Guest guest Posted October 16, 2008 Report Share Posted October 16, 2008 My goodness, K, this absolutely fantastic news!!! You are one tough cookie putting up with all you have been through! I'm very happy that you received your PCRU news!!! hugs to you, JoAnn > > Hey Group. . . > After being diagnosed in the Accelerated Phase in November, 2003 with 800,000+ per Million. . .I began my Survival on Gleevec. > I became '0~~Negative' per the FISH Test in January, 2005; and reached 0.00136 per the RT-PCR Test in 2006. After I maintained this level over a year, I knew that I would never meet my demise from our Bug it would be from one of my other 22+ Chronic Diseases. However, in February, 2008; I was 0.00021 per the RT-PCR Test, and knew that I had reached my maximum. > However, yesterday I received results of PCRU per the RT-PCR Test. I know that this is accurate due to the fact that ALL my testing has been done at the same lab, by the same Dr, and at the same level 100,000. > 5 years later after being given 2-5 months morbid mortality at diagnosis; not being a candidate for a BMT; and unable to enter any Clinical Trials--use any of the 2nd, 3rd, or 4th generation medications available. . . I AM A SURVIVAL . . .I AIN'T FINISHED YET ! ! ! > Brother & Sister Survivors, please take care; and know that ALL of US aren't meant to reach '0'. . .there is no CURE for our Bug. I know that being PCRU, I have Phillies in the -3Trillion cells not examined and always will have our bug, I am only experiencing my Best Response~~not remission~~not CURE (heHeHE). > I am not a Doctor, never portrayed one on TV, nor do I aspire to be a Physician in another life. This is FYI/my 2 cents only. > " K " > > " I AIN'T FINISHED YET " !!! > > Quote Link to comment Share on other sites More sharing options...
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