this group, as suggestion of dear

lottie.

I have also received a call letting me know the difficulties from her

stay in Houston, TX. on a borrowed cell phone.

Has anyone heard from her recently? I know she mentioned the roof of her

home has

been damaged, and that she and Jimmy were heading back home to buy a battery

generator, because Houma, will not have any electric for 30 days or more.

The reason for my inquiry, is that my Church is willing to do a fund raiser

to

help Lottie and Jimmy, and their needs. I spoke of her being a Cmler like

myself,

and when I spoke with her I asked her if she was in need of ANYTHING to make

life just a little easier, and she told me she appreciated the offer, but

declined.

What I want to do is to know when they returned will they need anything, to

help lottie

from being in pain, and nausea with everything that she has gone through.

So, if any

of you really know lottie, and how we can get back in touch, would you

please email

me and let me know, how best to contact them?????

Okay, I have been a Cmler for almost 8 years. November 8, 2000, did I learn

the shocking

news! Boy did it change the quality of life for me. Interferon was the going

drug, to

stop the overage of white cells. So, I DID about 3 +1/2 years, syringing

this.

I really had a very difficult time on this drug, which seemed to leave scars

of what could go

wrong with Chemotherapy cancer drug. I ended up being a cancer anorexia

patient,

unable to mix he antibiotics with Interferon. Then came the Gleevec, and I

was placed on

this at a very slow pace. I was then a 115Lbs. women, before Interferon,

then losing

some 70Lbs, on Levinquin 500mgs. and Interferon. I looked like a Halloween

Skeleton,

but survived mostly from a strong spirituality and a reason to believe that

I will survive.

I have 3 children, an adolescent, and 2 teenagers. All of them I had adopted

from

the Asian countries. They are the happiest people in my life, and the best

children

God has blessed me with, they are why I am still here, plus taking Gleevec

400mgs.

What I still don't like about Gleevec, is the swelling, when in humid

weather conditions.

I live in the Midwestern state, and this past summer wasn't too bad with the

humidity,

however if I go outdoors with this type of weather I will swell up really

bad, that I can

proclaim the body of the cartoon character of HULK. Yes, I feel like I am

busting through

my clothing! Where I live is the 4 seasons. The winters in the MIdwest can

be brutal with

the very sub-below cold snap that comes from the Canadian tradewinds, or MN,

and that

can bring on bone pain.

Currently I have only been on 400mgs. for only 2+3/4 years. As I stated, I

started on

Gleevec slowly. My Oncologist had to be very careful about the standard dose

that I never

started the standard dosage even at 300 mgs. I started it at 100mgs.,

because I still

needed desperately to gain weight. It took me 2 years to just put back the

weight that I

lost, before I could up the dosages on Gleevec.

I believe the 1st time I got into remission was taking Gleevec at 200mgs.,

then for

some unknown reason I was ordered to bump up on 300mgs.

The 300 mgs. brought on severe nauseated, and I was always sick. Then after

1 year

on 300mgs., I was diagnosis with Acute Pancretitis, and hospitalized. The

Internal

Medical Physician, had stopped the Gleevec 300 mgs. for 10 days, and that's

when

I went from remission to showing 6% of cancer cells. I was devastated to

learn on a

PCR/BCR/ABL that the cancer returned. I went into Internet to find

everything I could read

to help me understand how this could happen.

I read into the Leukemia/Lymphoma Society website, that said that should the

cancer

return, one has less than 5 years to live. Which I thought at that time was

really the

dumbest thing I could have found on the Internet, and especially from that

web-site.

So, I forward the society memo to everyone in my family and friends who

still support me

with prayers for me and my family. I also changed my diet. I no longer

consume meat or

dairy products, and I had to take enzymes to combat the problem with acidic

stomach

problems which brought on the acute pancretitis. My dietary consumption is

mostly

vegetable with fresh fish where ever I can buy it from. I won't say that I

am a vegeterian,

nor a vegan. I am just someone who doesn't care much for meat, and I am

lactose

intolerance, so dumping dairy was not a problem in the least!

While I was on the Leukemia/Lymphoma web-site a blog kept flashing on the

side

for advertisement for Asian CMLER. So, I joined. I became familiarized with

the monitors

there and felt I WAS REALLY MISSING MUCH F.Y.I's not knowing how to read the

CBC's. For many years while I was in a live support group with the

Leukemia/Lymphoma

Society, I had asked to join up with other CMLERS, and they never forward me

ANY info

on anyone. My support group which met at a Wellness Home, was primarily

folks who

had Lymphoma, and other cancers, but for the 1st five years I was clueless

about anyone

else who was dealing with the side-effects, and the same drug, so it was

difficult.

Having the Internet, and all it's changes in Computer Technology, has

certainly advanced

us on where or how we need to communicate. beside the typical cell or home

land

telephones. My kids use Internet mostly for postings from each one of their

educators at

school to get the latest updates on homework, and or work sheets each

teacher may

want the student to download. Although, I am not as savy as my children are

when it

comes to fully utilizing a computer, I do not have too much time posting or

writing about

my life as a CMLER, but I can tell you I am still surviving!

What I WANT to ask some of the Cmler 2 group, is while one is on Gleevec

400mgs., and

you suffer other side-effects,you suffer other side-effects,<WBR>( bloating,

which one does

one prefer over the others. I am finding it is almost impossible for me to

go on any of the

antibiotics we have in U.S.A, because i do not have enough stomach acid to

manage the

stomach problems that antibiotics wipe out which is the natural flora, or

the right bacteria

to help one heal. Does anyone ever experience boils, or swollen lymph nodes?

Is it true, when reading the CBC. that Neutrophils, and Basofils would tell

us by %,

percentage what part of our blood would tolerate certain drugs or show us

how high

monthly are allergies rise or fall when taking our medication?

My Oncology office does not provide us with printed results of our CBC. They

tell us

it is because they are going paperless, and every record is going onto a

medical CD, so

they are not giving us paper stats, just writing them down. They only tell

us what they

think we are interested in and it is the white blood cells, the red blood

cells, and the

hemoglobin, and maybe if someone is more concern they tell you what your

platelets

are of concerns, but that's it! Would it be harmful if I requested a printed

copy of

all of the CBC testing results? I do not think I could remember monthly what

the % or

numbers run, so that I would know, what is important in knowing??!!

Just so you know by changing my diet, in less than 1 year, I am back in a

total remission.

I made a visit to MSKCC in N.Y.C., after compiling F.Y.I's from the other

webwsite of the

Asian Cmlers. I met up with some arrogant Physicians who insulted my current

Physicians

who are well known in these neck of the Midwest, I am again in total

remission.

While I allowed for a BMA to be performed by MSKCC, it was the most painful

experiences.

And so I vowed, that if I ever return back to MSKCC for more blood testings

in the future,

they would have to obtain a BMA from my current home Oncologist.

Also, can someone tell me about very low platelets, what harm does the lower

number

mean in terms of a Cmlers health?

Recently I have broke my right toe, so I am in a heavy boot, not a cast yet!

It has been

almost 6 weeks in this state, I have not been able to do my daily walking as

my exercise,

nor drive my children anywhere as I cannot drive. I think I am gaining more

weight as I am

unable to get any type of exercise while waiting for the foot to heal, and

the swelling

seems worst on some days over the others. I finally made a visit to my G.P.,

to ask for

advice about the boils in the groin area, and she insisted I take Zithromax,

the antibiotics.

i do not do well on generic drugs, so I asked her to state no substitute on

the

prescription. What I would like to know from the Cmlers 2, is Zithromax the

wrong type

of antibiotics for a CMLER as I am experiencing having to eat more, while on

this drug and

I feel like I am experiencing asthma or more sinus problems from this

antibiotics?

Could this be possible, or does it seem like I have more bacterial problems

to start with?

Just so you folks know, I am highly allergic to penicilian, cipro, sulfate

base drugs, dyes,

rythomycian, which makes up for most of the antibiotics. I think once you

take the

Chemotherapy you mess up all your organs, and compromise your health when

you

use antibiotics. Does anyone have any solutions while on Gleevec 400mgs. or

suggestions?

Please respond soon! Thank you, Dory Doggie

[Non-text portions of this message have been removed]

**************Psssst...Have you heard the news? There's a new fashion blog,

plus the latest fall trends and hair styles at StyleList.com.

(http://www.stylelist.com/trends?ncid=aolsty00050000000014)

[Guest guest]

O!!! YIPPEEE!!!

Number 1211 in the Zero Club

Zavie

Zavie (age 70)

67 Shoreham Avenue

Ottawa, Canada, K2G 3X3

dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

2.8 log reduction Sep/05

3.0 log reduction Jan/06

2.9 log reduction Feb/07

3.6 log reduction Apr/08

e-mail: zmiller@...

Tel: 613-726-1117

Fax: 309-296-0807

Cell: 613-282-0204

ID: zaviem

YM: zaviemiller

Skype: Zavie

_____

From: [mailto: ] On Behalf Of

hellodoggie0009

Sent: September 9, 2008 2:57 AM

Subject: [ ] Re: A newbie to some, and and old friend to others........

Dear Cmler 2,

Finally I have done it! I have joined this group, as suggestion of dear

lottie.

I have also received a call letting me know the difficulties from her

stay in Houston, TX. on a borrowed cell phone.

Has anyone heard from her recently? I know she mentioned the roof of her

home has

been damaged, and that she and Jimmy were heading back home to buy a battery

generator, because Houma, will not have any electric for 30 days or more.

The reason for my inquiry, is that my Church is willing to do a fund raiser

to

help Lottie and Jimmy, and their needs. I spoke of her being a Cmler like

myself,

and when I spoke with her I asked her if she was in need of ANYTHING to make

life just a little easier, and she told me she appreciated the offer, but

declined.

What I want to do is to know when they returned will they need anything, to

help lottie

from being in pain, and nausea with everything that she has gone through.

So, if any

of you really know lottie, and how we can get back in touch, would you

please email

me and let me know, how best to contact them?????

Okay, I have been a Cmler for almost 8 years. November 8, 2000, did I learn

the shocking

news! Boy did it change the quality of life for me. Interferon was the going

drug, to

stop the overage of white cells. So, I DID about 3 +1/2 years, syringing

this.

I really had a very difficult time on this drug, which seemed to leave scars

of what could go

wrong with Chemotherapy cancer drug. I ended up being a cancer anorexia

patient,

unable to mix he antibiotics with Interferon. Then came the Gleevec, and I

was placed on

this at a very slow pace. I was then a 115Lbs. women, before Interferon,

then losing

some 70Lbs, on Levinquin 500mgs. and Interferon. I looked like a Halloween

Skeleton,

but survived mostly from a strong spirituality and a reason to believe that

I will survive.

I have 3 children, an adolescent, and 2 teenagers. All of them I had adopted

from

the Asian countries. They are the happiest people in my life, and the best

children

God has blessed me with, they are why I am still here, plus taking Gleevec

400mgs.

What I still don't like about Gleevec, is the swelling, when in humid

weather conditions.

I live in the Midwestern state, and this past summer wasn't too bad with the

humidity,

however if I go outdoors with this type of weather I will swell up really

bad, that I can

proclaim the body of the cartoon character of HULK. Yes, I feel like I am

busting through

my clothing! Where I live is the 4 seasons. The winters in the MIdwest can

be brutal with

the very sub-below cold snap that comes from the Canadian tradewinds, or MN,

and that

can bring on bone pain.

Currently I have only been on 400mgs. for only 2+3/4 years. As I stated, I

started on

Gleevec slowly. My Oncologist had to be very careful about the standard dose

that I never

started the standard dosage even at 300 mgs. I started it at 100mgs.,

because I still

needed desperately to gain weight. It took me 2 years to just put back the

weight that I

lost, before I could up the dosages on Gleevec.

I believe the 1st time I got into remission was taking Gleevec at 200mgs.,

then for

some unknown reason I was ordered to bump up on 300mgs.

The 300 mgs. brought on severe nauseated, and I was always sick. Then after

1 year

on 300mgs., I was diagnosis with Acute Pancretitis, and hospitalized. The

Internal

Medical Physician, had stopped the Gleevec 300 mgs. for 10 days, and that's

when

I went from remission to showing 6% of cancer cells. I was devastated to

learn on a

PCR/BCR/ABL that the cancer returned. I went into Internet to find

everything I could read

to help me understand how this could happen.

I read into the Leukemia/Lymphoma Society website, that said that should the

cancer

return, one has less than 5 years to live. Which I thought at that time was

really the

dumbest thing I could have found on the Internet, and especially from that

web-site.

So, I forward the society memo to everyone in my family and friends who

still support me

with prayers for me and my family. I also changed my diet. I no longer

consume meat or

dairy products, and I had to take enzymes to combat the problem with acidic

stomach

problems which brought on the acute pancretitis. My dietary consumption is

mostly

vegetable with fresh fish where ever I can buy it from. I won't say that I

am a vegeterian,

nor a vegan. I am just someone who doesn't care much for meat, and I am

lactose

intolerance, so dumping dairy was not a problem in the least!

While I was on the Leukemia/Lymphoma web-site a blog kept flashing on the

side

for advertisement for Asian CMLER. So, I joined. I became familiarized with

the monitors

there and felt I WAS REALLY MISSING MUCH F.Y.I's not knowing how to read the

CBC's. For many years while I was in a live support group with the

Leukemia/Lymphoma

Society, I had asked to join up with other CMLERS, and they never forward me

ANY info

on anyone. My support group which met at a Wellness Home, was primarily

folks who

had Lymphoma, and other cancers, but for the 1st five years I was clueless

about anyone

else who was dealing with the side-effects, and the same drug, so it was

difficult.

Having the Internet, and all it's changes in Computer Technology, has

certainly advanced

us on where or how we need to communicate. beside the typical cell or home

land

telephones. My kids use Internet mostly for postings from each one of their

educators at

school to get the latest updates on homework, and or work sheets each

teacher may

want the student to download. Although, I am not as savy as my children are

when it

comes to fully utilizing a computer, I do not have too much time posting or

writing about

my life as a CMLER, but I can tell you I am still surviving!

What I WANT to ask some of the Cmler 2 group, is while one is on Gleevec

400mgs., and

you suffer other side-effects,( bloating, swelling) then need antibiotics,

which one does

one prefer over the others. I am finding it is almost impossible for me to

go on any of the

antibiotics we have in U.S.A, because i do not have enough stomach acid to

manage the

stomach problems that antibiotics wipe out which is the natural flora, or

the right bacteria

to help one heal. Does anyone ever experience boils, or swollen lymph nodes?

Is it true, when reading the CBC. that Neutrophils, and Basofils would tell

us by %,

percentage what part of our blood would tolerate certain drugs or show us

how high

monthly are allergies rise or fall when taking our medication?

My Oncology office does not provide us with printed results of our CBC. They

tell us

it is because they are going paperless, and every record is going onto a

medical CD, so

they are not giving us paper stats, just writing them down. They only tell

us what they

think we are interested in and it is the white blood cells, the red blood

cells, and the

hemoglobin, and maybe if someone is more concern they tell you what your

platelets

are of concerns, but that's it! Would it be harmful if I requested a printed

copy of

all of the CBC testing results? I do not think I could remember monthly what

the % or

numbers run, so that I would know, what is important in knowing??!!

Just so you know by changing my diet, in less than 1 year, I am back in a

total remission.

I made a visit to MSKCC in N.Y.C., after compiling F.Y.I's from the other

webwsite of the

Asian Cmlers. I met up with some arrogant Physicians who insulted my current

Physicians

who are well known in these neck of the Midwest, I am again in total

remission.

While I allowed for a BMA to be performed by MSKCC, it was the most painful

experiences.

And so I vowed, that if I ever return back to MSKCC for more blood testings

in the future,

they would have to obtain a BMA from my current home Oncologist.

Also, can someone tell me about very low platelets, what harm does the lower

number

mean in terms of a Cmlers health?

Recently I have broke my right toe, so I am in a heavy boot, not a cast yet!

It has been

almost 6 weeks in this state, I have not been able to do my daily walking as

my exercise,

nor drive my children anywhere as I cannot drive. I think I am gaining more

weight as I am

unable to get any type of exercise while waiting for the foot to heal, and

the swelling

seems worst on some days over the others. I finally made a visit to my G.P.,

to ask for

advice about the boils in the groin area, and she insisted I take Zithromax,

the antibiotics.

i do not do well on generic drugs, so I asked her to state no substitute on

the

prescription. What I would like to know from the Cmlers 2, is Zithromax the

wrong type

of antibiotics for a CMLER as I am experiencing having to eat more, while on

this drug and

I feel like I am experiencing asthma or more sinus problems from this

antibiotics?

Could this be possible, or does it seem like I have more bacterial problems

to start with?

Just so you folks know, I am highly allergic to penicilian, cipro, sulfate

base drugs, dyes,

rythomycian, which makes up for most of the antibiotics. I think once you

take the

Chemotherapy you mess up all your organs, and compromise your health when

you

use antibiotics. Does anyone have any solutions while on Gleevec 400mgs. or

suggestions?

Please respond soon! Thank you, Dory Doggie

[Guest guest]

Dear Dory,

What a journey you have made! I have been on Gleevec since 1999 (December

to be exact). I met Lottie through the CML list group on one of our many

trips to MDA. She is such an inspiration. It would be like her to insist

that others need help, not her, but I'm sure that she would see that

whatever help is offered goes to those in the most need. I look forward to

a report from someone on the conditions that she found when she returned

home. The news reports that we get here indicate that Houma was the hardest

hit part of Louisiana.

My CML journey hasn't been nearly as complicated as yours. I started on 600

mg of Gleevec and stayed on it until last December when the doctor decreased

my dosage to 400 mg. I can really tell a difference in the way I feel. My

blood counts are close to normal now. They had been very low and my

platelets are up to 80,000-90,000 from hovering in the 60,000 range. The

only antibiotic I've taken is amoxicillin (very strong dose). I take it

regularly before dental appointments. Like you, I've noticed that my system

has a hard time handling meats. I crave breads and crackers. I think that

helps the acid affects on my stomach. I love milk and we have found a milk

here that is lactose free, so I am able to drink it. I use aciphex for

stomach acid and it works well. My problems are not nearly as bad since the

dose was decreased. I have more joint pain, but I'm not sure if that is

because of my age (61) or the Gleevec. I am very blessed to be alive and to

be able to enjoy my 7 grandchildren. God is good.

Gay Bratton

San , TX

[ ] Re: A newbie to some, and and old friend to others........

Dear Cmler 2,

Finally I have done it! I have joined this group, as suggestion of dear

lottie.

I have also received a call letting me know the difficulties from her

stay in Houston, TX. on a borrowed cell phone.

Has anyone heard from her recently? I know she mentioned the roof of her

home has

been damaged, and that she and Jimmy were heading back home to buy a battery

generator, because Houma, will not have any electric for 30 days or more.

The reason for my inquiry, is that my Church is willing to do a fund raiser

to

help Lottie and Jimmy, and their needs. I spoke of her being a Cmler like

myself,

and when I spoke with her I asked her if she was in need of ANYTHING to make

life just a little easier, and she told me she appreciated the offer, but

declined.

What I want to do is to know when they returned will they need anything, to

help lottie

from being in pain, and nausea with everything that she has gone through.

So, if any

of you really know lottie, and how we can get back in touch, would you

please email

me and let me know, how best to contact them?????

Okay, I have been a Cmler for almost 8 years. November 8, 2000, did I learn

the shocking

news! Boy did it change the quality of life for me. Interferon was the going

drug, to

stop the overage of white cells. So, I DID about 3 +1/2 years, syringing

this.

I really had a very difficult time on this drug, which seemed to leave scars

of what could go

wrong with Chemotherapy cancer drug. I ended up being a cancer anorexia

patient,

unable to mix he antibiotics with Interferon. Then came the Gleevec, and I

was placed on

this at a very slow pace. I was then a 115Lbs. women, before Interferon,

then losing

some 70Lbs, on Levinquin 500mgs. and Interferon. I looked like a Halloween

Skeleton,

but survived mostly from a strong spirituality and a reason to believe that

I will survive.

I have 3 children, an adolescent, and 2 teenagers. All of them I had adopted

from

the Asian countries. They are the happiest people in my life, and the best

children

God has blessed me with, they are why I am still here, plus taking Gleevec

400mgs.

What I still don't like about Gleevec, is the swelling, when in humid

weather conditions.

I live in the Midwestern state, and this past summer wasn't too bad with the

humidity,

however if I go outdoors with this type of weather I will swell up really

bad, that I can

proclaim the body of the cartoon character of HULK. Yes, I feel like I am

busting through

my clothing! Where I live is the 4 seasons. The winters in the MIdwest can

be brutal with

the very sub-below cold snap that comes from the Canadian tradewinds, or MN,

and that

can bring on bone pain.

Currently I have only been on 400mgs. for only 2+3/4 years. As I stated, I

started on

Gleevec slowly. My Oncologist had to be very careful about the standard dose

that I never

started the standard dosage even at 300 mgs. I started it at 100mgs.,

because I still

needed desperately to gain weight. It took me 2 years to just put back the

weight that I

lost, before I could up the dosages on Gleevec.

I believe the 1st time I got into remission was taking Gleevec at 200mgs.,

then for

some unknown reason I was ordered to bump up on 300mgs.

The 300 mgs. brought on severe nauseated, and I was always sick. Then after

1 year

on 300mgs., I was diagnosis with Acute Pancretitis, and hospitalized. The

Internal

Medical Physician, had stopped the Gleevec 300 mgs. for 10 days, and that's

when

I went from remission to showing 6% of cancer cells. I was devastated to

learn on a

PCR/BCR/ABL that the cancer returned. I went into Internet to find

everything I could read

to help me understand how this could happen.

I read into the Leukemia/Lymphoma Society website, that said that should the

cancer

return, one has less than 5 years to live. Which I thought at that time was

really the

dumbest thing I could have found on the Internet, and especially from that

web-site.

So, I forward the society memo to everyone in my family and friends who

still support me

with prayers for me and my family. I also changed my diet. I no longer

consume meat or

dairy products, and I had to take enzymes to combat the problem with acidic

stomach

problems which brought on the acute pancretitis. My dietary consumption is

mostly

vegetable with fresh fish where ever I can buy it from. I won't say that I

am a vegeterian,

nor a vegan. I am just someone who doesn't care much for meat, and I am

lactose

intolerance, so dumping dairy was not a problem in the least!

While I was on the Leukemia/Lymphoma web-site a blog kept flashing on the

side

for advertisement for Asian CMLER. So, I joined. I became familiarized with

the monitors

there and felt I WAS REALLY MISSING MUCH F.Y.I's not knowing how to read the

CBC's. For many years while I was in a live support group with the

Leukemia/Lymphoma

Society, I had asked to join up with other CMLERS, and they never forward me

ANY info

on anyone. My support group which met at a Wellness Home, was primarily

folks who

had Lymphoma, and other cancers, but for the 1st five years I was clueless

about anyone

else who was dealing with the side-effects, and the same drug, so it was

difficult.

Having the Internet, and all it's changes in Computer Technology, has

certainly advanced

us on where or how we need to communicate. beside the typical cell or home

land

telephones. My kids use Internet mostly for postings from each one of their

educators at

school to get the latest updates on homework, and or work sheets each

teacher may

want the student to download. Although, I am not as savy as my children are

when it

comes to fully utilizing a computer, I do not have too much time posting or

writing about

my life as a CMLER, but I can tell you I am still surviving!

What I WANT to ask some of the Cmler 2 group, is while one is on Gleevec

400mgs., and

you suffer other side-effects,( bloating, swelling) then need antibiotics,

which one does

one prefer over the others. I am finding it is almost impossible for me to

go on any of the

antibiotics we have in U.S.A, because i do not have enough stomach acid to

manage the

stomach problems that antibiotics wipe out which is the natural flora, or

the right bacteria

to help one heal. Does anyone ever experience boils, or swollen lymph nodes?

Is it true, when reading the CBC. that Neutrophils, and Basofils would tell

us by %,

percentage what part of our blood would tolerate certain drugs or show us

how high

monthly are allergies rise or fall when taking our medication?

My Oncology office does not provide us with printed results of our CBC. They

tell us

it is because they are going paperless, and every record is going onto a

medical CD, so

they are not giving us paper stats, just writing them down. They only tell

us what they

think we are interested in and it is the white blood cells, the red blood

cells, and the

hemoglobin, and maybe if someone is more concern they tell you what your

platelets

are of concerns, but that's it! Would it be harmful if I requested a printed

copy of

all of the CBC testing results? I do not think I could remember monthly what

the % or

numbers run, so that I would know, what is important in knowing??!!

Just so you know by changing my diet, in less than 1 year, I am back in a

total remission.

I made a visit to MSKCC in N.Y.C., after compiling F.Y.I's from the other

webwsite of the

Asian Cmlers. I met up with some arrogant Physicians who insulted my current

Physicians

who are well known in these neck of the Midwest, I am again in total

remission.

While I allowed for a BMA to be performed by MSKCC, it was the most painful

experiences.

And so I vowed, that if I ever return back to MSKCC for more blood testings

in the future,

they would have to obtain a BMA from my current home Oncologist.

Also, can someone tell me about very low platelets, what harm does the lower

number

mean in terms of a Cmlers health?

Recently I have broke my right toe, so I am in a heavy boot, not a cast yet!

It has been

almost 6 weeks in this state, I have not been able to do my daily walking as

my exercise,

nor drive my children anywhere as I cannot drive. I think I am gaining more

weight as I am

unable to get any type of exercise while waiting for the foot to heal, and

the swelling

seems worst on some days over the others. I finally made a visit to my G.P.,

to ask for

advice about the boils in the groin area, and she insisted I take Zithromax,

the antibiotics.

i do not do well on generic drugs, so I asked her to state no substitute on

the

prescription. What I would like to know from the Cmlers 2, is Zithromax the

wrong type

of antibiotics for a CMLER as I am experiencing having to eat more, while on

this drug and

I feel like I am experiencing asthma or more sinus problems from this

antibiotics?

Could this be possible, or does it seem like I have more bacterial problems

to start with?

Just so you folks know, I am highly allergic to penicilian, cipro, sulfate

base drugs, dyes,

rythomycian, which makes up for most of the antibiotics. I think once you

take the

Chemotherapy you mess up all your organs, and compromise your health when

you

use antibiotics. Does anyone have any solutions while on Gleevec 400mgs. or

suggestions?

Please respond soon! Thank you, Dory Doggie