Re: Re: lottie back in houma

[Guest guest]

I got a voiicemail from lottie and they are back in houma now. Hoepfully wse

will char tomorrow and i can get more info on the condition of the house.

Meanwhile... Hurricane is headin to houston! Ugh. More news coming soon...

Rhonda

Sent from my Verizon Wireless BlackBerry

[ ] Re: Misc CML stuff

Chi

Glad to hear from you! I agree with all of your comments! I, too,

am having my health issues including tummy stuff (D and pain)

related to Gleevec, skin things (Redness and skin peeling on my arms

and slapped-cheek looking redness--I look like I've just run a mile

and with my sweats, I feel like it too), severe sweats that are the

bane of my existence and unrelenting, and other things too trivial

to mention--the usual fatigue, etc. I have been managing to work

full-time and get my boys to their soccer games, etc.

I was recently hospitalized for high fever which turned out to be a

urinary tract infection which was very odd, since I had NO symptoms

of that whatsoever. Apparently it was just lurking, waiting to get

me! LOL! Anyway, I was hospitalized for 5 days, several of them in

intensive care. It was horrible and not at all where I wanted to

be.

Our illness affects our health in so many ways it is hard to say

which things are due to the leukemia, and which things are just

normal illnesses that anyone could get. I tend to think most odd

things (like my UTI) could be related to the fact that our immune

systems are not totally normal and perhaps our white cells do not

work the way they should?! Any other thoughts on this?

Anyway, I will be glad when Lottie is back. I miss her! I also

have a son in 8th grade and one in 4th grade, so I am frantically

busy right now with start of school things. It feels good and I

love the hustle and bustle. I guess it takes having a serious

illness to make you appreciate all of life's little routines more

and more.

Best wishes,

Vicki

>

> I haven't posted for a while because I have been having some

health

> ups and downs-so I thought I'd catch up a few things.

>

> 1. I was saddened by the passing of some of our warriors most

> recently from across the Pond.

>

> 2. Glad to hear everyone survived the winds and rains even though

it

> appears some are still displaced until services are restored. It's

> not as if we don't have enough challenges does the weather have to

> get involved also?

>

> 3. I still have the list for everyone for their Me2 shirts. I have

> been preoccupied( my health, my mom's health my two friends who

were

> diagnosed with thyroid cancer/ one is an ovarian cancer survivor,

> another of my friends was dx with ovarian and brain lesions) oh

and

> my 14 year old enetering high school-so lots on my mind but I

haven't

> forgotten...they just fell to the lower end of my priorities.

>

> 4. Congrats to Sue on her holding steady.

>

> 5. Health update- I have been having stomach problems on and off.

> Pain and feeling full. They thought it was my spleen but

ultrasound

> showed I have a spleen on the small side not enlarged.I went home

to

> Pa to see my almost 88 year old mom and started feeling sick-

thought

> I may have to cut my vacation short and return to Ca. No way to I

> want to be hospitalized away from my hem/onc. I love my small

town

> but I don't think that would be a healthy decision. Anyway I felt

> better, came back to California, had further ultrasound testing

and

> then on Wednesday was dx with a staph infection and a fever( maybe

> from the testing who knows, I've been trying to remember if the

tech

> wore gloves). Received a call from Kaiser that said my ultrasound

> results were all in normal limits. Received a copy of my report

in

> Saturday's mail ( I get copies of everything) and discovered I

have a

> cyst on my ovary- clearly they think it is normal for a post

> menopausal, 56 year old woman to have a cyst on her ovary- not so

> says the literature. So now I'm calling to make an appointment to

> have them explain why they didn't tell me and what are we going to

do

> about it.

>

> So just a wave hello to all the CMLers , friends and family. I

check

> in to read the posts every few days. Hang in there, everyone.

>

> Chi

>

[Guest guest]

Hi Rhonda, maybe you should pack up and go to Houma and visit Lottie! LOL Bobby

a (Bobby) Doyle

Brecksville, Ohio, USA

DX 05/1995

02/2000 - Gleevec Trial/OHSU

06/2002 - Gleevec/Trisenox Trial/OHSU

06/2003 - Gleevec/Zarnestra Trial/OHSU

04/2004 - Sprycel Trial/MDACC, CCR in 10 months

#840  -   Zavie's Zero Club

09/2006 -  out of CCR

04/29/08 - XL228 Trial/ U.of Michigan

06/02/08 - CCR ( in 4 weeks)

 

From: Sionito@... <Sionito@...>

Subject: Re: [ ] Re: lottie back in houma

Date: Monday, September 8, 2008, 11:18 PM

I got a voiicemail from lottie and they are back in houma now. Hoepfully wse

will char tomorrow and i can get more info on the condition of the house.

Meanwhile... Hurricane is headin to houston! Ugh. More news coming soon...

Rhonda

Sent from my Verizon Wireless BlackBerry

[ ] Re: Misc CML stuff

Chi

Glad to hear from you! I agree with all of your comments! I, too,

am having my health issues including tummy stuff (D and pain)

related to Gleevec, skin things (Redness and skin peeling on my arms

and slapped-cheek looking redness--I look like I've just run a mile

and with my sweats, I feel like it too), severe sweats that are the

bane of my existence and unrelenting, and other things too trivial

to mention--the usual fatigue, etc. I have been managing to work

full-time and get my boys to their soccer games, etc.

I was recently hospitalized for high fever which turned out to be a

urinary tract infection which was very odd, since I had NO symptoms

of that whatsoever. Apparently it was just lurking, waiting to get

me! LOL! Anyway, I was hospitalized for 5 days, several of them in

intensive care. It was horrible and not at all where I wanted to

be.

Our illness affects our health in so many ways it is hard to say

which things are due to the leukemia, and which things are just

normal illnesses that anyone could get. I tend to think most odd

things (like my UTI) could be related to the fact that our immune

systems are not totally normal and perhaps our white cells do not

work the way they should?! Any other thoughts on this?

Anyway, I will be glad when Lottie is back. I miss her! I also

have a son in 8th grade and one in 4th grade, so I am frantically

busy right now with start of school things. It feels good and I

love the hustle and bustle. I guess it takes having a serious

illness to make you appreciate all of life's little routines more

and more.

Best wishes,

Vicki

>

> I haven't posted for a while because I have been having some

health

> ups and downs-so I thought I'd catch up a few things.

>

> 1. I was saddened by the passing of some of our warriors most

> recently from across the Pond.

>

> 2. Glad to hear everyone survived the winds and rains even though

it

> appears some are still displaced until services are restored. It's

> not as if we don't have enough challenges does the weather have to

> get involved also?

>

> 3. I still have the list for everyone for their Me2 shirts. I have

> been preoccupied( my health, my mom's health my two friends who

were

> diagnosed with thyroid cancer/ one is an ovarian cancer survivor,

> another of my friends was dx with ovarian and brain lesions) oh

and

> my 14 year old enetering high school-so lots on my mind but I

haven't

> forgotten... they just fell to the lower end of my priorities.

>

> 4. Congrats to Sue on her holding steady.

>

> 5. Health update- I have been having stomach problems on and off.

> Pain and feeling full. They thought it was my spleen but

ultrasound

> showed I have a spleen on the small side not enlarged.I went home

to

> Pa to see my almost 88 year old mom and started feeling sick-

thought

> I may have to cut my vacation short and return to Ca. No way to I

> want to be hospitalized away from my hem/onc. I love my small

town

> but I don't think that would be a healthy decision. Anyway I felt

> better, came back to California, had further ultrasound testing

and

> then on Wednesday was dx with a staph infection and a fever( maybe

> from the testing who knows, I've been trying to remember if the

tech

> wore gloves). Received a call from Kaiser that said my ultrasound

> results were all in normal limits. Received a copy of my report

in

> Saturday's mail ( I get copies of everything) and discovered I

have a

> cyst on my ovary- clearly they think it is normal for a post

> menopausal, 56 year old woman to have a cyst on her ovary- not so

> says the literature. So now I'm calling to make an appointment to

> have them explain why they didn't tell me and what are we going to

do

> about it.

>

> So just a wave hello to all the CMLers , friends and family. I

check

> in to read the posts every few days. Hang in there, everyone.

>

> Chi

>