Guest guest Posted September 21, 2008 Report Share Posted September 21, 2008 I am on 800 mg, broken up into two doses during the day. I have the following side effects: Muscle Cramping Constipation Bone Pain Upper Back Pain Fatigue Double Vision I have found that for me, these are not near as severe or as constant as they were with Gleevec. The bone pain is not near as frequent, but it is more severe when it happens. I have tried taking electrolytes (including Gatorade), but found that just increasing my intake of water and trying moderate exercise to sweat toxins out of my body have helped the most. Peace to all. With the warmest regards, Matt CML of Florida Dx January of 2005 Gleevec March of 2005 Tasigna November of 2007 Number 1078 in the Esteemed Zavie Zero Club In a message dated 9/21/2008 10:12:52 A.M. Eastern Daylight Time, barbarastanley@... writes: Hello all you warriors! I am curious, those of you on tasigna. I have been on 400 mg a day since january. Until about a month ago, I felt like I was on a honeymoon with the drug. I am beginning to experience muscle cramping in my hands and feet. This is a first with the drug. In all the reading I have done, I do not see where it is mentioned as a side effect. I also take diazide for fluid build up around the knees, joints and things. I do read that fluid retention is a side effect but slight. If I don't take the diazide, I hurt. I am wondering if anyone else on tasgina is having these side effects. I have been sooooo good for soooo long and I am just a bit scared that those nasty side effects I had with gleevec are going to return with Tasigna... Anyone have any input? Blessings on you all, Barb **************Looking for simple solutions to your real-life financial challenges? Check out WalletPop for the latest news and information, tips and calculators. (http://www.walletpop.com/?NCID=emlcntuswall00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2008 Report Share Posted September 22, 2008 Barb, I have been on 800mg of Tasigna for a year now. 400 in the morning and 400 12 hours later. My main side effects are pain in my legs, it is constant and I was sent to a rhuematologist to check out if the pain was from something else. He ran just about every test possible and found no cause other then a possible side effect from Tasigna. I had surgery in July and was off my Tasigna for 21 days and my leg pain went away totally for that amount of time. The pain came back about 2 days after restarting my Tasigna. I also have some fatigue and some pain in my arms if I over do it. Hope this helps. Chuck [ ] Tasigna Buddies Hello all you warriors! I am curious, those of you on tasigna. I have been on 400 mg a day since january. Until about a month ago, I felt like I was on a honeymoon with the drug. I am beginning to experience muscle cramping in my hands and feet. This is a first with the drug. In all the reading I have done, I do not see where it is mentioned as a side effect. I also take diazide for fluid build up around the knees, joints and things. I do read that fluid retention is a side effect but slight. If I don't take the diazide, I hurt. I am wondering if anyone else on tasgina is having these side effects. I have been sooooo good for soooo long and I am just a bit scared that those nasty side effects I had with gleevec are going to return with Tasigna... Anyone have any input? Blessings on you all, Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2008 Report Share Posted September 22, 2008 I have been on Tasigna since the end of March, 2008. I have had no side effects until my last visit to Moffitt Cancer Center on Sept 4, 2008. I started Tasigna with 400mg, followed by 600mg and then 800mg. A recent blood test at Moffitt showed an increase in the Lipase level. Referance range is 23-300 but my leverl is 426. It indicates a problem with the Pancreas so instead of going back to Moffitt at two to three months, I must return in one month. My dosage has been reduced to 600mg. I guess there will always be some expected problems with these very powerful drugs. From: Barb Stanley <barbarastanley@...> Subject: [ ] Tasigna Buddies Date: Sunday, September 21, 2008, 10:12 AM Hello all you warriors! I am curious, those of you on tasigna. I have been on 400 mg a day since january. Until about a month ago, I felt like I was on a honeymoon with the drug. I am beginning to experience muscle cramping in my hands and feet. This is a first with the drug. In all the reading I have done, I do not see where it is mentioned as a side effect. I also take diazide for fluid build up around the knees, joints and things. I do read that fluid retention is a side effect but slight. If I don't take the diazide, I hurt. I am wondering if anyone else on tasgina is having these side effects. I have been sooooo good for soooo long and I am just a bit scared that those nasty side effects I had with gleevec are going to return with Tasigna... Anyone have any input? Blessings on you all, Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2008 Report Share Posted September 22, 2008 : Who do you see at Moffit? Matt [ ] Tasigna Buddies Date: Sunday, September 21, 2008, 10:12 AM Hello all you warriors! I am curious, those of you on tasigna. I have been on 400 mg a day since january. Until about a month ago, I felt like I was on a honeymoon with the drug. I am beginning to experience muscle cramping in my hands and feet. This is a first with the drug. In all the reading I have done, I do not see where it is mentioned as a side effect. I also take diazide for fluid build up around the knees, joints and things. I do read that fluid retention is a side effect but slight. If I don't take the diazide, I hurt. I am wondering if anyone else on tasgina is having these side effects. I have been sooooo good for soooo long and I am just a bit scared that those nasty side effects I had with gleevec are going to return with Tasigna... Anyone have any input? Blessings on you all, Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2008 Report Share Posted September 22, 2008 I see Dr Panilla. Who do you see? Jess From: Barb Stanley <barbarastanley@ cox.net> Subject: [ ] Tasigna Buddies groups (DOT) com Date: Sunday, September 21, 2008, 10:12 AM Hello all you warriors! I am curious, those of you on tasigna. I have been on 400 mg a day since january. Until about a month ago, I felt like I was on a honeymoon with the drug. I am beginning to experience muscle cramping in my hands and feet. This is a first with the drug. In all the reading I have done, I do not see where it is mentioned as a side effect. I also take diazide for fluid build up around the knees, joints and things. I do read that fluid retention is a side effect but slight. If I don't take the diazide, I hurt. I am wondering if anyone else on tasgina is having these side effects. I have been sooooo good for soooo long and I am just a bit scared that those nasty side effects I had with gleevec are going to return with Tasigna... Anyone have any input? Blessings on you all, Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2008 Report Share Posted September 22, 2008 : That same crazy Spaniard.? After the impersonal approach of MDACC, he has been a breath of fresh air and he really cares about your quality of life. Matt Florida [ ] Tasigna Buddies groups (DOT) com Date: Sunday, September 21, 2008, 10:12 AM Hello all you warriors! I am curious, those of you on tasigna. I have been on 400 mg a day since january. Until about a month ago, I felt like I was on a honeymoon with the drug. I am beginning to experience muscle cramping in my hands and feet. This is a first with the drug. In all the reading I have done, I do not see where it is mentioned as a side effect. I also take diazide for fluid build up around the knees, joints and things. I do read that fluid retention is a side effect but slight. If I don't take the diazide, I hurt. I am wondering if anyone else on tasgina is having these side effects. I have been sooooo good for soooo long and I am just a bit scared that those nasty side effects I had with gleevec are going to return with Tasigna... Anyone have any input? Blessings on you all, Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2008 Report Share Posted September 22, 2008 > y Dear Barb. i have been on tasigna for 210 days and i have no side effects except weight gain.i was so sorry to hear your latest news. that scares me so much. I hope it will all pass for. I am doing so well with my test results and just hope it will last. take care and keep in touch Aloha sharon Hello all you warriors! > I am curious, those of you on tasigna. I have been on 400 mg a day > since january. Until about a month ago, I felt like I was on a > honeymoon with the drug. I am beginning to experience muscle cramping > in my hands and feet. This is a first with the drug. In all the > reading I have done, I do not see where it is mentioned as a side > effect. I also take diazide for fluid build up around the knees, > joints and things. I do read that fluid retention is a side effect but > slight. If I don't take the diazide, I hurt. I am wondering if anyone > else on tasgina is having these side effects. I have been sooooo good > for soooo long and I am just a bit scared that those nasty side > effects I had with gleevec are going to return with Tasigna... > Anyone have any input? > Blessings on you all, > Barb > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2008 Report Share Posted September 22, 2008 He is always willing to listen to me and he answers all my questions in a way that I can understand I am very pleased with him. On my first visit, I had a very hard time understanding him but that is no longer the problem. We are very lucky. Jess From: Barb Stanley <barbarastanley@ cox.net> Subject: [ ] Tasigna Buddies groups (DOT) com Date: Sunday, September 21, 2008, 10:12 AM Hello all you warriors! I am curious, those of you on tasigna. I have been on 400 mg a day since january. Until about a month ago, I felt like I was on a honeymoon with the drug. I am beginning to experience muscle cramping in my hands and feet. This is a first with the drug. In all the reading I have done, I do not see where it is mentioned as a side effect. I also take diazide for fluid build up around the knees, joints and things. I do read that fluid retention is a side effect but slight. If I don't take the diazide, I hurt. I am wondering if anyone else on tasgina is having these side effects. I have been sooooo good for soooo long and I am just a bit scared that those nasty side effects I had with gleevec are going to return with Tasigna... Anyone have any input? Blessings on you all, Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2008 Report Share Posted September 23, 2008 Sharon, So glad to see the BIG FAT ZERO! Did you reach this on tasigna or were you on gleevec before? I think I am going to find I will be able to lose about 10 pounds and not much more. I think Tasi is the culprit of most of the weight. We will see. Any hoo..... I am going to give it the old college try. Be well all of you, Barb > >> > >> > y > >> > >> > >> > >> Dear Barb. > >> i have been on tasigna for 210 days and i have no side effects > > except > >> weight gain.i was so sorry to hear your latest news. that scares > > me so > >> much. I hope it will all pass for. I am doing so well with my test > > results > >> and just hope it will last. > >> take care and keep in touch > >> Aloha sharon > >> > >> > >> > >> > >> Hello all you warriors! > >> > I am curious, those of you on tasigna. I have been on 400 mg a > > day > >> > since january. Until about a month ago, I felt like I was on a > >> > honeymoon with the drug. I am beginning to experience muscle > > cramping > >> > in my hands and feet. This is a first with the drug. In all the > >> > reading I have done, I do not see where it is mentioned as a side > >> > effect. I also take diazide for fluid build up around the knees, > >> > joints and things. I do read that fluid retention is a side > > effect but > >> > slight. If I don't take the diazide, I hurt. I am wondering if > > anyone > >> > else on tasgina is having these side effects. I have been sooooo > > good > >> > for soooo long and I am just a bit scared that those nasty side > >> > effects I had with gleevec are going to return with Tasigna... > >> > Anyone have any input? > >> > Blessings on you all, > >> > Barb > >> > > >> > > >> > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.