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Kicked out of remission

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Tasigna does not have the GI issues of

nausea and vomiting. But for me it does

have fatigue and limited bone pain, and I

mean very limited.

I think you will find it superior (as it

relates to side effects) to Gleevec.

And since it is 30x's more powerful

than Gleevec, lets hope it zaps you

back into PCRU!

With the warmest regards,

Matt

CML of Florida

Dx January of 2005

Gleevec March of 2005

Tasigna November of 2007

Number 1078 in the Esteemed Zavie Zero Club

In a message dated 10/30/2008 2:20:22 P.M. Eastern Daylight Time,

leukican@... writes:

I just got the pcr and fish results back from my Dr yesterday and it

was not good. The sprycel that I take is not working and I am no longer

in remission. I have relasped. Friday I will be starting Tasignia to

see if that will put me back into remission. Has anyone taken this

drug? What are its side effects? I am a little concerned.

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Good luck to you . I hope that Tasigna is the answer for you.

Hugs,

Judy P. in Calgary

__________________________________________________________________

Canada Toolbar: Search from anywhere on the web, and bookmark your

favourite sites. Download it now at

http://ca.toolbar..

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How are the side effects fo Tasigna compared to Sprycel?

Bernadette

________________________________

From: " mtmaynor@... " <

>

Sent: Thursday, October 30, 2008 4:05:15 PM

Subject: Re: [ ] Kicked out of remission

Tasigna does not have the GI issues of

nausea and vomiting. But for me it does

have fatigue and limited bone pain, and I

mean very limited.

I think you will find it superior (as it

relates to side effects) to Gleevec.

And since it is 30x's more powerful

than Gleevec, lets hope it zaps you

back into PCRU!

With the warmest regards,

Matt

CML of Florida

Dx January of 2005

Gleevec March of 2005

Tasigna November of 2007

Number 1078 in the Esteemed Zavie Zero Club

In a message dated 10/30/2008 2:20:22 P.M. Eastern Daylight Time,

leukican (DOT) com writes:

I just got the pcr and fish results back from my Dr yesterday and it

was not good. The sprycel that I take is not working and I am no longer

in remission. I have relasped. Friday I will be starting Tasignia to

see if that will put me back into remission. Has anyone taken this

drug? What are its side effects? I am a little concerned.

************ **Plan your next getaway with AOL Travel. Check out Today's Hot

5 Travel Deals!

(http://pr.atwola. com/promoclk/ 100000075x121241 6248x1200771803/ aol?redir=

http://travel. aol.com/discount -travel?ncid= emlcntustrav0000 0001)

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Tracey

Hopefully Tasigna is the drug for you.

What a shock to get the results that you have jumped out of

remission, enough to change drugs.

How long were you on Sprycel and glivec

At least there is another drug or perhaps a combination of drugs.

Thinking of you and fingers crossed for Friday first new taking of

the medication.

Let us all know how you get on.

What a pain to learn another medication management routine.

That is why you are the educator Tracey.

Cyber hugs and thinking of you

Sue

--- In , " JudyPrusky, Calgary " <leukie2002@...>

wrote:

>

> Good luck to you . I hope that Tasigna is the answer for you.

>

> Hugs,

> Judy P. in Calgary

>

>

>

__________________________________________________________________

> Canada Toolbar: Search from anywhere on the web, and

bookmark your favourite sites. Download it now at

> http://ca.toolbar..

>

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Hi Sue,

I'm not sure if you had us confused or if you knew that there was

another (without the " e " ) so I thought I'd just post to make

sure there was no confusion.

I'm still on Gleevec and have been since Feb 2002. We all hope that

will do well on Tasigna.

Tracey

> >

> > Good luck to you . I hope that Tasigna is the answer for

you.

> >

> > Hugs,

> > Judy P. in Calgary

> >

> >

> >

> __________________________________________________________________

> > Canada Toolbar: Search from anywhere on the web, and

> bookmark your favourite sites. Download it now at

> > http://ca.toolbar..

> >

>

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Hi

Anyone ever have low counts of vitamin D or Vitamin D deficiency?

I have.

I am on Tasigna.

The dr. is giving me a vitamin D prescription. A heavy dose for three weeks.

Sharon

_____

From: [mailto: ] On Behalf Of Tracey

Sent: Monday, November 03, 2008 6:55 PM

Subject: [ ] Re: Kicked out of remission

Hi Sue,

I'm not sure if you had us confused or if you knew that there was

another (without the " e " ) so I thought I'd just post to make

sure there was no confusion.

I'm still on Gleevec and have been since Feb 2002. We all hope that

will do well on Tasigna.

Tracey

> >

> > Good luck to you . I hope that Tasigna is the answer for

you.

> >

> > Hugs,

> > Judy P. in Calgary

> >

> >

> >

> __________________________________________________________

> > Canada Toolbar: Search from anywhere on the web, and

> bookmark your favourite sites. Download it now at

> > http://ca.toolbar. <http://ca.toolbar..> .

> >

>

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H Sharon,

I'd like to know if anyone actually has normal levels of Vit D

because I have yet to see anyone who hasn't tested below normal

limits and that's not just us CMLers but also regular folk.

Tracey

> > >

> > > Good luck to you . I hope that Tasigna is the answer for

> you.

> > >

> > > Hugs,

> > > Judy P. in Calgary

> > >

> > >

> > >

> > __________________________________________________________

> > > Canada Toolbar: Search from anywhere on the web, and

> > bookmark your favourite sites. Download it now at

> > > http://ca.toolbar. <http://ca.toolbar..> .

> > >

> >

>

>

>

>

>

>

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Thanks Tracey but they are concerned because my PTH (parathyroid hormone) is

high and they think it is because my Vitamin D is low. We will see.

I think it is because I love the sun and we have no sun right now in

Northern Calif. Not much anyway.

Sharon

_____

From: [mailto: ] On Behalf Of Tracey

Sent: Monday, November 03, 2008 7:10 PM

Subject: [ ] Re: Kicked out of remission

H Sharon,

I'd like to know if anyone actually has normal levels of Vit D

because I have yet to see anyone who hasn't tested below normal

limits and that's not just us CMLers but also regular folk.

Tracey

> > >

> > > Good luck to you . I hope that Tasigna is the answer for

> you.

> > >

> > > Hugs,

> > > Judy P. in Calgary

> > >

> > >

> > >

> > __________________________________________________________

> > > Canada Toolbar: Search from anywhere on the web, and

> > bookmark your favourite sites. Download it now at

> > > http://ca.toolbar. <http://ca.toolbar. <http://ca.toolbar..>

.> .

> > >

> >

>

>

>

>

>

>

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Well

I cannot blame the - Tracey confusion on glivec - I will blame

that on having a seniors moment

Was confused but the sentiment was the same

Hope Tracey 1 and 2 are both in good health

Hopefully tasi is the drug that will support

Sue

> > >

> > > Good luck to you . I hope that Tasigna is the answer for

> you.

> > >

> > > Hugs,

> > > Judy P. in Calgary

> > >

> > >

> > >

> >

__________________________________________________________________

> > > Canada Toolbar: Search from anywhere on the web, and

> > bookmark your favourite sites. Download it now at

> > > http://ca.toolbar..

> > >

> >

>

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Hi!

I am taking vitamin D 2000 IU per day because my levels were low. If

you live in cloudy part of the world (which Seattle is!), your levels

are likely to be low. More and more is being discovered about

vitamin D and the role it plays in just about everything you can

imagine and it is very hard to over dose. I'd take some permanently

if I were you!

Vicki

> > >

> > > Good luck to you . I hope that Tasigna is the answer for

> you.

> > >

> > > Hugs,

> > > Judy P. in Calgary

> > >

> > >

> > >

> > __________________________________________________________

> > > Canada Toolbar: Search from anywhere on the web, and

> > bookmark your favourite sites. Download it now at

> > > http://ca.toolbar. <http://ca.toolbar..> .

> > >

> >

>

>

>

>

>

>

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