Guest guest Posted June 29, 2005 Report Share Posted June 29, 2005 > To all that are new and don't know Joan, please keep posting. It will help > us all get back to " normal " through our grief and loss, and it will help us > to carry on her legacy of helping others cope with this disease in a > positive way. > > Please, don't feel it " isn't a good time " to post. At the same time, you will understand our grief and loss if you look back over old posts and see that she was truly a shining star. (this is not my post for you, Kathie! I'm still working on that....). Cindi in PA **If I can ad my 2 cents here as well. Also to the new folks** Do not be frightened by Joans passing. It occurred to me reading all of these wonderful posts that they might be scary to someone who is new and doesn't know Joans story, and is contemplating surgery. Most of us live quite well with A and it is generally not a 'fatal' disease. Joan had very radical, complicated surgery and had several other serious health issues as well. The Heller Myotomy that most of us have had and speak of is fairly routine and uncomplicated. All surgery carries risks but her esophogectomy (sp?) was much, much more complicated than that. If you are new, go back a few months and read some of her posts - it's easy to find, she was here very regularly. She was very informative and caring - as someone else said here 'like your second mom in your achalasia family'. She will be sorely missed. We have very big shoes to fill. Happy Swallowing! in Va. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2005 Report Share Posted June 29, 2005 , This is an excellent point ... I am sorry I did not think to write it. That is another example of why we all need each other. Kathie .. Pittsburgh, PA USA ************************************************************* > **If I can ad my 2 cents here as well. Also to the new folks** > Do not be frightened by Joans passing. It occurred to me reading all > of these wonderful posts that they might be scary to someone who is > new and doesn't know Joans story, and is contemplating surgery. > Most of us live quite well with A and it is generally not a 'fatal' > disease. Joan had very radical, complicated surgery and had several > other serious health issues as well. > The Heller Myotomy that most of us have had and speak of is fairly > routine and uncomplicated. All surgery carries risks but her > esophogectomy (sp?) was much, much more complicated than that. > If you are new, go back a few months and read some of her posts - > > in Va. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2008 Report Share Posted November 7, 2008 Hi, I went to Ann Arbor, all went well with the infusion. Last week I met a couple there, he is the one with the cml. This week I met them again and got their names this time! and Doreen, I gave them this email address, hopefully we will hear from them. is also in the XL228 trial. I visited with Len and Ernie for a bit, when I get there, I go to their motel, and Ernie takes me to the hospital and picks me up when I am done. Usually we go to dinner, this time I took a quick nap and came home, no dinner, didn't feel like it. That's it, have a great weekend everyone, love, Bobby a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR 04/29/08 - XL228 Trial/ U.of Michigan 06/02/08 - CCR ( in 4 weeks) Quote Link to comment Share on other sites More sharing options...
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