Guest guest Posted September 17, 2008 Report Share Posted September 17, 2008 Lottie, if you take a lot of iron pills you poop black!! But I find I have to take my iron pills with food, two in the morning, one at night, but with substantial food. They also prefer you take them with orange juice. I take 975 mg a day. Bobby a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR 04/29/08 - XL228 Trial/ U.of Michigan 06/02/08 - CCR ( in 4 weeks) From: Lottie Duthu <lotajam@...> Subject: [ ] Iron supplements " CML " < > Date: Wednesday, September 17, 2008, 2:31 AM Dear Vicki, I thought I might be low on iron since I needed so many transfusions, so I ordered 5 bottles of iron. Every time I took it, it made me sick. I hope I can return it because I won't be using it again. Some said it caused diarrhea, but I thought it caused the opposite. Some people (like my husband and son) cannot absorb iron, so I buy vitamins without iron. Nothing is either black or white, is it? Blessings, Lottie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2008 Report Share Posted September 18, 2008 Dear Bobbie, Yep, you're right! I have been taking 975 mg a day for quite some time now plus I receive Aranesp injections every 3 weeks, 500 mcgs. The nurses always ask me if I get constipated because of all the iron, but it hasn't caused that at all. I guess I eat enough junk food it keeps things moving. I take my in the morning with breakfast and one at night after supper. I just take it with water. Is the orange juice suppose to help it absorb better? With all the supplements that I take for iron, my hgb is still 9.5. Glad I take the supplements. Love, Jackie From: Lottie Duthu <lotajamcomcast (DOT) net> Subject: [ ] Iron supplements " CML " <groups (DOT) com> Date: Wednesday, September 17, 2008, 2:31 AM Dear Vicki, I thought I might be low on iron since I needed so many transfusions, so I ordered 5 bottles of iron. Every time I took it, it made me sick. I hope I can return it because I won't be using it again. Some said it caused diarrhea, but I thought it caused the opposite. Some people (like my husband and son) cannot absorb iron, so I buy vitamins without iron. Nothing is either black or white, is it? Blessings, Lottie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2008 Report Share Posted September 19, 2008 Lottie, That's the truth! I can't take iron either--when I was pregnant with my oldest daughter, , I was plugged up something awful from those awful prenatal vitamins with iron. LOL! Though I sure didn't think it was funny back then! With all the other discomforts of pregnancy, constipation was one more I didn't need. I finally had to get IV iron infusion when I was diagnosed with CML because I had been taking iron orally for six months and just never could absorb it either, and my iron levels were trending ever lower. They're getting low again now, but so far haven't had to have any transfusions or any more iron either. Keeping my fingers crossed that it will be awhile longer before we get there again. You take care of yourself and I think I might make a batch of gumbo this weekend again--the weather is starting to get a bit nippy up here--we're having foggy mornings, and the boys keep telling me they want more and to put extra hot in it this time!! Hugs, Vicki > > Dear Vicki, > I thought I might be low on iron since I needed so many transfusions, so I ordered 5 bottles of iron. Every time I took it, it made me sick. I hope I can return it because I won't be using it again. Some said it caused diarrhea, but I thought it caused the opposite. Some people (like my husband and son) cannot absorb iron, so I buy vitamins without iron. Nothing is either black or white, is it? > Blessings, > Lottie > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2009 Report Share Posted February 13, 2009 Hi J I am glad I am not the only one who could only tolerate a quarter of a quarter grain of Armour which was what I was taking when I started last year. I ended up taking 6 Nutri Adrenal which enabled me to slowly up the dose. I am now taking IsoCort instead and am feeling a lot better. I started taking Armour last May and I am now on 1 grain !! Dr P said that as I have a conversion dysfunction, the T4 was pooling. I am now starting to take T3 and I think the IsoCort is helping me to tolerate the increase. Are you taking any adrenal supplements? I has taken me since October 2007 to get to where I am now - so much trial and error, so much upset when things did not turn out right, so much stress. I thought that I would never be on the right road to feeling well. But Sheila says that we must be patient - and keep trying. I have come to the conclusion that I am hyper sensitive when it comes to medication. The one grain of Armour, the three pellets of IsoCort and now the one quarter of 5mcg of T3 I am taking at the moment is making me feel not too bad. I will tentatively try to up the T3, but I am not going to rush things. Take your time, dont rush or worry too much - the worrying could be the thing that is blocking your ability to up your dose. Keep smiling Luv B >I have been on Armour since July last year, but can only tolerate a > quarter of a quarter grain and although a minute amount, I so need > it, but my system shuts down (as Dr P puts it) when I now try to > raise as something is stopping absorption. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2009 Report Share Posted February 13, 2009 Hi Thanks for your reply - yes, it is good to know that someone else had to start on quarter of a quarter grain. Yes, I have been on Adrenal support and don't need it anymore. Like yourself I have been seeing Dr P for two years this April and definately had Adrenal fatique to start with and went on HC which was better. But after six months, began to realise that my weight gain was caused by the HC and I was on too much. I came down gradually and it took a year from starting to coming off completely, but I was fine when off it as far as the adrenal symptoms were concerned, but still left with the thyroid. Got checked by Dr P who confirmed this and my BP was back to normal from sitting to standing. We then explored other avenue, ie Oestrogen deficiency which made a different when taking Serenity, but still not enough, then checked everything form B12 to Ferritin to all my hormones again and Candida - which Dr P said was now fine. I therefore concluded that I was being impatient and as I'd been unwell for so long I was obviously one that would not tolerate big doses too soon and as seen as I'd been on Armour for six months I must also be converting the small amount too. So as I say the Ferritin always niggled me in the back of my mind and so took the 'bull by the horns' so to speak and made the decision to try supplementing with the Ferrus Sulphate and I can't believe the difference this week - and believe me after ten years of trying everything it is no placebo effect. The only thing now is the stomach/digestive niggles that are appearing which I feel must be as a result of this. I have upped my Vitamin C to 3/4000 per day, but as I say would like to know how others have gone on with Iron Supplementation and whether there are more 'user friendly' versions on the market that don't cause stomach upsets/nausea. It may settle down, i dont know? Anyway thanks for the kind words, and no, I dont' worry, after being ill for so long I have learnt that to worry is NOT the thing to do and have certainly changed my outlook and live for now and make the most of it, no matter how rough I feel. I believe there is light at the end of the tunnel and find it I will and you will too, like you say you just have to be patient, get to know your own body's reaction and work with specialist advice and you'll be fine eventually. Take care J J Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2009 Report Share Posted February 14, 2009 Hi J, Sounds like you have made progress by adding iron. Have you tried adding vit C to help the iron absorb- this will also offset any constipation. I have heard others recommend Spatone as a source of iron. Subject: Iron Supplements As a further attempt to find out why I cannot raise Armour any further I have decided to try Iron. My Ferritin when last checked by GP (at my insistance) was 63. I started taking Ferrous Sulpate last weekend after requesting it at Boots Chemists and for no other reason, I have been loads better this week - ie numbness in face and head lifting and feels a lot clearer. I am wondering if the others amongst you who take it have any problems with slight nausea/digestive problems and is there a better more 'friendly' type I can take. I am guessing a course for three months can do no harm and at least I will then know whether this is preventing Thryiod up-take. J ------------------------------------ TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2009 Report Share Posted February 14, 2009 Hi , I have used 3 different iron supplements, neither of which upset my digestive system Florisene by Lamberts - bought from nutricentre Source Naturals advanced ferrochel - bought from iherb. The latter increased my ferritin quicker. I take 1 to 3 of these a day (3 a day when needing to increase ferritin). Val but as I say would like to know how others have gone on with Iron Supplementation and whether there are more 'user friendly' versions on the market that don't causestomach upsets/nausea. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2010 Report Share Posted September 5, 2010 Xiao Sometimes with our kids it is hard to tell what is behavioral and what is medical. I can't help much with the medical as I am only a mom. I only know what worked for . Are you sure the reaction was from the iron supplement? Or was something else going on at the same time like starting school that caused anxiety? We never had a reaction to iron and I have not heard of anyone else having one, but every kid is different. Dr. G or Laurie probably is the best to answer that one. There is so little dairy I wouldn't worry about that small amount affecting him. Sometimes when they start a new med you have to give it a few weeks until their bodies adjust to the new stuff. I remember when we started something new sometimes would wet the bed but within a week or two he was back to normal. Their systems are so sensitive in the beginning but as they get better that goes away. We had die off from both the antifungal and antiviral and did not see any change from the SSRI that quickly. Maybe you are thinking it is the meds because you are worried about giving them. They pick up on our feelings even though they are supposedly socially behind. Whenever I was feeling good about what we were doing, improved. Positive attitude helps. Easier said than done with our kids. But if you don't feel it, fake it sometimes works. I had to play mind games with myself to keep me moving forward at times. Especially during the early years when it was all so overwhelming. I know when was little he was attached to my hip. I was his window to the world and when I had PMS, he was out of control. When I was upbeat and hopeful about some new treatment or medicine we were starting, he seemed better. Once I did an experiment. When he was crabby I cranked on the rock and roll and started dancing around the house to see if I could change the way he was acting. Soon he was better. That was when I came up with the " If you don't feel it, fake it " treatment. Sometimes instead of rock and roll this treatment would consist of ignoring bad behavior and changing the scenery when things were melting down. I'd take him for a walk, bike ride or throw him in the car and we would go somewhere, anywhere else. (park, mall, grocery store or anything to change our outlook) Our kids are hard and we are often wracked with fear and anxiety about how things will be for them in the future. It is often depressing and hard to get up each day and keep going, but what other choice do we have? And is the process of wearing our doctor or therapist hats, we sometimes forget to be their mommy and make them hug us even when we don't want them to or they don't want to. I used to tell , " You have to hug me. I'm your mommy and it's your job. " When things were spiraling out of control or I was obsessing over the smallest parts of the diet or medical, I would try to remember I had to treat him like a kid. There were days when I cancelled all the therapies and just got to be mommy. We need that and they need that from us also. I didn't want to be the doctor or behavior therapist anymore. When I didn't have hope or a plan it was the hardest time for me. When I couldn't go on, I would tell myself he was weird, but many weird people made it. What about Einstein, Bill Gates, Jacque Cousteau and Edison. All these guys didn't really fit but they did okay. Aw, the mind games we have to play to keep going at this. Another therapy for me was doing something nice for someone else or helping another parent. It got me out of my pity party and focused on something tangible and good to do. Helping others is great therapy for all of us. That is why I have stayed on this list for so long. It really is about how much it helps me too. Best, Marcia From: xiao xu [mailto:xh16882003@...] Sent: Saturday, September 04, 2010 12:19 PM and Marcia Hinds Subject: Iron supplements Dear and Marcia, When I read the " Summary chapter for my book on Dr. Goldberg's treatment " , I noticed that you mentioned that Dr. G prescribed iron supplements for . Iron is extremely important to the function of brain cells. My son has tried Feosol Ferrous Sulfate tablets (contains milk), but he became hyperactive, extremely distractive, woke up in the midnight, and more anxiety. I stopped it and Dr. G prescribed a Baby Ferrous Sulfate liquid 0.6 ml 3x/day. (Contains citric acid). It was milder but also caused his articulation became worse, more verbal and body stimming, and body itch. I know iron is very important and I have to give him but not yet find an appropriate one. My son has been on Valtrex for three months (die off for 26 days) and Nizoral (No die off) for two months and I have not yet seen good results. I just started Paxil yesterday and he woke up at 1:00 am and never slept back. 1. What iron supplements you have given to ? Did he have any reactions with them at beginning? 2. Did have die off with mediations in the 16 years? It seemed like he always had improvements with any medications. Thank you so much! Have a great weekend! Xiao Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2010 Report Share Posted September 5, 2010 Hi Marcia. Do you happen to know if there are supplements, etc. that help PANDAS? has been diagnosed with PANDAS by Dr. Cunningham's test and the results came back extremely high (194). He has been referred to an immunologist here and our dr has recommended high-dose IVIG as per the recommendation of Dr. Bouboulis. Do you know if any supplements will help while we wait? Thanks, From: [mailto: ] On Behalf Of and Marcia Hinds Sent: September-05-10 8:41 AM 'xiao xu'; Subject: RE: Iron supplements Xiao Sometimes with our kids it is hard to tell what is behavioral and what is medical. I can't help much with the medical as I am only a mom. I only know what worked for . Are you sure the reaction was from the iron supplement? Or was something else going on at the same time like starting school that caused anxiety? We never had a reaction to iron and I have not heard of anyone else having one, but every kid is different. Dr. G or Laurie probably is the best to answer that one. There is so little dairy I wouldn't worry about that small amount affecting him. Sometimes when they start a new med you have to give it a few weeks until their bodies adjust to the new stuff. I remember when we started something new sometimes would wet the bed but within a week or two he was back to normal. Their systems are so sensitive in the beginning but as they get better that goes away. We had die off from both the antifungal and antiviral and did not see any change from the SSRI that quickly. Maybe you are thinking it is the meds because you are worried about giving them. They pick up on our feelings even though they are supposedly socially behind. Whenever I was feeling good about what we were doing, improved. Positive attitude helps. Easier said than done with our kids. But if you don't feel it, fake it sometimes works. I had to play mind games with myself to keep me moving forward at times. Especially during the early years when it was all so overwhelming. I know when was little he was attached to my hip. I was his window to the world and when I had PMS, he was out of control. When I was upbeat and hopeful about some new treatment or medicine we were starting, he seemed better. Once I did an experiment. When he was crabby I cranked on the rock and roll and started dancing around the house to see if I could change the way he was acting. Soon he was better. That was when I came up with the " If you don't feel it, fake it " treatment. Sometimes instead of rock and roll this treatment would consist of ignoring bad behavior and changing the scenery when things were melting down. I'd take him for a walk, bike ride or throw him in the car and we would go somewhere, anywhere else. (park, mall, grocery store or anything to change our outlook) Our kids are hard and we are often wracked with fear and anxiety about how things will be for them in the future. It is often depressing and hard to get up each day and keep going, but what other choice do we have? And is the process of wearing our doctor or therapist hats, we sometimes forget to be their mommy and make them hug us even when we don't want them to or they don't want to. I used to tell , " You have to hug me. I'm your mommy and it's your job. " When things were spiraling out of control or I was obsessing over the smallest parts of the diet or medical, I would try to remember I had to treat him like a kid. There were days when I cancelled all the therapies and just got to be mommy. We need that and they need that from us also. I didn't want to be the doctor or behavior therapist anymore. When I didn't have hope or a plan it was the hardest time for me. When I couldn't go on, I would tell myself he was weird, but many weird people made it. What about Einstein, Bill Gates, Jacque Cousteau and Edison. All these guys didn't really fit but they did okay. Aw, the mind games we have to play to keep going at this. Another therapy for me was doing something nice for someone else or helping another parent. It got me out of my pity party and focused on something tangible and good to do. Helping others is great therapy for all of us. That is why I have stayed on this list for so long. It really is about how much it helps me too. Best, Marcia From: xiao xu [mailto:xh16882003@... <mailto:xh16882003%40> ] Sent: Saturday, September 04, 2010 12:19 PM and Marcia Hinds Subject: Iron supplements Dear and Marcia, When I read the " Summary chapter for my book on Dr. Goldberg's treatment " , I noticed that you mentioned that Dr. G prescribed iron supplements for . Iron is extremely important to the function of brain cells. My son has tried Feosol Ferrous Sulfate tablets (contains milk), but he became hyperactive, extremely distractive, woke up in the midnight, and more anxiety. I stopped it and Dr. G prescribed a Baby Ferrous Sulfate liquid 0.6 ml 3x/day. (Contains citric acid). It was milder but also caused his articulation became worse, more verbal and body stimming, and body itch. I know iron is very important and I have to give him but not yet find an appropriate one. My son has been on Valtrex for three months (die off for 26 days) and Nizoral (No die off) for two months and I have not yet seen good results. I just started Paxil yesterday and he woke up at 1:00 am and never slept back. 1. What iron supplements you have given to ? Did he have any reactions with them at beginning? 2. Did have die off with mediations in the 16 years? It seemed like he always had improvements with any medications. Thank you so much! Have a great weekend! Xiao Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2010 Report Share Posted September 6, 2010 > > Xiao > > Sometimes with our kids it is hard to tell what is behavioral and what is > medical. I can't help much with the medical as I am only a mom. I only > know what worked for . Are you sure the reaction was from the iron > supplement? Or was something else going on at the same time like starting > school that caused anxiety? We never had a reaction to iron and I have not > heard of anyone else having one, but every kid is different. Dr. G or > Laurie probably is the best to answer that one. There is so little dairy I > wouldn't worry about that small amount affecting him. Sometimes when they > start a new med you have to give it a few weeks until their bodies adjust to > the new stuff. I remember when we started something new sometimes > would wet the bed but within a week or two he was back to normal. Their > systems are so sensitive in the beginning but as they get better that goes > away. > > > > We had die off from both the antifungal and antiviral and did not see any > change from the SSRI that quickly. Maybe you are thinking it is the meds > because you are worried about giving them. They pick up on our feelings > even though they are supposedly socially behind. > > > > Whenever I was feeling good about what we were doing, improved. > Positive attitude helps. Easier said than done with our kids. But if you > don't feel it, fake it sometimes works. I had to play mind games with > myself to keep me moving forward at times. Especially during the early years > when it was all so overwhelming. > > > > I know when was little he was attached to my hip. I was his window to > the world and when I had PMS, he was out of control. When I was upbeat and > hopeful about some new treatment or medicine we were starting, he seemed > better. > > Once I did an experiment. When he was crabby I cranked on the rock and roll > and started dancing around the house to see if I could change the way he was > acting. Soon he was better. That was when I came up with the " If you don't > feel it, fake it " treatment. Sometimes instead of rock and roll this > treatment would consist of ignoring bad behavior and changing the scenery > when things were melting down. I'd take him for a walk, bike ride or throw > him in the car and we would go somewhere, anywhere else. (park, mall, > grocery store or anything to change our outlook) > > Our kids are hard and we are often wracked with fear and anxiety about how > things will be for them in the future. It is often depressing and hard to > get up each day and keep going, but what other choice do we have? And is the > process of wearing our doctor or therapist hats, we sometimes forget to be > their mommy and make them hug us even when we don't want them to or they > don't want to. I used to tell , " > You have to hug me. I'm your mommy and it's your job. " > > When things were spiraling out of control or I was obsessing over the > smallest parts of the diet or medical, I would try to remember I had to > treat him like a kid. There were days when I cancelled all the therapies > and just got to be mommy. We need that and they need that from us also. I > didn't want to be the doctor or behavior therapist anymore. When I didn't > have hope or a plan it was the hardest time for me. > > When I couldn't go on, I would tell myself he was weird, but many weird > people made it. What about Einstein, Bill Gates, Jacque Cousteau and > Edison. All these guys didn't really fit but they did okay. Aw, the mind > games we have to play to keep going at this. Another therapy for me was > doing something nice for someone else or helping another parent. It got me > out of my pity party and focused on something tangible and good to do. > Helping others is great therapy for all of us. That is why I have stayed on > this list for so long. It really is about how much it helps me too. > > Best, > > Marcia > > > > > > From: xiao xu [mailto:xh16882003@...] > Sent: Saturday, September 04, 2010 12:19 PM > and Marcia Hinds > Subject: Iron supplements > > > > Dear and Marcia, > > > > When I read the " Summary chapter for my book on Dr. Goldberg's treatment " , I > noticed that you mentioned that Dr. G prescribed iron supplements for . > Iron is extremely important to the function of brain cells. > > > > My son has tried Feosol Ferrous Sulfate tablets (contains milk), but he > became hyperactive, extremely distractive, woke up in the midnight, and more > anxiety. I stopped it and Dr. G prescribed a Baby Ferrous Sulfate liquid 0.6 > ml 3x/day. (Contains citric acid). It was milder but also caused his > articulation became worse, more verbal and body stimming, and body itch. I > know iron is very important and I have to give him but not yet find an > appropriate one. > > > > My son has been on Valtrex for three months (die off for 26 days) and > Nizoral (No die off) for two months and I have not yet seen good results. I > just started Paxil yesterday and he woke up at 1:00 am and never slept back. > > > > 1. What iron supplements you have given to ? Did he have any reactions > with them at beginning? > > > > 2. Did have die off with mediations in the 16 years? It seemed like he > always had improvements with any medications. > > > > Thank you so much! > > > > Have a great weekend! > > > > Xiao > > > > > > > > Xiao Such good advice from Marcia!! My grandson has been on 3 different antivirals I know how you feel Xiao we feel die off WILL NEVER END!!. Now he has been on valtrex over a month he is still having die off (headaches mostly) & not sleeping & not eating but we do see improvements. Would love to know if anyone`s child had die off continously? How long for anyone`s child did the die off last? We are seeing more improvements now. Today he joined in playing basketball made 2 baskets!! I have actually done what Marcia is talking about & it does help tremendously. I am 64 this little boy has definately brought out the silly in me & my husband. He loves to come & stay over night we have had some rough times but the good override all that. He has taught us so much. Carole > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2010 Report Share Posted September 6, 2010 Carole, He is so lucky to have you in his life. And what a wonderful relief for his family to have someone who loves him to take care of him. How wonderful to give the family a break so they can recharge and get up and do this another day. That is something we never had. I always wanted a grandma and grandpa for my kids. We were all alone and far away from family in Minnesota. The rest of the family was in California. I could never leave because even my husband couldn't handle in the early days. As he got better thanks to Dr G that all changed. But I still couldn't leave him with a babysitter until his sister was about nine or ten and really was the one babysitting even though we were paying someone else to be in charge. These kids tax us but when they make small strides, we are so grateful. And who could have known that such a tough kid would grow into the wonderful person he is today. He is so amazing. We have a cousin in need of assistance. (Going through a messy divorce and trying to sell her house.) was over there today cleaning windows and doing yard work with a smile on his face worrying more about her than all the work he was doing. And that first shrink said this kid would never have empathy. Don't believe what all those doctors (except Dr. G of course) say your kids will never do. Just keep plugging and trying to notice what they are doing right instead of noticing all the things you still have to teach them. Best, Marcia P.S. Wish we would have had you for a grandma!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2010 Report Share Posted September 6, 2010 Marcia, Thank you for your encouraging words of support to me, and all the parents fighting the fight. Here in Simi, every day I wake up ready and turbo-charged. Hearing how far has come and what his initial grim prognosis was, always gives me hope, and more of a will to carry on. Thank you for being there, and always helping. You do so much good, more than you will ever know! Sincerely, Marilyn Re: Iron supplements Carole, He is so lucky to have you in his life. And what a wonderful relief for his family to have someone who loves him to take care of him. How wonderful to give the family a break so they can recharge and get up and do this another day. That is something we never had. I always wanted a grandma and grandpa for my kids. We were all alone and far away from family in Minnesota. The rest of the family was in California. I could never leave because even my husband couldn't handle in the early days. As he got better thanks to Dr G that all changed. But I still couldn't leave him with a babysitter until his sister was about nine or ten and really was the one babysitting even though we were paying someone else to be in charge. These kids tax us but when they make small strides, we are so grateful. And who could have known that such a tough kid would grow into the wonderful person he is today. He is so amazing. We have a cousin in need of assistance. (Going through a messy divorce and trying to sell her house.) was over there today cleaning windows and doing yard work with a smile on his face worrying more about her than all the work he was doing. And that first shrink said this kid would never have empathy. Don't believe what all those doctors (except Dr. G of course) say your kids will never do. Just keep plugging and trying to notice what they are doing right instead of noticing all the things you still have to teach them. Best, Marcia P.S. Wish we would have had you for a grandma!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2010 Report Share Posted September 6, 2010 > > Carole, > > He is so lucky to have you in his life. And what a wonderful relief for his > family to have someone who loves him to take care of him. How wonderful to > give the family a break so they can recharge and get up and do this another > day. That is something we never had. I always wanted a grandma and grandpa > for my kids. > > > > We were all alone and far away from family in Minnesota. The rest of the > family was in California. I could never leave because even my husband > couldn't handle in the early days. As he got better thanks to Dr G > that all changed. But I still couldn't leave him with a babysitter until > his sister was about nine or ten and really was the one babysitting even > though we were paying someone else to be in charge. > > > > These kids tax us but when they make small strides, we are so grateful. And > who could have known that such a tough kid would grow into the wonderful > person he is today. He is so amazing. We have a cousin in need of > assistance. (Going through a messy divorce and trying to sell her house.) > was over there today cleaning windows and doing yard work with a smile > on his face worrying more about her than all the work he was doing. And > that first shrink said this kid would never have empathy. > > > > Don't believe what all those doctors (except Dr. G of course) say your kids > will never do. Just keep plugging and trying to notice what they are doing > right instead of noticing all the things you still have to teach them. > > > > Best, > > Marcia > > > > P.S. Wish we would have had you for a grandma!!! > > > > > > Quote Link to comment Share on other sites More sharing options...
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