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Hi!

I seem to remember reading of perhaps two other adults who received

HBOT, possibly post CVA, and Medicare " accidently " covered part of it.

Does anyone know if that is the case? If so, do you know which State

and/ or the condition?

I am preparing for a hearing and perhaps if I can say other States

did the same as Louisiana Medicare with me, it may open a door, perhaps.

Thanks!

Joanne Brindley

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Dear Mr. Manson,

Hi! Although I understand the frustration, please, please don't

give up. Every time they are challenged, they receive a " ping " in their

armor. A ping here and there is no big deal, but multiple assaults....

I know it is a long, arduous, frustrating fight, but we must continue.

Think of how long it took Mr. Freels and others. Once one of us

penetrates Medicare's armor, a precedent will be set which I pray can be

used by everyone who follows.

Remember, Truth is on our side!

Joanne Brindley

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  • 4 years later...

Sherri, You are in good hands with Dr. Kveton & Myles. You have nothing to

worry about on your being covered by Medicare. Good luck.

Ralph

CII 8/01

HiRes 2/03

> This is a practice (affiliated with Yale) that does CIs routinely, the

> surgeon and chief audiologist have been doing them for over 20 years. Is

> it a

> safe bet to go with " Don't worry, we know what qualifies for coverage... "

> or is

> Medicare coverage so 'iffy' that we should push for confirmation of

> pre-approval?

>

> TIA,

> Sherri

> CT

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Hi Sherri,

I am on M-care with a secondary. My CI clinic (House Clinic in Los

Angeles)

knows the guidelines on what m-care will pay and what they won't. It

depends

solely on the hearing test. The surgeon will know automatically if

your husband is

a candidate depending on the scores of the tests (words, sentences,

tones etc)

I wouldn't worry about it. Medicare coverage is not iffy. It is cut

and dry.

Wishing your hubby success on Dec 11.

a B

Implanted Freedom 8-21-06

On Dec 5, 2006, at 7:50 AM, brnrpal@... wrote:

> The archives have lots of discussion about the need to document

> insurance

> approval in writing before proceeding with surgery. Does the same

> hold true

> for Medicare?

>

> Surgery is scheduled for my husband's first CI on Dec 11, but when

> I asked

> the surgeon's billing dept for a copy of the Medicare approval,

> they basically

> told me not to worry... if the doctor has determined Len's a

> candidate for

> CI, Medicare will cover it.

>

> This is a practice (affiliated with Yale) that does CIs routinely, the

> surgeon and chief audiologist have been doing them for over 20

> years. Is it a

> safe bet to go with " Don't worry, we know what qualifies for

> coverage... " or is

> Medicare coverage so 'iffy' that we should push for confirmation of

> pre-approval?

>

> TIA,

> Sherri

> CT

>

>

>

>

>

>

>

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  • 1 year later...

I was diagnosed with CML in Aug. 1998. After 26 months of INF, I

started Gleevec and have been doing well ever since. Along the way,

I had 16 BMB's, but for the past several years, I have been monitored

by PCR/FISH blood tests every 6 months. About a year ago, Medicare

stopped covering these tests for me. According to Quest Labs,

Medicare reports that these tests " are not medically necessary "

and " do not meet Medicare Guidelines to support the medical need for

the test " . My supplemental ins. will not cover these tests because

they have been denied by Medicare. My provider claims they have not

changed the diagnostic codes and can't do anything more. Before

contacting Medicare (which can be an arduous undertaking), I decided

to find out what others have experienced.

Thus, my question is, have any of you who are on Medicare had a

similar experience with coverage denial from them?

Thanks for your replies and suggestions.

Earl in Tucson

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Suzzie: Thanks for your reply. BMB costs $1000+ and the PCR/FISH is

$115.17. It's a no brainer. I con't figure why Medicare refuses to

pay. Earl

> > HI EARL: I was diagnosed in Dec. of 1998, and went through the

> Interferon/Ara-C only for a few months before it became toxic to my

> liver. I am not on Medicare yet, but you should fight it with them. I

> do not know if the PCR is more expensive than a BMB, but tell them

that

> this is the way they determine your status to be sure you are in

> remission. They probably feel that if your routine blood work is

> holding steady that you do not need the tests. My oncologist told me

> to just get the PCR's every 6 months, so they do not have to keep

going

> into my bone for biopsy. I would tell them they will be paying out a

> lot more if your status goes into blast phase, and thats why testing

is

> needed to keep track. I hope you get the right answers. We have been

> very blessed since 1998

> Suzzie

> > I was diagnosed with CML in Aug. 1998. After 26 months of INF, I

> > started Gleevec and have been doing well ever since. Along the way,

> > I had 16 BMB's, but for the past several years, I have been

monitored

> > by PCR/FISH blood tests every 6 months. About a year ago, Medicare

> > stopped covering these tests for me. According to Quest Labs,

> > Medicare reports that these tests " are not medically necessary "

> > and " do not meet Medicare Guidelines to support the medical need for

> > the test " . My supplemental ins. will not cover these tests because

> > they have been denied by Medicare. My provider claims they have not

> > changed the diagnostic codes and can't do anything more. Before

> > contacting Medicare (which can be an arduous undertaking), I decided

> > to find out what others have experienced.

> > Thus, my question is, have any of you who are on Medicare had a

> > similar experience with coverage denial from them?

> > Thanks for your replies and suggestions.

> > Earl in Tucson

> >

>

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That's very interesting, a  BMB for $1000.00  I just received the invoice for my

Oct. BMb/BMA, ONE BILL WAS:$6,331.00, AND ANOTHER, SAME DATE, $1,219.00, MAKING

IT , TOTAL $7,550.00.  I AM IN A TRIAL SO DO NOT PAY ANY OF THIS, BUT THERE IS

QUITE A DIDFFERENCE IN PRICE, NO?  Bobby

a (Bobby) Doyle

Brecksville, Ohio, USA

DX 05/1995

02/2000 - Gleevec Trial/OHSU

06/2002 - Gleevec/Trisenox Trial/OHSU

06/2003 - Gleevec/Zarnestra Trial/OHSU

04/2004 - Sprycel Trial/MDACC, CCR in 10 months

#840  -   Zavie's Zero Club

09/2006 -  out of CCR

04/29/08 - XL228 Trial/ U.of Michigan

06/02/08 - CCR ( in 4 weeks)

 

From: earlharford <earlharford@...>

Subject: [ ] Re: Medicare coverage

Date: Friday, November 14, 2008, 6:08 PM

Suzzie: Thanks for your reply. BMB costs $1000+ and the PCR/FISH is

$115.17. It's a no brainer. I con't figure why Medicare refuses to

pay. Earl

> > HI EARL: I was diagnosed in Dec. of 1998, and went through the

> Interferon/Ara- C only for a few months before it became toxic to my

> liver. I am not on Medicare yet, but you should fight it with them. I

> do not know if the PCR is more expensive than a BMB, but tell them

that

> this is the way they determine your status to be sure you are in

> remission. They probably feel that if your routine blood work is

> holding steady that you do not need the tests. My oncologist told me

> to just get the PCR's every 6 months, so they do not have to keep

going

> into my bone for biopsy. I would tell them they will be paying out a

> lot more if your status goes into blast phase, and thats why testing

is

> needed to keep track. I hope you get the right answers. We have been

> very blessed since 1998

> Suzzie

> > I was diagnosed with CML in Aug. 1998. After 26 months of INF, I

> > started Gleevec and have been doing well ever since. Along the way,

> > I had 16 BMB's, but for the past several years, I have been

monitored

> > by PCR/FISH blood tests every 6 months. About a year ago, Medicare

> > stopped covering these tests for me. According to Quest Labs,

> > Medicare reports that these tests " are not medically necessary "

> > and " do not meet Medicare Guidelines to support the medical need for

> > the test " . My supplemental ins. will not cover these tests because

> > they have been denied by Medicare. My provider claims they have not

> > changed the diagnostic codes and can't do anything more. Before

> > contacting Medicare (which can be an arduous undertaking) , I decided

> > to find out what others have experienced.

> > Thus, my question is, have any of you who are on Medicare had a

> > similar experience with coverage denial from them?

> > Thanks for your replies and suggestions.

> > Earl in Tucson

> >

>

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Mine was also $6,000.00 plus..Had mine about 3 months ago..

SharonS

In , ROBERTA DOYLE <rcd1929@...> wrote:

>

> That's very interesting, a  BMB for $1000.00  I just received the

invoice for my Oct. BMb/BMA, ONE BILL WAS:$6,331.00, AND ANOTHER,

SAME DATE, $1,219.00, MAKING IT , TOTAL $7,550.00.  I AM IN A TRIAL

SO DO NOT PAY ANY OF THIS, BUT THERE IS QUITE A DIDFFERENCE IN PRICE,

NO?  Bobby

>

>

> a (Bobby) Doyle

> Brecksville, Ohio, USA

> DX 05/1995

> 02/2000 - Gleevec Trial/OHSU

> 06/2002 - Gleevec/Trisenox Trial/OHSU

> 06/2003 - Gleevec/Zarnestra Trial/OHSU

> 04/2004 - Sprycel Trial/MDACC, CCR in 10 months

> #840  -   Zavie's Zero Club

> 09/2006 -  out of CCR

> 04/29/08 - XL228 Trial/ U.of Michigan

> 06/02/08 - CCR ( in 4 weeks)

>  

>

>

>

> From: earlharford <earlharford@...>

> Subject: [ ] Re: Medicare coverage

>

> Date: Friday, November 14, 2008, 6:08 PM

>

>

>

>

>

>

> Suzzie: Thanks for your reply. BMB costs $1000+ and the PCR/FISH is

> $115.17. It's a no brainer. I con't figure why Medicare refuses to

> pay. Earl

>

> > > HI EARL: I was diagnosed in Dec. of 1998, and went through the

> > Interferon/Ara- C only for a few months before it became toxic to

my

> > liver. I am not on Medicare yet, but you should fight it with

them. I

> > do not know if the PCR is more expensive than a BMB, but tell them

> that

> > this is the way they determine your status to be sure you are in

> > remission. They probably feel that if your routine blood work is

> > holding steady that you do not need the tests. My oncologist told

me

> > to just get the PCR's every 6 months, so they do not have to keep

> going

> > into my bone for biopsy. I would tell them they will be paying

out a

> > lot more if your status goes into blast phase, and thats why

testing

> is

> > needed to keep track. I hope you get the right answers. We have

been

> > very blessed since 1998

> > Suzzie

> > > I was diagnosed with CML in Aug. 1998. After 26 months of INF, I

> > > started Gleevec and have been doing well ever since. Along the

way,

> > > I had 16 BMB's, but for the past several years, I have been

> monitored

> > > by PCR/FISH blood tests every 6 months. About a year ago,

Medicare

> > > stopped covering these tests for me. According to Quest Labs,

> > > Medicare reports that these tests " are not medically necessary "

> > > and " do not meet Medicare Guidelines to support the medical

need for

> > > the test " . My supplemental ins. will not cover these tests

because

> > > they have been denied by Medicare. My provider claims they have

not

> > > changed the diagnostic codes and can't do anything more. Before

> > > contacting Medicare (which can be an arduous undertaking) , I

decided

> > > to find out what others have experienced.

> > > Thus, my question is, have any of you who are on Medicare had a

> > > similar experience with coverage denial from them?

> > > Thanks for your replies and suggestions.

> > > Earl in Tucson

> > >

> >

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

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I would like to know how people on Medicare are paying for their Gleevec. I am

not there yet, but it is my biggest worry.

_________________________________________________________________

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08

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I get it through Novartis Patient Assistance. If they ever stop giving it

away - I don't know what I'd do.

Tammy

_____

From: [mailto: ] On Behalf Of

Cohen

Sent: Saturday, November 15, 2008 6:44 AM

Subject: RE: [ ] Re: Medicare coverage

I would like to know how people on Medicare are paying for their Gleevec. I

am not there yet, but it is my biggest worry.

__________________________________________________________

Color coding for safety: Windows Live Hotmail alerts you to suspicious

email.

http://windowslive.

<http://windowslive.com/Explore/Hotmail?ocid=TXT_TAGLM_WL_hotmail_acq_safety

_112008> com/Explore/Hotmail?ocid=TXT_TAGLM_WL_hotmail_acq_safety_112008

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