Re: sex and cml Hats off to all the loving partners!!!

[Guest guest]

Hello Family of the Warrior Class

This disease has been a blessing in many ways and all

of you are certainly a big part of the gift. I learn

so much everyday amd the support is so amazing.As if

it is not enough that my eyes water on their own

reading Bobby, and other's posts about

love ,committment, soul mates and partners made me

cry.

My new guy may be made of the right stuff. So far he

isn't freaked out by the side effects including a 20

pound weight gain. The people at work keep saying I

look good but you know they mean for someone with

cancer-sometimes my eyes are so swollen that I can't

put makeup on them-lol

But I'm glad I'm here. I do need to get back to the

gym. If anyone is interested in a weight group- I'm

in.

Has anyone heard from " K " - some newbies are onboard

nad I haven't seen her welcome.

One final note from me: The diseases may steal away

desire and/or ability to have sex but it doesn't have

to destroy intimacy and to my sister wondering if she

should skip dinner... you won't have to chase Hubby

around the table just tell him to meet ya half way and

he'll be there.

Love and healing energy to you all.

Chi

--- ROBERTA DOYLE <rcd1929@...> wrote:

> HI ALL, HOW RIGHT YOU ARE. BEING HERE AND BEING

> ABLE TO JUST BE TOGETHER IS WHAT IT'S ALL ABOUT. MY

> SON IN LAW HAS PARKINSON'S. HE IS 55, MY DAUGHTER

> IS 46. SOME DAYS FOR HIM ARE GOOD, SOME ARE NOT.

> ONE DAY LAST WEEK HE PARKED HIS TRUCK AND FORGOT

> WHERE HE PUT IT. HE FINALLY MADE A REPORT TO THE

> POLICE AND THEY FOUND IT FOR HIM. THEN THAT NIGHT

> SHE WAS SUPPOSED TO PICK ME UP AND TAKE ME TO ANN

> ARBOR , MI. FOR MY TREATMENT. SHE CALLED AND SAID

> SHE COULD NOT FIND HER HUSBAND, SHE WOULD BE BY WHEN

> SHE DID! HER LIFE HAS SO CHANGED IN EVERY WAY, I

> PRAY EVERY DAY FOR HER TO BE ABLE TO STAY STRONG AND

> BE ABLE TO HANDLE THIS NEW LIFE OF HERS. SHE SETS

> THE ALARM ON HER PHONE FOR EVERY THREE HOURS, AND NO

> MATTER WHERE SHE IS OR WHAT SHE IS DOING, SHE CALLS

> HIM TO TELL HIM TO TAKE HIS MEDS. IF HER BUSINESS

> LIFE HAS CHANGED SO, I CANNOT IMAGINE HOW HER

> PERSONAL LIFE HAS CHANGED. IT'S TIMES LIKE THAT YOU

> REALIZE WHAT IS IMPORTANT IN LIFE, AND A MARRIAGE IS

> DIFFICULT ENOUGH TO

> GET THROUGH, WITHOUT THROWING IN A SERIOUS ILLNESS.

> I HAVE NOT HAD A PARTNER IN YEARS, HAT'S OFF TO

> THOSE OF YOU THAT DO AND CAN SURVIVE THESE DIFFICULT

> TIMES. AND THAT'S MY TWO CENTS WORTH, BOBBY

>

> letitbe@... wrote: thanks Chi! I

> figured what the heck? Though, I did consult with

> Tab, she

> said I was playing with fire to post on a topic like

> this that mostly the

> ladies where. But, she knows I am brave! lol Her

> having had a full hysterectomy

> at 32, we had already had/have our share of

> dysfunction in that dept. But,

> as I assured her post surgery, there is way more to

> our relationship than just

> sex. While it is way important at any age, it was

> hard on her, I know,

> because of her age of the surgery. But for me as her

> husband, and I assured her

> then and still believe it today, if there was never

> anymore sex, that was ok

> compared to loosing her. I promise you all this, her

> cancer and the prospect

> of loosing her was way harder on me than my CML.

> Hindsight, what I went

> through with her has helped me understand what she

> is going though with my CML.

> How scared she was/is.

>

> Part of why I am posting these comments, maybe

> assure you all that if the

> sex is not what it used to be, your spouse may very

> well miss the sex, of

> course, who wouldn't, but that is such a non-factor

> compared to loosing their soul

> mate. I really mean this and thought perhaps a male

> point of view might be

> helpful.

>

> When I was in the hospital at time of diagnosis, you

> know, if the CML where

> not enough, I had lost almost all my eyesight and we

> were told it may get

> worse and may be permanent, then there was the whole

> being in A-Fib heart beat

> deal, had the have my heart stopped - restarted. I

> mean this was a scary

> deal. Tab's closest girl friend told me recently how

> Tab had broken down

> outside, was crying she was going to loose her best

> friend. I know how she felt, I

> felt the same way during her illness. My point

> being, hopefully most spouses

> are so happy we are doing well, that even some

> little dysfunctions are ok,

> compared to not having their spouse around.

>

> Cheers,

> Chris

>

> **************Get trade secrets for amazing burgers.

> Watch " Cooking with

> Tyler Florence " on AOL Food.

>

(http://food.aol.com/tyler-florence?video=4? & NCID=aolfod00030000000002)

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

>

>

> a (Bobby) Doyle

> Brecksville, Ohio, USA

> DX 05/1995

> 02/2000 - Gleevec Trial/OHSU

> 06/2002 - Gleevec/Trisenox Trial/OHSU

> 06/2003 - Gleevec/Zarnestra Trial/OHSU

> 04/2004 - Sprycel Trial/MDACC, CCR in 10 months

> #840 - Zavie's Zero Club

> 09/2006 - out of CCR

> 04/29/08 - XL228 Trial/ U.of Michigan

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

[Guest guest]

Well put, Sister! My sentiments exactly!

NYC

thanks Chi! I

> > figured what the heck? Though, I did consult with

> > Tab, she

> > said I was playing with fire to post on a topic like

> > this that mostly the

> > ladies where. But, she knows I am brave! lol Her

> > having had a full hysterectomy

> > at 32, we had already had/have our share of

> > dysfunction in that dept. But,

> > as I assured her post surgery, there is way more to

> > our relationship than just

> > sex. While it is way important at any age, it was

> > hard on her, I know,

> > because of her age of the surgery. But for me as her

> > husband, and I assured her

> > then and still believe it today, if there was never

> > anymore sex, that was ok

> > compared to loosing her. I promise you all this, her

> > cancer and the prospect

> > of loosing her was way harder on me than my CML.

> > Hindsight, what I went

> > through with her has helped me understand what she

> > is going though with my CML.

> > How scared she was/is.

> >

> > Part of why I am posting these comments, maybe

> > assure you all that if the

> > sex is not what it used to be, your spouse may very

> > well miss the sex, of

> > course, who wouldn't, but that is such a non-factor

> > compared to loosing their soul

> > mate. I really mean this and thought perhaps a male

> > point of view might be

> > helpful.

> >

> > When I was in the hospital at time of diagnosis, you

> > know, if the CML where

> > not enough, I had lost almost all my eyesight and we

> > were told it may get

> > worse and may be permanent, then there was the whole

> > being in A-Fib heart beat

> > deal, had the have my heart stopped - restarted. I

> > mean this was a scary

> > deal. Tab's closest girl friend told me recently how

> > Tab had broken down

> > outside, was crying she was going to loose her best

> > friend. I know how she felt, I

> > felt the same way during her illness. My point

> > being, hopefully most spouses

> > are so happy we are doing well, that even some

> > little dysfunctions are ok,

> > compared to not having their spouse around.

> >

> > Cheers,

> > Chris

> >

> > **************Get trade secrets for amazing burgers.

> > Watch " Cooking with

> > Tyler Florence " on AOL Food.

> >

> (http://food.aol.com/tyler-florence?video=4?

& NCID=aolfod00030000000002)

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

> >

> >

> >

> >

> > a (Bobby) Doyle

> > Brecksville, Ohio, USA

> > DX 05/1995

> > 02/2000 - Gleevec Trial/OHSU

> > 06/2002 - Gleevec/Trisenox Trial/OHSU

> > 06/2003 - Gleevec/Zarnestra Trial/OHSU

> > 04/2004 - Sprycel Trial/MDACC, CCR in 10 months

> > #840 - Zavie's Zero Club

> > 09/2006 - out of CCR

> > 04/29/08 - XL228 Trial/ U.of Michigan

> >

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>