SUE PCRU

October 10, 2008

I am on 600 G have been for one year not to 0 yet .7 last Bcr/Able,did your onc

say anything about coming back to 400 or that will be your dose. Do you take 6

-100 or a 4 and 2 sizes.

dx 12/23/05 400 till Oct last year now 600 G.

________________________________

From: Sue <hollie@...>

Sent: Thursday, October 9, 2008 7:44:02 PM

Subject: [ ] Re:Some progress

Martha

I have been on 600mg since being DX and at present PCRU

Teary eyes - now have gone however had these for a year.

Had terrible bone pain this year again has gone

2008 year of the bleed-out - with a hysterectomy as the outcome.

Rashes are my bugbear - and an assortment of all different types - all non itchy

Eye Odeama - that is just normal for me now - tadpole eyes in the morning and by

the time 8.00pm in the evening eyes and face A-OK

I also still experience fatigue - by about 2.30 - 3.00 in the afternoon I stated

to wane

and skin is now becoming paler in colour and I burn more easily

I seem to bleed more when cut - faster flow lately

Took nearly a year to work out that I had become a type of lactose intolerant -

so since not having any

dairy for at least 5 hours each side of taking medication no longer vomit, feel

queesy etc.

I am on a Salt Skip Program SSP www.saltmatters. org which has made a fantastic

difference in my overall health

100mg - 2 weeks - did not have any side effects

200mg - 2 weeks - I found the worst side effects I ever felt was on 200mg (go

figure)

400mg for a month - slight side effects

600mg ever since - I have had across the range side effects but in the last

month or so have felt very well even though I am still experincing side effects.

You will be fine on the 600mg and if glivec is still being tolerated by you -

will get fantastic results I am sure

All side effects can be managed.

Off to feed the horses -

Keep in good Health Martha

Sue (Aussie)

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