Guest guest Posted November 20, 2008 Report Share Posted November 20, 2008 Vicki, See my comments in line.. Wow..I thought I wrote this post... In , " Schepman " <vickistu@...> wrote: > > Hi! Just checking in to see if anyone has noticed weird side effects > such as the following (Since they are driving me crazy lately): > > 1. Nail weirdness (fingers and toes). Both my big toenails fell > off. They did grow back, but they are weird now. My fingernail > cuticle area (where the " moon " is) is deformed -- not a moon anymore, > but more a moon with a tumor! =============== I or the first time have nice long thicker nails than before gleevec.I do however have a weird white spot on one nail.Looks like it got bent or slammed in the door or something but isn't..A white bruise..maybe..weird.. > > 2. Vasomotor weirdness. My face is bright red all the time now. > Occasionally one of my ears turns bright red and gets very hot. I > sweat profusely many times per day. I chill and sweat at the same > time. ================== I have a red warm face almost all the day through.I chill and sweat at the same time as well..My reddness is brightest immediately following my taking Gleevec..My son will look at me and say " did you just take your meds? " ..It is obvious.. > > 3. Weight gain. I am on other meds that could cause this (for > diabetes, high cholesterol, etc.), but just wonder about Gleevec. ================ I struggle with weight gain..I write everything down that goes into my mouth.I count calories,protein,watch fats and carbs like a mad woman.I now have a 10-15 pound float range depending on how much I am retaining.I also take Lasix to help but itdoesn't help enough.I am about 6 pounds above my lowest weight ever. > 4. Unusual skin problems. My arms are scaly and the skin peels off > in sheets. I soak up lotion like a sponge all over. Things take > forever to heal. ================ My skin is dry and I have like blister like spots here and there.Red blister like things under the skin..Weird again.. > > 5. Difficulty with vision/excessive watering eyes. ================ My vision is not as good. I squint more now.My eyes are extremely swollen.Worse in the morning and they weep and have crusty stuff now and I never had that before gleevec. > > 6. Tummy pain. Excessive heartburn and acid reflux. Diarrhea. > Every single day. ================= I have increased stomach pain and acid reflux as well.I suffer from IBS w/constipation but since gleevec I have bouts of Diarrhea out of the blue not related to eating or not.. > > I know a lot of these could be diabetes related too, but I had > diabetes before I had leukemia and it seems like they have come on > only since Gleevec. =================== I am also diabetic.I have not changed those meds at all.All these symptoms have come on since I have started gleevec as well.I am exhausted all the time and ache all over the place.My daily narcotic intake has increased since gleevec as well. > > Thanks for your feedback. I guess we're all in this together, > right! ? =============== Yes, Vicki I am in this too.You are not alone.. Hang in there.I have been on Gleevec for only 6 months.I was hoping the side effects would lesson as others have stated.Still waiting.May take longer for me.I heal slowly also. Good luck SharonS > > Vicki > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2008 Report Share Posted November 20, 2008 > Hi Vicki: You are having some real weird side effects alright. I am also diabetic, but the only side effects I have had is the Heartburn ( REFLUX), and I take Nexium for that. I am always cold, I get cramping in my feet real bad sometimes. I have had visual disturbances, and weight gain. I have dents in my fingernails, and they say its a deficiency of some kind, and possibly from my Parathyroid Disease which I also have. I just keep plugging along, and being grateful. I know how you feel though. Everytime you turn around something new is wrong. Take Care and I hope most of these things clear up for you soon. Suzzie > Hi! Just checking in to see if anyone has noticed weird side effects > such as the following (Since they are driving me crazy lately): > > 1. Nail weirdness (fingers and toes). Both my big toenails fell > off. They did grow back, but they are weird now. My fingernail > cuticle area (where the " moon " is) is deformed -- not a moon anymore, > but more a moon with a tumor! > > 2. Vasomotor weirdness. My face is bright red all the time now. > Occasionally one of my ears turns bright red and gets very hot. I > sweat profusely many times per day. I chill and sweat at the same > time. > > 3. Weight gain. I am on other meds that could cause this (for > diabetes, high cholesterol, etc.), but just wonder about Gleevec. > > 4. Unusual skin problems. My arms are scaly and the skin peels off > in sheets. I soak up lotion like a sponge all over. Things take > forever to heal. > > 5. Difficulty with vision/excessive watering eyes. > > 6. Tummy pain. Excessive heartburn and acid reflux. Diarrhea. > Every single day. > > I know a lot of these could be diabetes related too, but I had > diabetes before I had leukemia and it seems like they have come on > only since Gleevec. > > Thanks for your feedback. I guess we're all in this together, > right! ? > > Vicki > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2008 Report Share Posted November 20, 2008 Sorry no side affects like that I am on 600 Gleevec and Zetia for cholesterol,no statants.3 years this dec. ________________________________ From: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2008 Report Share Posted November 22, 2008 , I could tell you from the onset of starting Gleevec some 4 years ago and only on 100mgs. that immediately I had these very tough looking toenails that were very thicken by Gleevec. My skin got tougher, and the scaly aspect of the skin was extremely dry. I wasn't too sure about the skin, because I was a great power swimmer at the time, and since there are so many different chemicals in swimming pools I thought it was due to the chlorine in the pool. I would buy everything in the market place to add more moisture back into the skin. At that time the infancy of Gleevec, they did not know much about the side-effects and I had no one to speak regarding these effects. I ended up not using a swimming pool due to severe skin problem. Had a horrible rash, where my Primary kept insisting it was ezemca which it was not. Then these little holes would ooze some type of liquids that when I scratch them it would contagiously spread to other parts of the body. When I took a shower, it had to be cool water and not a hot bathe. The rash was so bad, it was on my lower back, my legs arms, and along different areas of the face. My hands were very rough, along the center between my breast was a severe rash, everywhere on my body that was a moist area turned into a tough itchy skin exterior. It finally subsided after a year or 2 and while I went on a medication to shrink the sores and lumps that itch me like CRAZY! What you need to do is modify your diet, of intake of foods. The acid reflux comes from too much gluten foods like dinner rolls, white flour, meat and cheese products. Dairy was extremely a problem as well. If I told you to take vitamin C the whole group would jump on me again, however this works for me! Dory Doggie ________________________________ From: Schepman <vickistu@...> Sent: Wednesday, November 19, 2008 11:02:16 PM Subject: [ ] Weird Side Effects Hi! Just checking in to see if anyone has noticed weird side effects such as the following (Since they are driving me crazy lately): 1. Nail weirdness (fingers and toes). Both my big toenails fell off. They did grow back, but they are weird now. My fingernail cuticle area (where the " moon " is) is deformed -- not a moon anymore, but more a moon with a tumor! 2. Vasomotor weirdness. My face is bright red all the time now. Occasionally one of my ears turns bright red and gets very hot. I sweat profusely many times per day. I chill and sweat at the same time. 3. Weight gain. I am on other meds that could cause this (for diabetes, high cholesterol, etc.), but just wonder about Gleevec. 4. Unusual skin problems. My arms are scaly and the skin peels off in sheets. I soak up lotion like a sponge all over. Things take forever to heal. 5. Difficulty with vision/excessive watering eyes. 6. Tummy pain. Excessive heartburn and acid reflux. Diarrhea. Every single day. I know a lot of these could be diabetes related too, but I had diabetes before I had leukemia and it seems like they have come on only since Gleevec. Thanks for your feedback. I guess we're all in this together, right! ? Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2008 Report Share Posted December 25, 2008 I haven't gone through this thread entirely, but if it hasn't been posted yet, this article may explain skin healing issues with Gleevec. http://www.gistsupport.org/ask-the-professional/skin-related-side-effects-of-sun\ itinib.php I started at 400mg about 2 years ago. Now I'm up to 800mg. All's well except for my skin. Prior to Gleevec I had some facial flushing that was due, in my opinion to steroid induced rosacea. After discontinuing the steroid, my face just continued to get worse. My face is red and burns almost all the time. I've been trying to get some relief from Chinese medicine. No relief yet. Good luck. Mark > > , > I could tell you from the onset of starting Gleevec some 4 years ago and only on 100mgs. that immediately I had these very tough looking toenails that were > very thicken by Gleevec. My skin got tougher, and the scaly aspect of the skin > was extremely dry. I wasn't too sure about the skin, because I was a great > power swimmer at the time, and since there are so many different chemicals > in swimming pools I thought it was due to the chlorine in the pool. > > I would buy everything in the market place to add more moisture back into > the skin. At that time the infancy of Gleevec, they did not know much about > the side-effects and I had no one to speak regarding these effects. > > I ended up not using a swimming pool due to severe skin problem. Had a horrible rash, where my Primary kept insisting it was ezemca which it was not. > Then these little holes would ooze some type of liquids that when I scratch them it would contagiously spread to other parts of the body. When I took a shower, it had to be cool water and not a hot bathe. The rash was so bad, > it was on my lower back, my legs arms, and along different areas of the face. > My hands were very rough, along the center between my breast was a severe > rash, everywhere on my body that was a moist area turned into a tough itchy > skin exterior. It finally subsided after a year or 2 and while I went on a medication to shrink the sores and lumps that itch me like CRAZY! > > What you need to do is modify your diet, of intake of foods. The acid reflux > comes from too much gluten foods like dinner rolls, white flour, meat and cheese products. Dairy was extremely a problem as well. > > > If I told you to take vitamin C the whole group would jump on me again, however this works for me! > Dory Doggie > > > > > > ________________________________ > From: Schepman <vickistu@...> > > Sent: Wednesday, November 19, 2008 11:02:16 PM > Subject: [ ] Weird Side Effects > > > Hi! Just checking in to see if anyone has noticed weird side effects > such as the following (Since they are driving me crazy lately): > > 1. Nail weirdness (fingers and toes). Both my big toenails fell > off. They did grow back, but they are weird now. My fingernail > cuticle area (where the " moon " is) is deformed -- not a moon anymore, > but more a moon with a tumor! > > 2. Vasomotor weirdness. My face is bright red all the time now. > Occasionally one of my ears turns bright red and gets very hot. I > sweat profusely many times per day. I chill and sweat at the same > time. > > 3. Weight gain. I am on other meds that could cause this (for > diabetes, high cholesterol, etc.), but just wonder about Gleevec. > > 4. Unusual skin problems. My arms are scaly and the skin peels off > in sheets. I soak up lotion like a sponge all over. Things take > forever to heal. > > 5. Difficulty with vision/excessive watering eyes. > > 6. Tummy pain. Excessive heartburn and acid reflux. Diarrhea. > Every single day. > > I know a lot of these could be diabetes related too, but I had > diabetes before I had leukemia and it seems like they have come on > only since Gleevec. > > Thanks for your feedback. I guess we're all in this together, > right! ? > > Vicki > > > > > > > Quote Link to comment Share on other sites More sharing options...
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