Re: Sprycel Diet - Metabolism

[Guest guest]

Hi ,

Have you had your thyroid checked? An underactive thyroid can effect

your ability to lose weight.

Take care,

Tracey

>

> Hi All,

>

> I finally heard back regarding my question to Bristol-Meyers

regarding the possibility that Sprycel lowers our metabolism making

it easy to gain weight and hard to lose it. Well, I heard a pro form

answer that the only way we might gain weight because of Sprycel is

through fluid retention. It indicates that there's been no

investigation of Sprycel and metabolism.

>

> I intend to follow up on this with my onc at the trial because I

really do believe there is something to it and that BMS and Novartis

simply haven't really studied the issue. I may be wrong, of course,

but there's a lot of anecdotal evidence.

>

> FOr myself, I'm eating a normal, watchful diet that is low fat, low

salt and as high in fiber as I can make it through eating bran and

vegetables and fruits. I'm not gaining any weight. Since I've

quit " dieting " my focus is not on food and I find that I'm actually

eating less.

>

> Smiles,

>

>

>

[Guest guest]

I'm going to do that, Tracey. I had an underactive thyroid with a previous

medication (unrelated to CML) and it may be playing a role here. If that is

true (don't know yet) then that's important to know.

Thanks, Tracey!

[ ] Re: Sprycel Diet - Metabolism

Hi ,

Have you had your thyroid checked? An underactive thyroid can effect

your ability to lose weight.

Take care,

Tracey

>

> Hi All,

>

> I finally heard back regarding my question to Bristol-Meyers

regarding the possibility that Sprycel lowers our metabolism making

it easy to gain weight and hard to lose it. Well, I heard a pro form

answer that the only way we might gain weight because of Sprycel is

through fluid retention. It indicates that there's been no

investigation of Sprycel and metabolism.

>

> I intend to follow up on this with my onc at the trial because I

really do believe there is something to it and that BMS and Novartis

simply haven't really studied the issue. I may be wrong, of course,

but there's a lot of anecdotal evidence.

>

> FOr myself, I'm eating a normal, watchful diet that is low fat, low

salt and as high in fiber as I can make it through eating bran and

vegetables and fruits. I'm not gaining any weight. Since I've

quit " dieting " my focus is not on food and I find that I'm actually

eating less.

>

> Smiles,

>

>

>

[Guest guest]

I agree with you , I have a bowling ball stomach and have never ever in my

life had this sort of problems..Like I told you before. I would have to eat in

between meals to just maintain 102. Extremely high metabolism.. Ha Ha now is

jsut the oppsite. I can gain weight by watching others eat.. We had three solid

weeks of clean up from IKE, lots of raking hauling debree (hard physical labor..

Ha Lots of pain pills to get me through.. Well I gainied 3 pounds in one

weekend. I only had a p & J sandwich for lunch and again for supper on the

weekends. Of course we stay hydrated lots of gatorade and water. I am good to

work 15 to 20 mins and then another 15 min break. Did this and gained.. What is

wrong here.

thanks so much for keeping us abreast of this.

 

[ ] Sprycel Diet - Metabolism

Hi All,

I finally heard back regarding my question to Bristol-Meyers regarding the

possibility that Sprycel lowers our metabolism making it easy to gain weight and

hard to lose it. Well, I heard a pro form answer that the only way we might gain

weight because of Sprycel is through fluid retention. It indicates that there's

been no investigation of Sprycel and metabolism.

I intend to follow up on this with my onc at the trial because I really do

believe there is something to it and that BMS and Novartis simply haven't really

studied the issue. I may be wrong, of course, but there's a lot of anecdotal

evidence.

FOr myself, I'm eating a normal, watchful diet that is low fat, low salt and as

high in fiber as I can make it through eating bran and vegetables and fruits.

I'm not gaining any weight. Since I've quit " dieting " my focus is not on food

and I find that I'm actually eating less.

Smiles,

[Guest guest]

My Granny had been taking Gleevec for a year and all of a sudden she got very

weak. I took her to the emergency room and they found out that she has an

overactive thyroid and they told us that the thyroid controls all sorts of thing

in your body. In her case, she would have eventually had a heart attack. But, it

also controls your metabolism and if I were you, I would get the thyroid

checked. All they have to do is take some blood.

[ ] Re: Sprycel Diet - Metabolism

Hi ,

Have you had your thyroid checked? An underactive thyroid can effect

your ability to lose weight.

Take care,

Tracey

>

> Hi All,

>

> I finally heard back regarding my question to Bristol-Meyers

regarding the possibility that Sprycel lowers our metabolism making

it easy to gain weight and hard to lose it. Well, I heard a pro form

answer that the only way we might gain weight because of Sprycel is

through fluid retention. It indicates that there's been no

investigation of Sprycel and metabolism.

>

> I intend to follow up on this with my onc at the trial because I

really do believe there is something to it and that BMS and Novartis

simply haven't really studied the issue. I may be wrong, of course,

but there's a lot of anecdotal evidence.

>

> FOr myself, I'm eating a normal, watchful diet that is low fat, low

salt and as high in fiber as I can make it through eating bran and

vegetables and fruits. I'm not gaining any weight. Since I've

quit " dieting " my focus is not on food and I find that I'm actually

eating less.

>

> Smiles,

>

>

>

[Guest guest]

Hi everyone. Been awhile but I wanted to comment. I had a very

similar experience with the Sprycel: I had a huge tummy and I would

look 6 months pregnant. I think I gained around 10 lbs which I

eventually lost with little dieting AFTER I went back on Gleevac.

Sometimes my weight would bounce around though. I also had some bad

gnawing belly pain that was unrelenting. I finally went off the

Sprycel because of the pain. I kept wondering about it. My vague

impression was that my gut was not moving like it should...quite

possibly just a lot of fluid somewhere... At one point they couldn't

hear any bowel sounds when the pain was really bad. Didn't get any

imaging like I should have though cause of ins etc. I think it has

something to do with motility and fluid accumulation. (not

necessarily ascites...anyone get a GI opinion on it? That's a

bummer...somethings up with this...

>

> I agree with you , I have a bowling ball stomach and have

never ever in my life had this sort of problems..Like I told you

before. I would have to eat in between meals to just maintain 102.

Extremely high metabolism.. Ha Ha now is jsut the oppsite. I can gain

weight by watching others eat.. We had three solid weeks of clean up

from IKE, lots of raking hauling debree (hard physical labor.. Ha

Lots of pain pills to get me through.. Well I gainied 3 pounds in one

weekend. I only had a p & J sandwich for lunch and again for supper on

the weekends. Of course we stay hydrated lots of gatorade and water.

I am good to work 15 to 20 mins and then another 15 min break. Did

this and gained.. What is wrong here.

> thanks so much for keeping us abreast of this.

>

>  

>

>

> [ ] Sprycel Diet - Metabolism

>

>

> Hi All,

>

> I finally heard back regarding my question to Bristol-Meyers

regarding the possibility that Sprycel lowers our metabolism making

it easy to gain weight and hard to lose it. Well, I heard a pro form

answer that the only way we might gain weight because of Sprycel is

through fluid retention. It indicates that there's been no

investigation of Sprycel and metabolism.

>

> I intend to follow up on this with my onc at the trial because I

really do believe there is something to it and that BMS and Novartis

simply haven't really studied the issue. I may be wrong, of course,

but there's a lot of anecdotal evidence.

>

> FOr myself, I'm eating a normal, watchful diet that is low fat, low

salt and as high in fiber as I can make it through eating bran and

vegetables and fruits. I'm not gaining any weight. Since I've

quit " dieting " my focus is not on food and I find that I'm actually

eating less.

>

> Smiles,

>

>

>